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Another Wednesday, another scan...

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I've been on Nivomulab since January. Love it! No side effects worth talking about (aint I lucky?). Last time they looked, in March the tumours had reduced in size.

I'm getting superstitious. No side effects and tumour reduction sounds too good to be true. Not that I'd be complaining or anything.

Best thing is, after doing this for so many years I dont even get scanxiety.

Not me, not at all.

I mean...What have I got to worry about?

so no anxiety

no anxiety

at all

 

 

None

APny's picture
APny
Posts: 1947
Joined: Mar 2014

Here's to continuing the no side effects and size reduction! Hoping the news is all good xo

Yeric
Posts: 65
Joined: May 2015

We were in Seattle doing a clinical trial.  I was scanned every 7th week.  I had zero side effects and reduction with every scan.  The lack of sides was the amazing part I guess.  The Doctor told us ' If I didn't know better I'd say we were treating you with tap water.'

Enjoy it all Foots!

Bobby

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

Wishing you continued good news!

Kim

Jan4you's picture
Jan4you
Posts: 1320
Joined: Oct 2013

Stomper man, this only make me admire you more!

Glad your drug is being rather kind to you=well deserved!

Just sending you a loving hug with hope for a good scan!

Hugs, Jan

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

Stomp, that's great to hear.  Keep up the good work, definitely!

Airie
Posts: 45
Joined: Mar 2016

Hoping for continued reduction in tumors!!!!!

 

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I might have been not entirely truthful about the scanxiety.

Every ache or pain, cough or snivel feels like the cold breath of the grim reaper on my neck as I get closer to the scan.

Still, you've got to laugh, havent you?

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Nevertheless, I wish you only the best.  Kiss  I'll be praying for you....as always.

Donna~

Hd67xlch's picture
Hd67xlch
Posts: 143
Joined: Apr 2016

I got all my 4 month scans this  Monday, but I got a different kind of anxiety, its called DMV anxiety, its when you have to go to the tag/title office and try to get a title for a 48 year old motorcycle that the title was signed/dated by the previous owner in 1968 and I have no bill of sale. It will be interesting to see if the clerk at the DMV catches that I would have only been 10 years old in 1968 where my signature on the title is.

But  seriously, good luck to both of us this week on whats really important.

 

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Second only to an MRI. Whats the bike?

Hd67xlch's picture
Hd67xlch
Posts: 143
Joined: Apr 2016

1968 XLH Harley Sportster, I have 1967 xlch sportster and a 1969 xlh sportster, so I thought it was only fitting to fill the void in years with a 68 model, funny how my wife doesnt see the same need as I do. Good luck this week.

sblairc's picture
sblairc
Posts: 586
Joined: Feb 2014

Can't wait for the good news. 

stub1969's picture
stub1969
Posts: 797
Joined: Jul 2016

I'll be thinking about you on Wednesday.  Good luck, Footstomper.

 

Stub

Allochka's picture
Allochka
Posts: 869
Joined: Nov 2014

Good luck and waiting for reduction news!

Skagway Jack's picture
Skagway Jack
Posts: 221
Joined: Oct 2013

Foots,  Best of luck with the scans!  I am meeting a new oncologist this week after my move to the sunshine state... Scans not far behind.  Positive thoughts headed your way.

Jack

 

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Wishing you continued good news. You deserve it.

Forough

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hey Stomps....I could read the scanxiety in your post....but everything is going SO well....try not to worry too much. We are all pulling for you - and sending our good thoughts and prayers your way for Wednesday!! You certainly have earned a symptom-free medication that WORKS!! Very hopeful.

Let us know how it goes!!

Hugs

Jojo

penitent
Posts: 79
Joined: Jun 2016

It's the waiting that's awful!

Penitent

Spivey88's picture
Spivey88
Posts: 43
Joined: Jun 2016

so glad you aren't having side effects!  Praying for great news on your scan!

jason.2835
Posts: 337
Joined: Nov 2014

I do not like green dye and scans, I do not like them in a lab, I do not like them in a cab.  

Very Seussian of you, Stomps!

- jay.

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I was aiming for e.e. cummings.

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

Will be praying for you on Wed that you get a good report!  

danbren2's picture
danbren2
Posts: 311
Joined: May 2013

Stomp,

     Keep the good news coming!!

                                                Brenda

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Straight back atcha! :-)

Heyker
Posts: 36
Joined: Jun 2016

Thinking of you today! 

mrou50
Posts: 389
Joined: Mar 2013

Happy for you brother, I hope the good news keeps coming your way.

