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ER doctor said "might be cancer"....

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

I'm 35, and over the course of several months I have been dealing with constipation, bad menstrual pain, and diarrhea. 6 months ago I got an ultrasound, and they said the ovarian cyst looked normal.

Fast forward to the last month. I have bloating that won't go away. And it's not normal looking bloating....it looks like I'm 2 months pregnant. I'm not pregnant (I'm a lesbian). Also having weird intermittent pains on the right side and some nausea. In the last week I've had frequent urination, mostly at night. In the last 5 days I've either lost my appetite or get full quickly. I've been drained and overall just feeling weird. 

Those symptoms were enough for me to go into the ER where they did an ultrasound. The tech said I had several cysts. 30 minutes later the ER doctor came in and said "the radiologist and I looked over your scans and find a polyp on your endometrium that might be cancer. You need to call your doctor and schedule a biopsy sooner than later".

And that was it.

My bloodwork was normal.

She just came in and threw the Cancer word at me and left. I felt angry about that. Why didn't she just use the word "abnormal" knowing it was a Friday and I'd panic all weekend.

 

Anyways, I have another ultrasound scheduled with my Gyno on Tuesday. They want to see it for themselves.

 

I have other weird symptoms like random canker sores (which I never get) and my skin feels desensitized and I get hot and cold.

I would prefer to just think it's nothing but stress or a bad diet, but that darn doctor had to say what she said and now I'm worried. 

I mean, if my bloodwork was fine...I should be okay, right?

I don't know

I'm worried. 

Soup52's picture
Soup52
Posts: 904
Joined: Jan 2016

I would think that they might try a vaginal ultrasound. That's how mine started. I don't believe blood work always indicates with all kinds of cancer. Just get an appointment with your gynecologist ASAP and hopefully you will get some answers.  Know it's not easy, but try not to panic. I'm so sorry this had to be on a weekend. Waiting for answers is always hard. Keep us posted.

brissance's picture
brissance
Posts: 192
Joined: May 2016

Ahh CProm...  I am so sorry and I can assure us everyone of us has known the terror and all of us have had those interminable "waits" where even the clock ticking is an ominous foreboding sound..  ER docs are brutally honest and they will emphasize the worse case scenario..  I sometimes think they worry that they fixed the symptom and unless they shake you up with what MAY happen, you will not follow up.  And many don't.  

No one can tell you at this point if it is or "ain't" cancer.  But each of us can tell you that the diagnosis of cancer is the beginning of a fight that you can win.  You will freak out at first cause most believe cancer = death.  It doesn't.  It can be cured or it can be treated and become a disease you deal with not too unlike diabetes.  No it is not fun.  But is doable.  Go crazy for a while but you will be the general of the army that will be fighting this battle and you have to be focused, determined and positive.. (OK we all slip and hide and cry from time to time.. I have some great pity parties... that I think is normal.) But try to focus on even if it is cancer, it is not the end but a beginning of a war.  

Sorry you had to find us but God Bless.   You will find some fantastic ladies here that are knowledgeable and marvelous.  They mean the world to me.

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

Also, I just got back the rest of the bloodwork. There is no record of the CA-125 being done. My ALT is at 93 (a bit elevated) and my urine protein levels are a bit high at 30.

Does the CA-125 show under a different name?

They gave me both an outer ultrasound and transvaginal. That's how they found the cysts and cancerous looking polyp. 

 

Thanks for the kind words.

Waiting is very hard.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2841
Joined: Mar 2013

I believe the CA125 is a "request", it is not

an automatic, but I don't know how it shows on blood tests.

As one of the women mentioned, a endometrial biopsy (in the office) or a D&C (surgical procedure) are probably next to be ordered.  They will want to see what that polyp is and they will want to get it to see. 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Cpromiset, I am so sorry to hear what you are going through. It is so very hard to be anticipating the results. I had two outer ultrasounds and one transvaginal but they still thought mine was just huge fibroids. They only found the tumor when they did ran pathology on tissue removed during a D&C two months later. 

