Recurrence is another form of cancer

AmyMAllen
AmyMAllen Member Posts: 10
in Uterine/Endometrial Cancer #1

Hi all, 

I sincerely hope each of you beat this disease. After almost 3 years, I am still free from endometrial cancer. I posted on here about a mass coming up in one of my robotic incision sites. At first, no one knew what it was. By the time I hat a CT scan, it was presenting as an abscess.  The path came back showing cutaneous t-cell lymphoma. Further testing shows it is Alk-Negative anaplastic large cell lymphoma. Pet scan shows that lymph nodes are good. Waiting on do, bone marrow biopsy results, and have to have an MRI to check my liver. I will do chemo this time. 

I want to encourage each of you to pay close attention to your incision sites, even years after surgery. My case is extremely rare, but I did blow off the tumor at first as being scar tissue. I'm not sure how big of a fight I am up against, but I'm putting my faith in God and I'm going to fight this with everything I've got. 

 

Stay strong!

Amy

Comments

  • brissance
    brissance Member Posts: 192
    #2
    Prayers

    My husband had non hodgkins lymphoma.  Can be aggressive but responded excellently to treatment (CHOP chemo and radiation).  He had a 19 cm tumor in his abodomen.  That was 1996..  He has been cancer free since.  You are strong and God is good.  My prayers are with you.

     

  • Unknown
    Unknown
    #3
    Here's more hope for your cancer

    My son was 15 (1985) when he was diagnosed with large cell non hodgkins lymphoma.  First treated with radiation, it came back months later, was treated with chemo.  He is now 46 (YES) and has been in remission since he was 16.  Just think how much more they have learned since then about treating cancer.  I hope your treatments will be successful too.  Hugs Nancy

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    #4
    Amy, I'm glad you posted and

    Amy, I'm glad you posted and I hope your treatments work for you with minimal side effects.

    Thanks for sharing your story and please keep us posted on your progress!

    Love and Hugs,

    Cindi

  • Kvdyson
    Kvdyson Member Posts: 789
    edited May 2016 #5
    Amy, thank you

    Amy, thank you for this important information to continue to check the incision site for changes over the years.

    Mine is one of those huge vertical "fish-gut" scars that starts just below my rib cage and goes down to my pelvic bone so I will be sure to keep a close watch on it. 

    Good luck to you in your test results and treatments. It sounds like there is real hope for full remission from lymphoma. Hopefully that will be your experience.

    Wishing you strength and peace, Kim

     

  • AmyMAllen
    AmyMAllen Member Posts: 10
    #6
    brissance said:

    Prayers

    My husband had non hodgkins lymphoma.  Can be aggressive but responded excellently to treatment (CHOP chemo and radiation).  He had a 19 cm tumor in his abodomen.  That was 1996..  He has been cancer free since.  You are strong and God is good.  My prayers are with you.

     

    Thank you so much!  Wishing

    Thank you so much!  Wishing you and your husband many more years of great health!

  • AmyMAllen
    AmyMAllen Member Posts: 10
    edited May 2016 #7
    unknown said:

    Here's more hope for your cancer

    My son was 15 (1985) when he was diagnosed with large cell non hodgkins lymphoma.  First treated with radiation, it came back months later, was treated with chemo.  He is now 46 (YES) and has been in remission since he was 16.  Just think how much more they have learned since then about treating cancer.  I hope your treatments will be successful too.  Hugs Nancy

    Thank you so much, Nancy. 

    Thank you so much, Nancy.  There is not much out there on the Alk - one.  Hearing about your son really makes me feel better. 

  • AmyMAllen
    AmyMAllen Member Posts: 10
    edited May 2016 #8
    TeddyandBears_Mom said:

    Amy, I'm glad you posted and

    Amy, I'm glad you posted and I hope your treatments work for you with minimal side effects.

    Thanks for sharing your story and please keep us posted on your progress!

    Love and Hugs,

    Cindi

    Thank you !

    Thank you !

  • AmyMAllen
    AmyMAllen Member Posts: 10
    #9
    Kvdyson said:

    Amy, thank you

    Amy, thank you for this important information to continue to check the incision site for changes over the years.

    Mine is one of those huge vertical "fish-gut" scars that starts just below my rib cage and goes down to my pelvic bone so I will be sure to keep a close watch on it. 

    Good luck to you in your test results and treatments. It sounds like there is real hope for full remission from lymphoma. Hopefully that will be your experience.

    Wishing you strength and peace, Kim

     

    Thanks!

    Thanks!

  • BabyCoach
    BabyCoach Member Posts: 95
    #10
    BIG

    THANK YOU for the warning. Good luck to you. 

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