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This Can't Be Happening Again!

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

Hello All,

It has been some time since I posted. You all are never far from my thoughts.

I am asking for your prayers, good vibes, and positive thoughts for my son, Robert.  As some of you "oldies"(but goodies, might I add) may remember, I lost my husband, Ron to H&N and Lung Cancer back in May 2013 and just one year after that I buried my daughter, Johnnybegood, who was a long time member of this group. My son has developed rectal bleeding and severe pain in is left hip over the last few weeks. With his family history, he was able to get an appointment with a gastro doctor for this Thursday morning.

I know this could be a million other things, but when Cancer resides in your home as long as it did in mine, it is naturally the first thing you think of. I also remember that "It's not cancer till they say it's cancer."

Holidays are still tough for me. In fact, every day is still tough for me as I try to move forward. Please keep us in your thoughts and prayers. I will not survive another loss.

Wolfen

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

I pray for your Robert and for you that this is not Cancer.

You yourself have seen too much sorrow, and you son does not need to suffer as his loved ones have. 

I am so glad that he was able to get an appointment quickly, and hopefully will find out what is the cause of his problems. 

Thinking of you!

 

Cathleen Mary
Posts: 827
Joined: May 2011

Wolfen, With much affection I remember Johnnybegood as well as your posts re your dear husband. Please know that Robert is in my prayer as you always are. 

CM

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

 I have everything crossed for it not to be cancer. I was the cancer sibling in our family , my brother has survived over 40 years of ulcerative colitis and Barret's oesophagitis. He has had over 40 colonoscopies and endoscopies. He turned 72 this year. May your sons problem be benign, best wishes Ron.

Semira's picture
Semira
Posts: 378
Joined: Mar 2012

all fingers crossed here in Germany.
Hoping for good results.

Hugs
Petra

geotina's picture
geotina
Posts: 2120
Joined: Oct 2009

I am sorry for what you are experiencing.   Stay strong dear one.  I think of you and so many others from this board.  

Tina

 

Joan M's picture
Joan M
Posts: 411
Joined: Oct 2016

Praying for good results for your son.  It is always sad to hear about others being diagnosed with cancer.

Helen321's picture
Helen321
Posts: 1409
Joined: May 2012

Are you freaking kidding me?  The good thing is pain in the hip or anywhere else is rarely a sign.  I hope it's an easy, fixable thing like something broken.  It's sad when we're wishing for fractures or broken body parts but it's the safer wish.  Please let us all know as soon as you find out.  You are a rockstar in my world and always will be.  You kept a lot of us going.  Your daughter was so lucky to have you by her side.  I know she appreciated it.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I pray that your son is fine and this is just a scare. It's natural to think the worst in your situation. Best of luck!

Jan

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

And hoping that this is not more cancer,  but rather a benign situation.

Alice

Colonchick's picture
Colonchick
Posts: 36
Joined: Nov 2016

Thinking only good thoughts for you and your family!

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

What a horror, I am so sorry you may be in this again.

Personally, I do think that we can improve the odds and results by "first aid" and initial response in these first days and weeks by extra blood tests, immune building actions and mild off label drugs. 

jen2012
Posts: 1607
Joined: Aug 2012

I popped in after much time away and my heart sank when I saw your post.  I hope by now you have some reassurance that this is not cancer.  I will be checking back. 

Hugs, prayers and positive thoughts. 

Lovekitties's picture
Lovekitties
Posts: 3346
Joined: Jan 2010

I am so very sorry to hear that you and son are having to go through this worry.  I pray that all will be well.

Hugs,

Marie who loves kitties

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

Hoping the colonoscopy went well and that you have already received word that all is clear. I know the paths take time and that cancer isn't always immediately recognizable to the doc like mine was, but I'm praying he told you he found hemorhoids, or something to that effect.

