Making Of The Dreaded Mask

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Linda C.
Linda C. Member Posts: 107 Member

My friend Carolyn transported me to the Cancer Center and went to all the appointments I had prior to the procedure.  Lots of paperwork and information given by many staff members.  I was pleased to learn that I may qualify for financial assistance.  Completed the forms and will know something in a week or so.  The cost for each treatment will be $50 -  $1750 for the 7 weeks of treatment.

So, yesterday was the day of the mask.  I was well prepared for what was to come.  My best friend Xanax was taking good care of me and I was very pleased at how well I responded to the procedure.  The technicians were friendly and talked me through the whole process which helped to put me at ease.  Carolyn stayed in an outer room where she could observe through a glass wall.

Once the mask was molded to my head and shoulders I was placed in the CAT Scan machine in order to take measurements.  This went by quickly and I didn't panic.  I've had several CAT Scans so the machine is very familiar to me.

As the warm, wet plastic screen was being placed on my face my eyes were open.  I wanted to see what it looked like.  I really thought that I would need to keep my eyes closed to reduce the anxiety.  However, I opened my eyes several times during the process.  My eyelashes touched the screen and I was not able to completely open my eyes.   At one point I felt that the mask was too tight around my neck and I had trouble breathing.  After this was adjusted I felt fine.  

I did not get to see the Elekta Infinity Linear Accelerator on this day.  We will meet at my next visit in about a week for a practice run then my first treatment out of 35. 

We went to the hospital food court and got sandwiches then returned home.  I was thankful that I didn't have to drive as I was not able to walk in a straight line.  I felt a little weak, drugged, and extremely relieved that it was over.  I also felt  some pride in myself for not having any problems with high anxiety while the mask was being molded to my face.

I think one of the reasons I was calm was because one of the staff members explained that I was not going to be bolted to the table and indeed would be able to sit up.  The mask is snapped to the head rest which is snapped to the table.  Once I heard this, I felt a great deal of relief.

So now I just have to wait for the Radiation Oncologist to check the measurements and approve the readings and then I will receive a phone call telling me when to go back for the treatment.  It should be in about a week.

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  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
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    on your way

    Linda,

    That mask was a milestone and you breezed through it.  My mask had eye holes cut in it.  I never liked the mask, but found the procedure interesting. Now you need to pick out your music.  I enjoyed 60’s & 70’s rock.

    Matt

  • MemphisTn
    MemphisTn Member Posts: 41
    edited June 2017 #3
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    Awesome

    Really awesome to hear! I usually fell asle during my treatments, I understand some have real issues with the mask and being connected to the table but for me, it was better than the alternativ. Keep the Faith!

  • Linda C.
    Linda C. Member Posts: 107 Member
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    CivilMatt said:

    on your way

    Linda,

    That mask was a milestone and you breezed through it.  My mask had eye holes cut in it.  I never liked the mask, but found the procedure interesting. Now you need to pick out your music.  I enjoyed 60’s & 70’s rock.

    Matt

    I also like 60's and 70's

    I also like 60's and 70's music.  I'll see how the first treatment goes using some of their music - then I'll decide.

  • Linda C.
    Linda C. Member Posts: 107 Member
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    MemphisTn said:

    Awesome

    Really awesome to hear! I usually fell asle during my treatments, I understand some have real issues with the mask and being connected to the table but for me, it was better than the alternativ. Keep the Faith!

    Don't think I'll ever be

    Don't think I'll ever be relaxed enough to fall asleep during treatment.  I just don't want to have a panic attack.

  • Sprint Car Dude
    Sprint Car Dude Member Posts: 181
    edited June 2017 #6
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    The Mask

    I had a play list on my phone and my rad techs would plug it into the awesome sound system at my cancer center. They would crank up my Metallica and Disturbed. The next thing I knew my 20 minutes was completed and another day was in the books. Then I would take my walk of shame with waffle imprints on my face and head out to my truck. LOL..  Hang on for the ride.   

  • Andy13460
    Andy13460 Member Posts: 115
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    The Mask

    Must be me but I could sleep with it on quite happily. Just gone through 27 of 35 today and 1 more chemo on Wednesday left.

  • Chicklette
    Chicklette Member Posts: 225
    edited June 2017 #8
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    The Mask

    I had a play list on my phone and my rad techs would plug it into the awesome sound system at my cancer center. They would crank up my Metallica and Disturbed. The next thing I knew my 20 minutes was completed and another day was in the books. Then I would take my walk of shame with waffle imprints on my face and head out to my truck. LOL..  Hang on for the ride.   

    Waffle Marks

    LOL.  My husband was losing some hair from the rads so he just completely shaved his head.  The first day of rads after that, the waffle marks were so obvious that I started laughing.  :)  He thought it was pretty funny, too.

  • Linda C.
    Linda C. Member Posts: 107 Member
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    Andy13460 said:

    The Mask

    Must be me but I could sleep with it on quite happily. Just gone through 27 of 35 today and 1 more chemo on Wednesday left.

    Wish I was going in for my

    Wish I was going in for my 35th instead of my first.  So happy for you that you are at the end of your treatment.

  • Andy13460
    Andy13460 Member Posts: 115
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    Linda

    Linda

    You will probably find that once you start the time goes quicker than you would expect, before you know it you will be coming to the end of it.

  • Bob Watt
    Bob Watt Member Posts: 60 Member
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    For the first few times

    I closed my eyes and put myself elsewhere. Singing "We are the Champions" in my mind also helped even though there was music in the room. After awhile I just counted the rotation/counter rotations of the machine. 2 one way and 2 the other and it was over. The mask was an issue for a start as I'm not one to sit still for any length of time. After the first week it was only 5 more of this to go and it got easier.

  • donfoo
    donfoo Member Posts: 1,771 Member
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    blink and you're done

    It goes really fast. I used to stare at the thing going round and round. A few round trips and you'll be hoping off the platform. No need for anxiety -  pop a pill 

  • Linda C.
    Linda C. Member Posts: 107 Member
    edited June 2017 #13
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    Bob Watt said:

    For the first few times

    I closed my eyes and put myself elsewhere. Singing "We are the Champions" in my mind also helped even though there was music in the room. After awhile I just counted the rotation/counter rotations of the machine. 2 one way and 2 the other and it was over. The mask was an issue for a start as I'm not one to sit still for any length of time. After the first week it was only 5 more of this to go and it got easier.

    I like Queen too.  Good

    I like Queen too.  Good choice of song for the situation.

  • Linda C.
    Linda C. Member Posts: 107 Member
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    donfoo said:

    blink and you're done

    It goes really fast. I used to stare at the thing going round and round. A few round trips and you'll be hoping off the platform. No need for anxiety -  pop a pill 

    Oh, I will definitely be pill

    Oh, I will definitely be pill popping. LOL

  • Bionicguy
    Bionicguy Member Posts: 22
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    Golf

    I had 40 rad treatments. It didn't take long to figure out the pattern the ray gun moved and it was always 10 shots. So I would count it like I would playing golf "hitting one" "laying one, 9 to go" "laying 2, 8 to go" and so on. Did a lot of Hail Marys too.