I hope that your results are clear and that you can move on quickly with treatments that can resolve your symptoms. Kim 

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

Does anyone know lab results well?

Charissa's picture
Charissa
Posts: 124
Joined: May 2016

Brissance said it beautiful! This group constantly encouraged me not to panic and to take it one day at a time. Stress is never good for our bodies. I'd highly doubt they could tell by the vaginal ultrasound alone, if it were cancer. I would think only a biopsy could determine that. In fact, my doctor diagnosed my 5.5 cm cyst as a polyp; when in reality it was grade 3 cancer. She let me go on vacation with a very aggressive cancer. In telling you this, if they could tell by simply a vaginal ultrasound, then I trust my OBGyn would have nailed it. Mind you, I had symptoms for over three months. I think, like Brissance, they probably want you to know the seriousness of not following up with your OBGyn.

From what I have read on these posts, most of us don't give the "C" word a foothold into our minds. We DO EVERYTHING not to let it rob us from the joy of each day. We have all come to understand that each day is precious and to make the most of them. So, as they would advise me, take a deep breath, don't panic, and take it one day at a time. As mentioned above, "C" doesn't mean a death sentence anymore. I'm not trying to discount your emotions, just reassure you that I was where you're at 9 weeks ago. This group is AMAZING and so supportive of each other. Keep us posted on the findings and please ask any questions - there are some very wise warrior women on here. They're my heros, as I march forward in this journey. I'm sending you a BIG virtual hug.

brissance's picture
brissance
Posts: 192
Joined: May 2016

CA 125 is debated as to it usefulness for Uterine Cancer.  My Oncologist does not even give me the test.  He says it was developed for ovarian and it is not a good source.  There are a number of doctors that follow his thinking and a number who do not.  Not having the test is not anything to be concerned about.  And no matter how hard you look at the test, remember all of them are indicators, you will not know until you have an ultra sound (it will show the possible growth) but even then it could be benign... so you are in a mega waiting game.. and IF there is a growth you will need to have it tested (biopsied) maybe DC etc so many maybes and possibles you will drive yourself crazy so as best you can try to focus on something else...  will yourself to get some mental rest.  

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

Thank you guys. I'm just so stressed.....but I am getting rest. I just hate waiting to wait!

I wish I could get my appetite back though. 

 

You guys have been really sweet. I'll let you guys know what happens. Thank you again for helping me calm down. 

 

All the love...

brissance's picture
brissance
Posts: 192
Joined: May 2016

Ohh dear, at my sickest, during nausea during diarrhea probably during death I am hungry and always have room for coffee.  Wish we could at least share your lack of appetite. 

Good luck lovie, we have all sat in your place and we do understand your anguish and don't diminish it, I promise.  Please please reach out to us even in private message if you need to.  Take care and do something crazy and fun.

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

Well there were several cysts on my ovaries too. I think they are going to check for Ovarian cancer too. The bloating and no hunger is a tell tale sign. 

janaes
Posts: 800
Joined: May 2016

I had an utrisound done.  Infact two of them.  Nothing was said to me about cancer until after a biopsy was taken.  In fact the nurse practitioner at my gynocoligist office, who did my biopsy, said just before doing the biopsy, "We are going to test for cancer.  Do i think you have cancer? No."  Of cource i ended up with cancer.  Thats just my experience.  I dont know if that helps

 

EZLiving66's picture
EZLiving66
Posts: 1452
Joined: Oct 2015

My CA125, with full blown Stage II, Grade 3 cancer was 10.  Can't rely on that for uterine cancer.  I'm so sorry you have to go through the weekend like this.  Waiting is the absolute pits!!!

Please let us know how this turns out.  We just had a woman on here who was diagnosed with cancer based on her biopsy but when she had surgery, there was no sign of it.  You just never know!!!  Try not to panic....easier said than done, I know.

