My CT showed thickening, vaginal cuff. Has anyone had this?

I haven't experienced this but wanted to say hi and let you know that the gals here are so great about checking the board and I'm sure someone will be along very soon with some great info.

I'm sorry you had to find us but I've found such comfort being able to share with people who "get" it.  We'll be here if you have questions, need to vent, need some support- whatever! 

Hang in there- you've got this.  (((HUGS)))

Dear Tough:

I was diagnosed with Stage 3A, Grade 2 endometrial adenocarcinoma back in 2005.   I had another surgery in 2010 where a soft tissue mass was biospied positive.   I was told it was unoperable and I needed to start chemo right away and then they would try surgery and that I would probably have a permanent colostomy.   I went for a third opinon and found a doctor who said he could operate on me.   When it was removed the mass was negative (although they found a lymph node with cells).   I currently have a 5.4 x 2.4 cm soft tissue mass on the left side of my vaginal cuff (perirectal area).   It is PET positive (low 3.2).   I had part of it biopsied and it was negative.  It stated that it was connective tissue.   They still watch it and it slowly has been growing. In 2014 it grew a lot at the time and my left ureter passed through it causing a hydroneprhosis.   I had surgery to correct the hydronephrosis and to get a good biopsy on the mass but they did not biopsy the mass.  I had too much scarring and the doctor said that part of the mass fell apart and couldn't be biopsied.  However, on my next scan the mass grew.  When I got the surgical report (I requested it), apparently because my ureter was attached to everything a small knick in my bowel occured so they repaired that and I guess didn't go further down to get the mass.  That was in Dec 2015.

The mass is still there and I know it does cause some bowel pain but I just had a colonoscopy and that seems ok.

Further, I do have a lot of inflammation throughout my body too.

My last CA125 was 14, previously 11.  But that was never an indicator for me.  I go for a CT scan in June.

I hope this helps.   

Kathy

I was unable to finish recommended amount of chemo because of serious side affects, anaphlatic and neutrophenic.  Has anyone else had this similar problem.  I am new to this group and would appreciate any input.  Although I had a second opinion, I am kind of scared of cancer returning.  Good thing I know I can't control that from happening.