Big hugs,

Krista

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

So very sorry to hear of the latest cancer scare in your family.  Praying that the results show no cancer and that it's something easily treatable.  Hugs to you as you begin 2017, may it be a good year.  Traci

beaumontdave's picture
beaumontdave
Posts: 1062
Joined: Aug 2013

Scary stuff, and hopefully unrelated issues. You and your son have my thoughts........................................Dave

Lovekitties's picture
Lovekitties
Posts: 3346
Joined: Jan 2010

Dear Wolfen, do you have any news to share about your son?  Prayers that it was nothing serious.

Hugs,

Marie who loves kitties

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

HUGS!

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

Thanks you guys, for asking. Nothing to report yet. The colonoscopy prep contained Aspertame, which Robert is allergic to. The first round of it made him very ill with a migraine and bluured vision. They are going to have to come up with an alternative and then reschedule. I took him to the ER today as the hip pain had become so severe that he was almost in tears. They did a CT, but could find no explanation. He declined pain meds as they make him sick and he can't take anti-inflammatory meds because of the bleeding. He was able to get a few days off work so he wouldn't be standing for 10 hours a day which exacerbates the bleeding and hip pain. Something is very wrong and no one knows what it is.  Doctors and medicine remain high on my hate list.

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

4 Dulcolax, drink a cup of water every hour from noon to 6; drink a bottle of Mag Citrate.  No more "heavy" drinking after that. Saline enema at bedtime.  Saline enema in the morning.   Don't know if Mag Citrate contains aspartame.  The one I looked up had saccharin in it.

Much more tolerable prep. 

Sending best wishes.

Lovekitties's picture
Lovekitties
Posts: 3346
Joined: Jan 2010

I looked up two listed as approved by FDA and neither reported aspertame as an ingredient:

 

Prepopik

 

Moviprep

 

Of course they may only have listed the "active" ingredients and I expect the aspertame was a flavoring.

Under the circumstances can't they admit him to hospital and do fluids only and enemas in order to get the test done?

Prayers for resolution soonest.

Hugs,

Marie who loves kitties

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

An allergic reaction on top of the pain and bleeding, thus not being able to go ahead with the procedure. That really is unfair! 

I hope something can be done, and soon. Regardless of the diagnosis, knowing what the problem is means finding relief. 

Thinking of him and thus, you too. 

TRU

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

Thanks Alice, I will copy this Mag CItrate concoction for him.

Marie, I don't know what his prep was. He said it was like drinking glue. The Aspartame was defined by another name, which he researched, unfortunately only after drinking it.

Sue, I was so exhausted when I reported this last night that I didn't tell the worst part of yesterday. We started at an Urgent Care where his new PCP works. He is on the "poor people's" insurance and his options are limited. He was seen by an old "SOB". Any fool could see he was in extreme pain. After the exam  and explaining all the recent happenings, he asked if he could get a note for a few days off from work just to stay off his feet. This person was so rude. He said "Absolutely not, I don't know you from Adam." Needless to say, Robert told him where he could stick his compassion. That's when we headed to the ER. He was just stunned that a doctor would treat him this way. I hated to tell him "Welcome to the real world." where compassion walked out a long time ago.

I know you all have been through much, much worse and probably run into this type of "doctor". Fortunately the ER doctor is probably in the early phase of his career and still retains his humanity.

zx10guy
Posts: 266
Joined: Dec 2013

My CRC surgeon had me use the Moviprep stuff.  Nasty stuff.  My GI doctor has me use a combo of Ducolax, Miralax, and Gatorade.  Using this mixture has never been a problem with any of my colonoscopy procedures.  The Gatorade helps in providing some decent flavor along with keeping your electrolytes up while everything is blowing out the other end.

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

That Dr. sucks!  no way around it.  Glad you went to the ER and got better care, but it shouldn't have gone that far, IMHO.  Sad, truly sad.  I hope your son gets results soon.  Maybe the new prep will do the trick.  Good luck and keep us posted, Traci

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Still watching this thread to see what's happening. I hope everything will be okay. How unfortunate for him to have run into a nasty doctor. Like things aren't hard enough already. I'll be thinking of you both. Hugs.