Love,

Eldri

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

Thank you ladies! I think the oddest symptom I had was I've never wanted kids. Ever. Felt I'd be my mother and I was afraid of that. But then 2 weeks ago, I became baby obsessed. Found a donor, been reading all the books, and even started taking pre-natal vitamins. All without a single thought of cancer until 2 days ago. It's weird. I wonder if my body is trying to tell me something in desperation. 

 

Anyways. You women are so very sweet and I'll definitely let you guys know the results.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2841
Joined: Mar 2013

cpromiset, you are taking the right steps to go and see your gyn.  I think we all agree that waiting, for anything, is the hardest part.  Be sure to push your gyn for answers as to what is going on.  Your symptoms are saying something and you need answers.  Please let us know how the visit goes and that we are here for you.

Soup52's picture
Soup52
Posts: 904
Joined: Jan 2016

Next step I had after transvaginal ultrasound was a D and C. Some people have an in office biopsy instead. Keep strong during the waiting period. It's hard, but you can do it:)

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

My appointment is tomorrow. All I've been told today so far is this medical jargon:

 

"The endometrium is abnormally thickened, measuring 1.6 cm (16mm) in diameter. The endometrium is quite heterogeneous and contains some echogenic areas. The findings seem to be due to endometrial polyps or neoplasm.  Clinical correlation is recommended. 

 

       

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

I've been constipated or I have diarrhea. Either or. Today it's rust-colored diarrhea that's foul-smelling and greasy/sticky. 

pinky104
Posts: 574
Joined: Feb 2013

I had diarrhea for a few years.  I'd been told about 15 years before that I had irritable bowel disease, which I probably did have at the time.  However, I ended up with stage IVb UPSC.  My cancer was in my uterus, both ovaries, and the small intestine.  Must be the diarrhea came from the cancer in the small intestine.  I used to get it every morning before I went to work, and since I hated my job, irritable bowel disease made sense so I didn't worry about it too much.  I had an external ultrasound and a transvaginal one, which showed a large polyp.  My GYN assured me that it was very likely to be benign, and he said he'd only call me if there was something wrong.  A few days later, after a D&C, I got that call.  I'd previously had 6 cervical polyps and one uterine polyp that were all benign.  The last uterine one was just about 10 years before the malignant one was discovered.  I'd also had thickening of the endometrium at that time.  Do you have a vaginal discharge?  With my UPSC, I used to get a fishy smelling one.  I kept using Monistat, thinking I had a yeast infection.  Maybe the greasiness you're having is from extra mucus in your GI tract.  I sometimes had that. I'm three months shy of being 6 years out from the end of my chemotherapy. 

The fact that you didn't have kids is often a contributing factor to getting uterine cancer because the hormones that cause your menstrual cycle don't get a rest.  There are several women on this site, including me, who never got pregnant. 

You're never in this alone when you join this site.  There's always someone here to help you.  Feel free to ask questions anytime.  And good luck to you tomorrow. 

brissance's picture
brissance
Posts: 192
Joined: May 2016

I have been pretty lucky.  When my Doctor starts throwing around medical jargon I don't understand (find I am understanding more and more...  I need a life)  anyway when they go too medical on me, I stop them and tell them I just don't understand.  They actually translate into normal speak.  Or at least they have for me.  

Good luck.  Big day manana...  will have you in thoughts and prayers.

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

So the 2nd ultrasound by my gyno was a bit hopeful. They don't think the polyp itself is cancerous, but they do feel the need to do am endometrial biopsy/D and C. I have 16mm lining and it's patchy and thick and they said it's probably Andenomyosis, but are concerned about uterine cancer. My pre--op is monday. I don't know when the actual surgery will be. I'll let you guys know after the pathologist report is finalized.

brissance's picture
brissance
Posts: 192
Joined: May 2016

You are having a good run and I hope it continues.  Sending my prayers and wishes that you will clear this hurdle as well.  The team is on the sidelines cheering you on!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

cprom, good luck with the pre-op on Monday. Hopefully they can schedule the biopsy/D&C quickly after that. The cancer cells that came from my D&C is how my doctor found the tumor. I'm thankful that it was found at an early stage. Hopefully your pathology report will be clear and your doctors can focus on treating your symptoms.

