Recurrence Squamous Cell Carcinoma?

Bobby_Lee
Bobby_Lee Member Posts: 25
edited May 2017 in Head and Neck Cancer #1

My first post, Hi everybody. I had stage 4 Squamous Cell Carcinoma and was treated with Surgery,Chemo and Radiation. I have been clear since January 2015 until very recently. I have Developed a sore red lump on roof of my mouth and awaiting biopsy. If this truely is the evil monster coming back what can I expect as far as treatment? I had a very slim chance to recover the first time but I did. I will recover again.Will I get the same treatments at more intense levels or will it be totally different this time? I have heard some people talk of hormone treatments? Any responses would be very appreciated especially from somebody with recurrence. Thanks.

Comments

  • caregiver wife
    caregiver wife Member Posts: 234

    My husband has just recently completed treatment (Chemo) for recurrence and is officially in remission.  Everyone's options are different, so I have no comments on that.  Hang in there, and let us know how you do with your biopsy.  

    Crystal

     

  • Bobby_Lee
    Bobby_Lee Member Posts: 25

    My husband has just recently completed treatment (Chemo) for recurrence and is officially in remission.  Everyone's options are different, so I have no comments on that.  Hang in there, and let us know how you do with your biopsy.  

    Crystal

     

    Thanks for posting.Glad your

    Thanks for posting.Glad your husband is in remission. Good wishes for you and family.

  • Bobby_Lee
    Bobby_Lee Member Posts: 25
    edited June 2017 #4
    Still waiting on Biopsy. You

    Still waiting on Biopsy. You would think that the doctor would want it ASAP. The NOT KNOWING is driving me nuts! I think its worse than cancer itself.

     

  • SuzJ
    SuzJ Member Posts: 427 Member
    Bobby_Lee said:

    Still waiting on Biopsy. You

    Still waiting on Biopsy. You would think that the doctor would want it ASAP. The NOT KNOWING is driving me nuts! I think its worse than cancer itself.

     

    Breathe, just breathe.

    Breathe, just breathe.

    When I worked EMS in NYC we used to say, that if the heart attack doesnt kill you, the hospital bill will.

    Thats how I think of waiting for results!

  • phrannie51
    phrannie51 Member Posts: 4,716
    Bobby_Lee said:

    Still waiting on Biopsy. You

    Still waiting on Biopsy. You would think that the doctor would want it ASAP. The NOT KNOWING is driving me nuts! I think its worse than cancer itself.

     

    Being left out to dry...

    is hard emotionally....the hurry up and wait syndrome of cancer treatment.  The "I want to know now/please don't tell me" feeling when we're scared and anxious.  I know what you're feeling.  I just went through that with a biopsy....then they told me they were sending it in to genetic testing for PD-l1...when I hadn't heard in TWO WEEKS, I went to see the Oncologist.  He found out they hadn't sent the tissue in...paperwork screw up....now I'm hanging to dry for another two weeks!  If you can do it....shove the cancer thinking out the door, with the thought that you'll know soon enough....that for today you DON'T have cancer, and you won't till somebody in the know tells you that you do.  HUGS!!

    p

  • Bobby_Lee
    Bobby_Lee Member Posts: 25
    Thanks for encouragement. I

    Thanks for encouragement. I really needed it. I was feeling pretty low. Still waiting on biopsy believe it or not. I am finally getting it on Tuesday. Seems like none of my doctors are too concerned about time. Meanwhile new symptoms are popping up. It is getting hard to swallow, my sinus is painful, feel week and tired as well as dizzy. I dont care how sick I get I will NEVER give up fighting.

  • Womanatpeace
    Womanatpeace Member Posts: 3

    Being left out to dry...

    is hard emotionally....the hurry up and wait syndrome of cancer treatment.  The "I want to know now/please don't tell me" feeling when we're scared and anxious.  I know what you're feeling.  I just went through that with a biopsy....then they told me they were sending it in to genetic testing for PD-l1...when I hadn't heard in TWO WEEKS, I went to see the Oncologist.  He found out they hadn't sent the tissue in...paperwork screw up....now I'm hanging to dry for another two weeks!  If you can do it....shove the cancer thinking out the door, with the thought that you'll know soon enough....that for today you DON'T have cancer, and you won't till somebody in the know tells you that you do.  HUGS!!

    p

    A little procrastination can

    A little procrastination can be a good thing, make the most of it. We just got an expensive PET scan and it turns out, that the test should not have been done so soon after treatment. The test is basically invalid at that point. Now we have to wait a long time before they can do it again.

