Another sucky day.

camul
camul Member Posts: 2,537

For two weeks now, I have had like a goose egg on my right forehead temple area, hurt down my face.  Started getting dizzy with it.  Yezterday, I couldn't not sleep and struggled to get up.  Woke up this morning, felt a little better until I got up. Called Dr. at 9a to try and get in, my right eye was really drooped and I got dizzy again.  

I knew it was  tumor on my scalp.  When he saw me at 2p.  He felt it with all the fluid, but with the drooping he flat out said it is most likely in my brain.  He sent me directly to hospital for brain scan.  He called on my way home from the test, it is a tumor in the bone that has grown inwards and invaded the right frontal lobe of my brain.

While in hi office my son asked him if surgery were possible, he it is depending if it is a lesion in the brain, how deep, and the location.  When I asked him on the phone, he said he just got the initial report and it is urgent that I see the rads on Co Monday  and she will need to determine if it is or if radiation wilwork.  He said it is not something I have to do today or tomorrow but the tumor on the bone is a new one that is agressive, did not even show up on the scan 6 months ago.  I asked if there were more that agressive and he said it would be an hour or so b4 he gets the full report and can see the scan.  He was mainly concerned with the area with the pain.

So not good at this point.  I tried the Ibrance and got so nauseated and the tumor markers still went up about 45 points while on it, so that was stopped and I am out of options...  unless they think radiation will help it.  

This cancer sucks.

Hugs,

Carol

 

Comments

  • cati0314
    cati0314 Member Posts: 203
    Cancer sucks!

    Hi Carol, I am so very sorry this is happening to you.  Prayers that this can handled.  You've been through so much and are a very tough and brave lady.  Please let us know the results.  I know it's hard but try to have a restful weekend.  

  • camul
    camul Member Posts: 2,537
    thanks

    I am better today than yesterday.  Thanks for the prayers, I really do appreciate all that are sent in my name.  I think the. That has helped me as much as anything.

    Hugs.

  • Teach76
    Teach76 Member Posts: 351 Member
    Prayers and hugs

    hi, Carol

         Just sending prayers and hugs.  Stay strong - you always follow dr.'s orders; glad you have a team you can trust.

  • LisR
    LisR Member Posts: 11
    More Prayers and Hugs

    I am so sorry you are going through so much.  Cancer in any form does suck and only those of us who have had to face that diagnosis (sometimes a number of times) truly understand.  We understand.  Even though we don't know each other, we try to lend strength through support, love, prayers, and virtual hugs.  Sometimes that's all we have to offer, but I believe that's sometimes just what is needed.  Please keep writing so we can learn from each other too.  Wishing you the very best and sending some prayers for your medical team too... to give them the wisdom of how to beat this thing and get you back to normal as much and as soon as possible.  

  • Jean 0609
    Jean 0609 Member Posts: 2,462
    Dear Carol,

    Enough is enough.  Sending positive thoughts, and prayers your way my dear friend.

     

    xoxo,

    Jean

     

  • camul
    camul Member Posts: 2,537
    Thanks Jean

    I know this is about it, hoping for at lest rads, but won't know til after I see the rad onco if that is even possible, he said the tumor was invading the right frontal lobe and it depends on how extensive, and seemed positive in his office of possibly just surgically removing it if it was a single lesion, but sure was not optimistic  when I asked him when he called....   so it is a wait and see.  

    Damn this is old.  

  • tufi000
    tufi000 Member Posts: 745 Member
    Ahhhhh

    Oh Ninja!  The rads on my brain did not destroy any tissue but stopped growth. It was after the surgical removal of what they were able to get.  Hopefully there will be a similar successful path for you.  Even so the process can initially make you believe things are worse when it is really your brain resettling and recovering so keep that in mind (pun intended!)

    love you

    Sherry

  • Pixie Dust
    Pixie Dust Member Posts: 424 Member
    You have been through so much

    Carol, you have been such an inspirition to all of us here at CSN. Do not give up now. It is time for all of us to throw in our prayers for a prayer chain for you. I believe things are going to go the right way when your ONC and you discuss your next steps for a new beginning for you.   Throwing Pixie Dust your way and hope it puts a glow on your beautiful face.    Hugs,  Pixie Dust

  • Clementine_P
    Clementine_P Member Posts: 518 Member
    edited July 2016 #10
    Hugs

    Carol,

    I wish this wasn't happening to you.  Cancer sucks and you calling it a "sucky day" demonstrates your strengh of character.  I hope that this can be handled.  I wish you continued strength.

    Best,
    Clementine

  • aysemari
    aysemari Member Posts: 1,596 Member
    Thinking of you

     Thinking of you today and I'm in total awe of how hard fight. I'm sorry to hear about even more complications I hate to see you in pain love you very much and sending you gentle hugs

  • button2
    button2 Member Posts: 421
    SO Sorry

    Joining the other ladies in sending you hugs...you are an amazing lady and I hope you feel better soon. Love, Anna

  • aisling8
    aisling8 Member Posts: 1,627 Member
    Very sucky, indeed

    Oh, Carol, I'm so sorry to read this. It's horrible and nasty and not at all what I want for you. You're in my prayers and I'm sending every good thought I have your way. 

    xo

    Victoria

  • lintx
    lintx Member Posts: 697
    Hi Carol

    You won't hear one of us disagree with the fact that this is sucky.  Sherry's post gives good info. Read it again because if anyone can do this, you can!!  Prayers in your name from my heart.  Linda

  • twnkltoz
    twnkltoz Member Posts: 169 Member
    Sending you so many hugs and

    Sending you so many hugs and prayers!

  • Puffin2014
    Puffin2014 Member Posts: 531 Member
    edited July 2016 #16
    hugs and prayers

    So very sorry about this latest development, sending hugs and prayers your way.

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    edited July 2016 #17
    Well this SUCKS Big Time Miss Carol

    I am just so sorry - stupid cancer!!

    all I can do is send you my love, admiration and hope radiatoon therapy will be offere.  

    Damn stupid cancer.

    ❤️Vicki Sam 

  • Apaugh
    Apaugh Member Posts: 850 Member
    Oh my!

    Prayers going up for you.