On an unrelated subject, I've been meaning to ask if the artwork you use for your photo was drawn by you? It's really wonderful. My mother was a visual artist and my daughter inherited that talent from her (it jumped WAY over me). I've always been in awe of anyone with that type of talent. Kim

 

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

and I'm glad you came back and let us know what was going on.  I had been thinking about you.  Sending good thoughts and positive energy.

BabyCoach's picture
BabyCoach
Posts: 95
Joined: Mar 2016

I've been away from this site for a while and just tuned into your post. I also got the cancer news 5:00 on a Friday so it was a haunting weekend when I could "feel the metastisis all over my organs!"  I moved mountains and by the next Tuesday was meeting with a surgeon. Had the DiVinci in a few Weeks.  The WAITING was the most agonizing part.

let us hear your results. Whatever the outcome, your sisters are here waiting to respond. Holding you in my heart.

Mary Ann

brissance's picture
brissance
Posts: 192
Joined: May 2016

My comprehension is dull this morning so I am not real clear on your situation, I hope so much all is well.  Will keep you in my prayers for your scheduled surgery.  And I will also, hold you in my heart.  

Also waiting the results for Cpromiset..  how are you???

Patty

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

Had a hysteroscopy, a D and C, and polypectomy yesterday. The doctor never came by to talK to me or my spouse post-surgery. She hasn't even called today even though I left a message. Woke up crying and in serious pain once the anesthesia wore off yesterday and the nurse gave me pain meds. It's sort of patient abandonment. I don't know how it went, what she found....nothing. it really upset me. As if she didn't care. Still have to wait 3 more days for the pathology report.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

that your doctor didn't at least touch base with you or your spouse afterwards, even if just to say that the procedures went well, at a bare minimum.  That's very odd.  Here's hoping she does get back to you soon with the pathology results.  Waiting is the pits.

brissance's picture
brissance
Posts: 192
Joined: May 2016

So absolutely no contact w/ either you or your spouse post surgery.. nothing from anyone?  I have never ever heard of that...   I would inundate him w/ either calls or visits from my spouse until I got some info (how many lymph nodes, any problems etc).  Check at the hospital and see if there is a patients advocate and see what can be done.  I am sorry for you and the position you are in.  I have truly never heard of such a situation.  

 

cpromiset's picture
cpromiset
Posts: 11
Joined: Jul 2016

Her nurse finally called me back. Said there were no complications, but that several polyps were found and that we have to wait for the pathologist's report. Thanks for your concern, ladies!! Yall are very sweet.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Glad to hear that the nurses finally called you. Try not to worry too much about what is on the path report. Let your doctor do that. You need your energy to heal. It will all be okay.

Wishing you peace and strength, Kim

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1708
Joined: Jun 2015

Wow, that is really bad that your surgeon didn't at least touch base with your spouse post surgery. Unacceptable.

I sure hope you go to someone else if you do end up needing a hysterectomy!

Hope you are feeling better today and that you get good news on your report. Come back with any questions and please keep us updated.

Love and Hugs,

Cindi

janaes
Posts: 800
Joined: May 2016

I remember waiting for my pathology report the last day at the hospital.  They didnt want me to go home until a doctor read the report.  It was so hard to wait.  I was all alone that day and i had know idea when to tell my sister or mom to come pick me up. I wanted them to be there when the doctor came to talk to me and they just didnt know when the doctor would be there.

Hang tough.  You will find that you are so strong as you do this stuff.  I dont know you very well but i surtainly believe in you.

Soup52's picture
Soup52
Posts: 904
Joined: Jan 2016

My dr told me he would not be available the day after my surgery, but that his associates would be in. Unfortunately I was so out of it that I didn't ask the questions that I would have. Where I live we rarely get pathology reports any sooner than 2 weeks :( Waiting is so hard and as specially that your doc didn't speak with you after. I'm so sorry.

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