HCC and Opdivo

Mike5072
Mike5072 Member Posts: 12

I was diagnosed with HCC late in 2014 and since have had three TACE procedures and one RFA.  AFP levels go up without anything showing on scans so now the oncologist wants to try me on Opdivo.  Does anyone have any experience with this therapy?  Side effects?

Comments

  • Kiesmuse
    Kiesmuse Member Posts: 12
    i dont have any experience

    i dont have any experience yet. But hoping for you to get well :O 

  • eighmey97
    eighmey97 Member Posts: 3
    HCC 10cm liver tumor

    My husband was diagnosed with a HCC 10cm liver tumor caused by Hep B. He recently underwent a Y90 treatment. The doctor performing the procedure did not give much hope of the tumor shrinking since it had grown from 8cm in Jan 2017 to April 2017. Does anyone have any experience with large HCC tumors responding to Y90?

     

  • Mike5072
    Mike5072 Member Posts: 12
    Kiesmuse said:

    i dont have any experience

    i dont have any experience yet. But hoping for you to get well :O 

    thanks

    thanks

  • Mike5072
    Mike5072 Member Posts: 12
    edited June 2017 #5
    Began Opdivo Treat

    I began Opdivo chemo sessions last Tuesday for treatment of my HCC.  Happy to say I have had no adverse side effects to date.  Treatment  sessions will be two weeks apart for a total of 12 sessions.  Nexavar wasn't effective and I didn't tolerate it well.  Waiting to hear now if I am going to have a port put in.

    I have to say thank you to Bristol Myers Squibb for accepting me into the Patient Assistance program after my insurance company denied me the drug as "medically unnecessary ".

  • ChrisLA
    ChrisLA Member Posts: 2
    edited September 2018 #6
    Mike5072 said:

    Began Opdivo Treat

    I began Opdivo chemo sessions last Tuesday for treatment of my HCC.  Happy to say I have had no adverse side effects to date.  Treatment  sessions will be two weeks apart for a total of 12 sessions.  Nexavar wasn't effective and I didn't tolerate it well.  Waiting to hear now if I am going to have a port put in.

    I have to say thank you to Bristol Myers Squibb for accepting me into the Patient Assistance program after my insurance company denied me the drug as "medically unnecessary ".

    Best wishes... and waiting

    Best wishes... and waiting for your updates...