Jan

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

My son is on one of the state's "low income" provided insurance. This morning he called several of the doctors on the list to find a new PCP. None of them would take the insurance, so he called the insurance provider. It seems they were bought out by United Healthcare which does not take effect until Feb. 1. So he is in limbo. He can still go to the hospital, though I'm not sure if any of the testing can be ordered.

The bleeding has become sporadic, but the hip pain is constant, especially when standing. So he is between a rock and a hard place right now. Not sure if he can return to work on Wed., but will cross that bridge then.

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Wolfen, I remember you and Johnnybegood.  Your kind words to me were always lifting and supportive. And I am forever grateful. I just dropped in as I haven't been on the site in a while and I am so sad to read your post. I don't know what to say. It is so not fair!

You and your son are in my prayers beginning today.

Love and Light to you both. And may goodness FLOW to you both today, tomorrow, and the next!!!

Phil

ellend
Posts: 95
Joined: Apr 2016

I so hope for your sake that your son does not have cancer. You have been through so much already. So sorry your son has sub-par insurance that is delaying him getting the help that he needs. It's tough enough without having to deal with that as well.

Joan M's picture
Joan M
Posts: 411
Joined: Oct 2016

Most states have programs to cover the cost of colonoscopies due to the increased incidence of this dreadful disease.  I believe it was part of the Affordable Care Act and has been effective since 2009 in North Dakota.  I found out about it last month when I was talking to one of the cancer center coordinators at the clinic here. 

Also you should check with the clinic and hospital to see if they have assistance for low to moderate income individuals.  The clinics and hospitals that operate as non-profit organizations in my state (North Dakota) have to offer some assistance to unisured and underinsured individuals to maintain their "non-profit" status.  They offer discounts on uninsured and costs not covered by insurance anywhere from 50-100 percent depending on income levels.  This is not advertised but is handled through the business office.  I found out about it after my cancer diagnosis due to my huge expenses that remained after insurance paid their share.  I applied for the help buy we were just barely over the limit so didn't get the help.

It looks like your son may have coverage in a couple weeks, but it can't hurt to ask about any other options available to him.

I will be praying he does not have cancer! 

Good luck,

Joan

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

Only Preventive Care colonoscopies are covered; diagnositic ones are not.  Thus, if you go in for a preventive care colonoscopy assuming it will be completely covered under ACA, and a polyp is found and removed, you might be charged because it will have switched from preventive to diagnositic.  Crazy glitch in the law.

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

I don't see any recent posts, and that worries me.

I hope your son found a decent doctor (we all know how difficult that can be; especially on government assisted insurance), and that everything is okay with him.

Sending good vibes your way,

Krista

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

And all my other friends who responded with concern.

I'm sorry I have not updated. I have nothing to report except that our lives have become an even bigger "can of worms". The bleeding has become sporadic, but the hip pain remains constant. He has not gotten a new doctor yet, since the insurance change in February. He has been more concerned with finding a job. He quit his job of 3 years in mid January because of the constant standing for 8-10 hours with one fifteen miiute break and the fact that his employer did not adhere to the state's mandatory minimum wage increase. He was working on a reservation and they do not have to comply. He thought it would be easy to get a new job, even just cashiering, where the working conditions are more humane, but so far he has had no luck. I can remember my husband saying so many times, "Don't ever quit one job until you have another lined up." I have been helping him financially the best I can, but we are struggling, both on sinking ships. He is all I have left.

So his medical problems are on hold even though I have urged him to find a new doctor to discover what is going on. Until then, I can only hope it is nothing too serious. He does not have the typical symptoms of CC, but as we all know, there is nothing typical about cancer.

Take care,

Wolfen

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thank you so much for updating us. I'm sorry that you don't really have news. When you get some I pray that it's good news.

Jan

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

Hope he gets a job and a new doc soon. Prayers for you both, Traci

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

ahh Dear Wolfen.....very rarely here any longer.  Just read your long and difficult journey with your son.  so so sorry.  Johnny was a wonderful girl and we walked a lot of cancer roads together....sending you love Wolfen.....mags

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