My story - surprise

Francyn
Francyn Member Posts: 10

Four weeks ago my left leg and ankle swelled. I went to doc  and she thought it might be a blood clot so they did an ultrasound. They noticed the lymph nodes were swollen so I went for a  CT scan. That showed the same. Lymph nodes swollen and clustered in the groin on the left side. I met with the surgeon who thought it was lymphoma. Tuesday I had a lymph node removed and today I received the biopsy notice.  It is not lymphoma, it is metastatic melanoma. They don't know where the melanoma so I have an MRI, a pet scan, and a sigmoidoscopy and exam scheduled for Monday Tuesday and Wednesday. All I know is the diagnosis is not a good but I don't  much more including the prognosis, the treatment or anything. I appreciate your comments and your wealth of now I can experience. I'll take those prayers, too.

Comments

  • Francyn
    Francyn Member Posts: 10
    edited June 2016 #2
    Next steps

    Update - MRI - clear, PET - cancer confined to lymph nodes in groin and abdoment, BRAF - negative. Great candidate for immunotheraphy that starts today!

  • SolaceSanDiego
    SolaceSanDiego Member Posts: 4
    Prayers from San Diego

    I'm praying for you!

    Kathleen

  • ketchus2
    ketchus2 Member Posts: 4
    Next steps

    i am glad to hear the cancer is confined to the lymph nodes for now, but be prepared for a rough ride. It sounds discouraging but don't let it be. They will probably remove the lymph nodes, plus more, then follow up with more treatment. Do everything to expedite everything you can.

    I'm praying for you.