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Dumping Syndrome

Nostomachcliff's picture
Nostomachcliff
Posts: 1
Joined: Aug 2016

65 days Post op I've lost 41 lbs. still struggling with Dumping. Seems like all foods cause dumping to some degree, mild to really bad. I've discovered that if I lay down immediately after eating that pretty much solves the problem. But to get my necessary protein and calories it's tough. Stop drinking 30 minutes before eating, then take 30 minutes to eat, wait another 30 minutes to drink again, wait for food to settle. All the while laying down after each meal, I'm running out of hours. Trying to get some physical activity but I tire quickly. I'm on day 10 of 14 of chemo, no side affects yet. Add in radiation  
3 weeks after 1st round chemo is done. Radiation 
5 days a week for 5 weeks. Is there a food anyone has discovered that poses the least amount or -0- amount of dumping. Thanks 
Cliff

s_sykora
Posts: 5
Joined: Aug 2016

I am 4 months out from my full gastrectomy, and have had similar treatments as you except I had my inital chemo/radiation before my surgery to shrink the tumor.  I am now on post op chemo, which has been more gentle than the chemo that was done with the radiation.  That chemo/radiation combo really affected me.... so much so that I had to get a feeding tube down the nose for 2 or 3 months to get food into my system.  Those differences aside, what you are describing sounds familiar to me although I don't think mine is quite as severe - at least not at this point.  The first two months after surgery for me was all a difficult time to figure out, it seemed like all was pain and discomfort.  My biggest problems are getting down enough water (60 oz+) down between eating and recovering from eating.  Not enough hours in the day sometimes, I completely agree.  It's pretty much a full time job.  At this point my activities besides eating and drinking consist of one to two hour projects at home, but that is all I can do at this point.  My other problem is this heavy feeling or pain that hits me about a half hour after eating, I hope that goes away someday.  I have lost 85 lbs so far myself during this whole cancer fight, but it has been fairly stable the last two months or so.  Again,  post surgery, everything was a muddle with hard to figure out patterns for the first two months.  About the third to fourth month after surgery, I was finally able to pin down what was affecting me (foods, times, amounts, etc) as the gut pain and diarreah from eating seemed to lessen and subside with time.  I used to need to lie down with almost every meal, now maybe only once a day.  I also have a feeding tube to the small intestine that I take in 750 calories at night that also helps me, but frankly it allows me to be a little lazy as far as making sure I am getting enough protien, etc.  I have been focusing a lot food that is not too heavy, especially fruits and veggies and a light weight bread (in very small amounts).  My favorite is to sit and read a book or watch a video and nibble on some food and take maybe 15 minutes or half hour to eat a small bowl of food.   That always goes down with very little pain afterwards.  I also add with that food all the peanut butter, cottage cheese, real mayo, tuna, ect that I can handle to get the calories up.  Ensure type drinks really do not set well for me (probably too much sugar?), or many meats.   The meats I still eat, but sparingly because I get a real ache out of it.  At least for now!  Hope this helps!  Sounds like we are in the same boat.    Scott

Gary'swife
Posts: 5
Joined: Nov 2014

My husband had a total gastrectomy with pre- and post-op chemo in 2010. He definitely struggled with eating for some time after the surgery, and it was a difficult time for us both. However, slowly but surely things did improve until he was able to eat normally most of the time! There is a light at the end of the tunnel!

After he finally was back to eating almost normally, we put together a website with every tip and trick we learned about eating again and dealing with various digestive challenges. I hope you will find our site to be helpful to you: http://www.stomachcancersurvivorsguide.org/getting-through-treatment-3/first-year/ 

Gary also wrote a blog about his stomach cancer journey. Our friends found his humerous writing about a grim subject to be entertaining, so I'll pass that link on as well: http://www.garyolson.info/

Gary'swife
Posts: 5
Joined: Nov 2014

I just discovered that our Stomach Cancer Survivor's Guide website has been hacked and the link I posted above is redirecting to other sites. My sincere apologies. I am trying to get the problem fixed!

 

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