Mark

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Now I have to wait til Tuesday for the results

stub1969's picture
stub1969
Posts: 797
Joined: Jul 2016

Stomper:

I'm with you--this waiting game is for the birds.  I get my chest scan today and have my initial meeting with Dr. Chow at the Mayo Clinic tomorrow morning.  It has definiately been a long two weeks since the appointment was made.  I do hold on to the advice you have given numerous times--"it's not as bad as what your fear makes it out to be".  Try to relax--read some poetry or classic literature.  You're in my thoughts and prayers!

Stub

marosa's picture
marosa
Posts: 332
Joined: Feb 2015

Wishing you well and sending good vibes and love!

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Thanks Marosa, I see my onc on Tuesday. I confess I'm getting a little nervous. People on this site have had less than stellar results lately. Anyway: Alea Iacta est!

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

no new lumps.little lump on adrhenalgland has gone. Little mets in lungs have shrunk or remained the same. Big met has increased from 4.8 to 6 cm.

gonna carry on with nivomulab and add radiation on Friday.

so good news but with a kick in the teeth included

Jan4you's picture
Jan4you
Posts: 1320
Joined: Oct 2013

Something drew me here tonight and now I know why=YOU!!

Good and not so good news, how do you wrap your mind around all that? Like you have all along.

You are loved, you ARE LOVE and as you can see WE CARE!

Let us send you that loving strength in hope and healing. BTW, healing is not all physical as you know.

I will ALWAYS be here for you  my stomper man!!

Hugs, Jan

Teashea's picture
Teashea
Posts: 89
Joined: Feb 2016

Very happy it is working fairly well for you. I pray it keeps working for you. Going to say a prayer for your radiation on Friday. I turned down radiation on my met lung tumor. Guess I am a chicken. lol

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

May I ask why you turned it down? If you dont want to talk in public send me an email

Airie
Posts: 45
Joined: Mar 2016

No new lumps. Little lumps gone. Great news Footstomper! Ok one nasty lump left to get rid of with radiation. Will be sending healing thoughts your way. 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

The met didn't necessarily grow. It is inflamed. It's bigger and puts up a bigger fight.

...on it's way out!!!!I'm truely happy my friend.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

I'm praying for you that the remaining will succumb very soon and your health will be restored.

Love ya man, you're an inspiration,

Donna~

Allochka's picture
Allochka
Posts: 869
Joined: Nov 2014

This sounds fantastic to me! Small mets shrinking, and even if one big is present - it can be dealt with! Or perhapsit is just inflamed, as Fox says. Time for a little celebration, seems like you'll have to use your new hip for a looong time :-)

APny's picture
APny
Posts: 1947
Joined: Mar 2014

That's very good news! Hoping the big met is just inflamed, as Fox says.

marosa's picture
marosa
Posts: 332
Joined: Feb 2015

Nobody can do it better Stomps!  All in all it's mostly good news.  We are as always, cheering for you!

Skagway Jack's picture
Skagway Jack
Posts: 221
Joined: Oct 2013

Stomps,   Sounds good overall the one big one can be dealt with in a number of potential ways.   Best wishes for continued success!

 

Jack

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I'm going to carry on with Nivomulab, which mostly seems to be doing its job, and they are going to very aggressively zap my big lump (which seeing as its a Metastatic offspring from my original lump, which I named Darth, must be called luke). They are hoping not to damage my lungs or my heart, to which apparently Luke is close. They are hoping to annihilate Luke and they are dreaming that Luke in his despair and crisis will stimulate antibodies from all his little polyps which will then be attacked by the Nivolumab leaving me cancer free.

This is all pretty new and they are working in concert with other oncologists around the world to see if it will work. After my reaction to IL2 and other stuff, they said that I have "What we call quite a biology!" (a joke). Make of that what you will.

Another scan on Wednesday to fix an aim on Luke (a moving target) whilst avoiding my heart (another moving target). We start the treatment on the 29th.

Its all terribly exciting.

sblairc's picture
sblairc
Posts: 586
Joined: Feb 2014

I've been to a conference about the new uses of sterotactic radiation and it having a more durable effect than simply beyond the zapping. GOOD LUCK!!! I have heard great things about this emerging use of radation. 

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Been thinking of you and praying for you as well.  And here's to a Luke send-off into the wild blue.

Donna~

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I was counting on the abscopal effect but my body had other plans. Go get'm stomps. How's the hip?

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Itchy! Unless I cough or sneeze at which point the pain literally throws me across the room. Splendid scar tho'!

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

Yikes, Footstomper -- !

Hope when you do that, you are wearing your extra-padded lounge-wear.  That's some kind of LOCO-motion Surprised !

cheatinlil's picture
cheatinlil
Posts: 194
Joined: Jun 2014

I'm so sorry to hear about the new met :(  You have a great attitude.  My prayers are with you! I love the names you gave them...may the force be with you!  You are a great encouragement around here.  We need you! Keep posting!

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I aint planning on going nowhere!

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