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Acupuncture Question

Barbaraek's picture
Barbaraek
Posts: 613
Joined: Aug 2015

For those of you who had acupuncture to reduce or alleviate dry mouth....how often did you have it and for how many sessions? We tried the ALTENS clinical study which is supposed to simulate acupuncture but it had no effect. We'd like to try the real deal now. Hopefully a year out we can still reap some benefit. I know several of you here on the board have had success with acupuncture.

Barbara

LiseA's picture
LiseA
Posts: 267
Joined: Jan 2016

I started off at twice per week, then by week four I upped to three times per week. I am certain it helped with dry mouth, pain and nausea because those things were affecting me and then before I could start on Meds, they all eased up.  I've seen many people going for acupuncture after their treatment. I wanted to see if it would help during treatment. 

MarineE5's picture
MarineE5
Posts: 940
Joined: Dec 2005

Barbara,

Many years ago, a survivor here mentioned that he had dry mouth for roughly 6 years and then slowly his saliva came back. This gave me hope as I was about 3 years out of treatment at the time with no saliva what so ever. I think it was around the 4 year mark that I tried accupuncture. The Doctor told me that if I didn't have saliva at the 6th appointment, I wouldn't have any. Long story made short, no saliva on appointment number 6 so I tried an extra one for good measure, no go. 

Another person I know went for accupuncture, but his Doctor hooked up some wires and sent a small amount of voltage thru the needles. After 2 sessions, he had saliva, did 6 to make sure and was able to stop carrying a water bottle everywhere. He says he only needs water near by at night

So, bottom line, just like recovery and how we deal with all of this, we all react differently and one size does not fit all. I hope it works for your husband.

My Best to Both of You

Barbaraek's picture
Barbaraek
Posts: 613
Joined: Aug 2015

we did do a clinical study with the ALTENS which is the electrical zap. Willing to try anything at this point since the xerostomia really affects quality of life . 

Barbara

MarineE5's picture
MarineE5
Posts: 940
Joined: Dec 2005

The one side effect I had and I think it funny now, but not then. The following days after the accupuncture, I would have a runny nose. I told the Doctor to move the needles over from where they were Frown as he was missing his mark......

Barbaraek's picture
Barbaraek
Posts: 613
Joined: Aug 2015

it's good we can laugh, isn't it ?!

Barbara

MarineE5's picture
MarineE5
Posts: 940
Joined: Dec 2005

Laughing keeps us from crying at times Laughing

My Best to Both of You

MrsBD's picture
MrsBD
Posts: 612
Joined: Nov 2014

Hi Barbara.

Acupuncture really helped me. I had weekly sessions during the 8 weeks of treatment and for 10 weeks afterward. My saliva flow would increase about five minutes after the needles were placed. My acupuncturist used a protocol developed by MD Anderson and went there for training. It's been 21 months since my radiation therapy ended and I have had almost normal salivary function the whole time. My throat gets a bit dry if I'm exercising, but a sip of water does the trick. I really hope your husband will have success.

Beth

Barbaraek's picture
Barbaraek
Posts: 613
Joined: Aug 2015

I think I have the protocol from MD Anderson in my research somewhere. If not I'm sure a few phone calls will help me access it.

thanks for the info. 

Barbara

fishmanpa's picture
fishmanpa
Posts: 1223
Joined: Jan 2013

I went once week for the first two months then every other week until the $$ ran tight (it was expensive and insurance didn't cover it. Ironically they would have covered chiropractic). Anyway... it was about the third month in when I realized I didn't need to drink as much while eating and it improved from there. I would say I'm probably close to 85-90% now (I even drool while I sleep! ~lol~)

Positive thoughts and prayers

"T"

 

CivilMatt's picture
CivilMatt
Posts: 4542
Joined: May 2012

“T”,

You lucky drool.

Matt

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