First Folfox treatment yesterday, felt OK going into, nurses' info depressing

Everyone reacts differently to treatment

Some chemo  will cause hair loss in some peope, some won't. When I  was on Folfox plus Avastin my hair thinned but not noticeably so. It wasn't until I began  a regimen of Irinotecan and Erbitux that I began to lose a lot of hair, at which point I did get it almost all shaved off. My main problem with  the Folfox was fatigue-  it hit quite hard once the 5-FU pump came off after 46 hours and lasted for a couple of days. After that I felt pretty good thoughout the treatment.

If you're wondering whether to continue the chemo treatments I'd ask your oncologist what he hopes the  chemo  will accomplish and why he thinks it is necessary. It's probably  just mop-up chemo to make sure there aren't any renegade cancer cells lurking after the surgery. If you don't like what you hear, you can always ask for a second opinion.

Best of luck with your treatment- I hope you do get to the enjoy the trip you've planned.

Grace/lizard44

 

If you lose you hair

you can choose your reaction. Own it or hide. 

Go to Vegas. Rock it!  

I have noticed that we don't go bald, like breast Cancer patients. I call it shiny bald. But it CAN thin so much you will look like Gollum (Lord of the Rings). When I looked like Gollum, I shaved my head. Not bald but down to the nubs. 

I decided I would rock the look, so didn't bother with wigs, and only wore a hat when I was exposed to the sun. 

IF - and it might not happen - you lose you hair, don't hide. Life is too short. I bet you will be adorable. 

And yes,ntreatment can get bad, real bad; and it can be a breeze. You won't know until your a few weeks into it.

good luck!

SUE

 

I was on folfox for a couple

I was on folfox for a couple of months and didn't lose my hair. I didn't finish my treatments. I missed the last two. I was going to stop them but ended up in the hospital with a blood clot so it was stopped automatically. The reason I was going to stop them is because I was never confident in doing the mop up chemo, particularly after I had a long wait to start on it after my surgery due to a complication and the reduced success of it helping in that situation, and then the neuropathy becoming too much to deal with. My hair did eventually fall out but it was 5 or 6 months after the blood clot and spending 4 months in the hospital from that and I've been told it was from that, the long hospital stay and all the drugs I'd been given, not the chemo. Only about half of it fell out, at the back but I had the Gollum look where it did fall out. I had it cut and have finally grown it back to the length it was and I wish I'd just used a hairpiece at the back for a few months instead of cutting it. My hair is now thicker and curlier than ever. I don't like it.

If it had all fallen out or enough to make me shave it I'd have got myself a cool wig. The good news is that I get only about 5 leg hairs now and don't have to shave under my arms as often. The downside is that my eyebrows, which didn't totally fall out, grew back in messy looking. I now have to draw in the bare areas and trim off the hairs that go in all directions.

If I were you I'd buy a ticket and plan to go no matter what the situation was with my hair. I suspect most people don't lose their hair, just some do. I was never told that I would when I went on it and I didn't. 

Jan

Colleen E. said:

Thanks Jan

Thanks for that - I seem to be much the same as you assuming my chemo is "mop up". The hair info is good to know - I will just play it for ear for now. We will order our tickets for Vegas but will probably purchase cancellation insurance as a precaution. P.S. beautiful horse!!

Thanks! I just changed my

Thanks! I just changed my picture so he's not in it now. I still have him, I just rode him the other day, but the picture was old and I wanted one that reflected how I'm doing right now. I look healthy and I feel pretty good. Anyway, my hair took a few weeks to fall out. It was several washings and it came out in fairly large amounts each time but it took a few weeks for it to become noticable. And I actually thought it was okay and then saw a picture of myself from behind and realized how bad it looked to have the long straggly parts hanging down so I got it cut to shoulder length and nobody knew.

Of course, that was my experience, my hair on top never fell out so it covered the area that was very thin. Once I got the long part cut off it looked fine. But I like having long hair. I'm 53 and not interested in having short hair until I'm older. And I work in a dental office so it's nice to be able to put it up in a bun or ponytail or whatever. And, mine didn't fall out from chemo so it might be completely different from losing it to chemo.

Anyways, I hope yours stays and you have a wonderful time in Vegas! Last time we got a bus pass and it was much cheaper than the cabs we used to take everywhere. If you do lose it I bet you can get an awesome wig down there! 

Jan

hair loss

It sounds like you'll feel better getting the chemo, than no and I understand that.  I've gone 12 rounds of FOLFOX in 2007 and 14 in 2009 and had a bit of thinning but not much.  I even went ahead and continued to color my hair in 2009 although I switched to a more natural type of hair color product.  Everyone is different, you may or may not lose your hair, but if you do own it!  I loved That comment from Sue.    I agree with Abrub, ask for an extra week in between treatment for Vegas, I did that several times since I didn't want treatment to stop me from doing fun things.  Good luck to you, Traci

You are not far behind me

I had my first treatment on October 12th and go for my third one next Wednedsay. I have not experienced any hair loss so far and have handled the treatments well. My oncologist said I may not notice anything different with my hair. I did cancel all my planned travel because I wanted to minimize my exposure to sick people as a precaution to white blood cells being low, plus one of my trips was out of the country and also would require a major change in my treatment schedule.  I do work full-time except on treatment days and that has been going very well.  I'm finding the more active I stay the better I feel. In fact this week I am bouncing with energy. I have not changed much in my life habits, still enjoy my wine (just not as much) and occasional bad eating habits.  I figure I will wait for my firsts scan in December how things are going before I make any drastic lifestyle changes.

I say if you are looking forward to Las Vegan, then go.  You deserve it.

 

Terri

beaumontdave said:

Went to Vegas after all 12

Went to Vegas after all 12 folfox treaments were done, head hair was thinner, but there. Moustache, eyebrows, still there, but I would have gone bald. Hats I would wear in Vegas in January anyway, because it can be cool in the day and freezing at night. Go have fun, you'll have earned some

Ask around about the cold cap

Ask around about the cold cap, something you freeze, wear during clinic treatment, and it's supposed to protect your hair by constricting blood supply to your scalp. That's all I know about it.

You say when

I am now 10 years NED for my colon cancer, and 9 years for the uterine.  Yeah, we have HNPCC in our family.  I did Folfox after resection.  The regiment called for 12 treatments, but I called a halt after 9 and my oncologist agreed.  There were too many negatives at that point and, as he said, "The point of treatment is to cure, not kill."  LOL!  Anyway, do what you feel you should after getting all your information, but if the side effects start to become overly serious (I had a blood clot, neuropathy in all limbs, very low blood pressure due to being unable to eat or drink properly, systemic yeast, blah, blah, blah) then say "when."  Only you can make that determination and it's a week-to-week, sometimes day-to-day self assessment.  Listen to your body.  Think about after it's over.  Visualize yourself completely cancer free.  Hugs.

Kirsten