     

  • Bobby_Lee
    Bobby_Lee Member Posts: 25
    Got my biopsy done today.It

    Got my biopsy done today.It did not go as well as I had hoped. I thought there was one spot and just a small sample would be taken with a needle biopsy. They ended up doing punch biopsy taking 3 samples that hurt like crazy, leaving holes closely to the size of a pencil eraser. My surgeon was gone before I woke up and just left a note to follow up in 10 days with a couple prescriptions. Looking at holes, 2 look pink and not bad but the one spot that was sore and the reason why I went in appears to have a cavity underneath with necrotic tissue. On a good note they gave me a really good orange popsicle when I woke up. I will post more when I get results.

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    waiting

    Bobby_Lee,

    Hang tight, the wait will be over soon.

    I guess they call it a punch biopsy for good reason. Those orange popsicles sound like they would be popular around here.

    Good luck.

    Matt  

  • caregiver wife
    caregiver wife Member Posts: 234
    Bobby_Lee said:

    Got my biopsy done today.It

    Got my biopsy done today.It did not go as well as I had hoped. I thought there was one spot and just a small sample would be taken with a needle biopsy. They ended up doing punch biopsy taking 3 samples that hurt like crazy, leaving holes closely to the size of a pencil eraser. My surgeon was gone before I woke up and just left a note to follow up in 10 days with a couple prescriptions. Looking at holes, 2 look pink and not bad but the one spot that was sore and the reason why I went in appears to have a cavity underneath with necrotic tissue. On a good note they gave me a really good orange popsicle when I woke up. I will post more when I get results.

    Biopsy done today

    Bobby Lee,  So sorry you are going through this.  We are waiting with you, sending best wishes.

    Crystal

  • Bobby_Lee
    Bobby_Lee Member Posts: 25
    Got my report tonight by

    Got my report tonight by logging into my hospitals patient portal. I was shocked it was so early. Invasive keratinizing squamous cell carcinoma. I have been suspecting squamus cell but not this. I dont even have an appt till next week to discuss it with my doctor. Feeling like I have been hit by a truck. I will post more later. Cant concentrate now. Thanks for letting me cry on your shoulders.

  • caregiver wife
    caregiver wife Member Posts: 234
    Biopsy report

    Bobby Lee,

    Keepiing you in my prayers,

    Crystal

  • johnsonbl
    johnsonbl Member Posts: 266 Member
    Sorry to hear bobby

    Praying for you.

    Brandon

  • Chicklette
    Chicklette Member Posts: 225
    Sorry to hear

    Sorry you have to face the monster once again, but I have faith that you will beat it for good!

  • mapdan
    mapdan Member Posts: 33 Member
    Good Luck to you

    Be thinking of you. Stay tough, you beat it once.

  • Drivingdaisy
    Drivingdaisy Member Posts: 263

    Being left out to dry...

    is hard emotionally....the hurry up and wait syndrome of cancer treatment.  The "I want to know now/please don't tell me" feeling when we're scared and anxious.  I know what you're feeling.  I just went through that with a biopsy....then they told me they were sending it in to genetic testing for PD-l1...when I hadn't heard in TWO WEEKS, I went to see the Oncologist.  He found out they hadn't sent the tissue in...paperwork screw up....now I'm hanging to dry for another two weeks!  If you can do it....shove the cancer thinking out the door, with the thought that you'll know soon enough....that for today you DON'T have cancer, and you won't till somebody in the know tells you that you do.  HUGS!!

    p

    Latest

    Hi Phrannie,   Hope everything goes well.  It is so tiring just waiting.  Sometimes I feel that I lost control. The Medical Community has taken it away.  Do not like that, scares Me more  You are such a Tropper.  By the way, love the new picture, you look fabulous !!  Lisa

  • swopoe
    swopoe Member Posts: 492
    Thinking of you, Bobby.

    Thinking of you, Bobby. Prayers that you will beat this monster again!

  • donfoo
    donfoo Member Posts: 1,771 Member
    Lots of hope and treatments

    Hang in there. It's surely creating anxiety beyond imagination but many have been through this and are typing away. Hang in there.