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10 days later!

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

Hi everyone,

Its been ten days now and its getting better everyday.  I do have pains not even close to the surgery site.  Like my lower back is killing me from sitting.  The recliner is my best friend right now, but my body doesnt like it so much.  I did use ice.  That def helped me not just on surgery site but also because the tape they used tore my skin off and I had major boo boos!!!  Still have really heavy scabs and that just from the tape!  I know everyone is different but can anyone tell me how long they took the pain pills?  I have vicodin. Trying to only use at night so I can sleep on the darn uncomfortable chair.  Advil and tylenol during the day as needed.  I see Dr next Tuesday, so I guesss he will tell me about the surgery and explain path report to me and what going to happen from here.. Hope everyone is doing ok.

 

 

 

 

icemantoo's picture
icemantoo
Posts: 3227
Joined: Jan 2010

Daisy,

 

Congradulations on making it thru Hell week, none the worse for ware. Where do you want us to send the beanie.

 

Icemantoo

APny's picture
APny
Posts: 1949
Joined: Mar 2014

Glad to hear you're getting better. Ouch about that tape ripping off your skin. Did they remove it? Mine was left on for quite a while until it started peeling off on its own and then removed. I had an open partial and took the pain killers they gave me (oxy with Tylenol) for about 10 days after coming home. First few days after surgery and coming home I took one every four hours, then one every six hours, then one just before bed so I didn't wake up from pain turning over or something. After about 10 days I just used Tylenol as needed which wasn't really often. Wishing you a speedy recovery!

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I got through two bottles of Vicodin slowly diminishing the amount. We're all different.

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

Apny.   The skin just ripped off with the tape the used to cover lap insiscion cuts.  Dr took off before I left the hospital. I also had a partial. 

Still can't lay flat pulls too much yet. Trying to only take Vicodin when advil isn't cutting it. 

 

APny's picture
APny
Posts: 1949
Joined: Mar 2014

That's so strange that they didn't leave it on for a while. I couldn't lay flat either. I got a wedge pillow and put others on top of it. And a long body pillow for the side where the incision was. It really helped. Maybe you could try that. As for the pills, they're there to help you. Dr. told me it's better to take them and be able to walk a lot then to suffer heroically without them and not take a step because of the pain. So it's not bad to use the when the other stuff isn't cutting it.

Jan4you's picture
Jan4you
Posts: 1320
Joined: Oct 2013

Well 10 days away from all this..whew!

When I had steri strips, I was told to just let them fall off, NOT to pull them off. hmm..

Sorry that happened. Glad you were using ice, you can continue with ice too.

I stopped Opiates after about 5 days, mostly because I wore that lumbar wrap and put

the dry ice inside which really cut down my need for pain pills while supporting those sore abdomen.

HOWEVER, every one is different. thanks for giving us an update!

Sending you healing vibes,

Jan

donna_lee's picture
donna_lee
Posts: 900
Joined: Feb 2009

Glad you have a recliner chair.  I used mine for about a week post discharge from hospital.  But still had to have a booster step (upside down soda bottle crate with a sheet of wood over it) so I could get onto the bed, since the abs didn't work too well in lifting my legs.  More pillows, too.

Check with Dr on this, but I would suggest you stop the Advil, as it is a NSAID-Non steroidal anti inflamatory drug, which is processed in the kidneys as opposed to the liver.  Stick to acetaminaphen, which is processed in the liver.

Determine if it is PAIN or ache and the location.  Remember that your abdominal area was pumped full of gas to enable them to work in there and that puts pressure on other organs as they are pushed out of the way.  It can make your entire abdominal/pelvic area very uncomfortable for a while.  And your small and large intestines are just coming back after an extened "trip out" on drugs.  They are probably saying, "what is that sh** doing here?, I just had a break from all that and was relaxing."  And yeah, the opiates can be constipating.  The sooner you wean yourself off them, the better.

Too late to give consolation about the removal of the tape.  If it was steritape, it is supposed to wear off.  Dr. goofed.  If it was a surgical tape, maybe he thought you had a reaction to the adhesive (latex or ??) and didn't want to see you have any further reaction.  If it is still open or oozing, check with the dr.'s office.  Maybe just a light gauze pad held on with paper medical grade tape will kep it ooze from sticking to your clothes.

Notice everyone has all these suggestions to make you go to the store and shop.  Body pillows, lumbar wraps, first aid supplies, etc.  Too bad we aren't closer to run errands for you.   And you can barely walk to the bathroom.  Go figure!

The one thing you have is tincture of time, which is always available and doesn't take much to administer.  Hang in There.  It does get better.

Hugs to ya,

donna_lee

 

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

and glad you're on the mend.  Sorry to hear about the tape thing.  As many others have said, I too had steri strips & was told to let them fall off when ready.....no toucha da tape.  Haha  

eveyone's pain tolerance is different & since I don't care for some of the side effects of the meds I only took a pain pill once after getting home. I was in the hospital 2 days & was on minimal doses there. I truly didn't experience a lot of pain, discomfort yes, weakness....YES.  Hated feeling so weak. 

Overall, sounds like the worst is behind you.  Yay!!

Donna~

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

I had started to run a fever and when I called the on call dr he said rotate tylenol with advil.  I even said to him I didn't think I could take advil.  He said it was ok.  Thanks for letting me know that.  I will ask the surgeon on Tuesday at my 2 week visit.

 Is that normal for us now, no advil?? please let me know about that.

I had a partial lap and the tape was not steri strips, I believe it was glued and then a 3x3 clear tape patch was applied over it.  It was suppose to be some kind of barrier for infection.  Thats what dr pulled off along with a lot of skin.  Still have heavy scabs. ugh

Today only took 1/2 vicodin and 2 advil which I now know not to take.  Thanks for that info Donna.

 

 

 

 

 

 

 

 

icemantoo's picture
icemantoo
Posts: 3227
Joined: Jan 2010

Donna,

 

Advil is not kidney friendly and you are not supposed to use it. That being said, my Urologist and Nephrologist have oked it for short term use on several occasions. Sometimes a GP will just say no. Speak with your  doctor treating your kidney in this regard.

 

 

Icemantoo

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

A lot of times the fevers post-op are related to not drinking enough, make sure your intake is adequate.

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

Thanks guys. Uping the water intake and no advil. 

lcsvb's picture
lcsvb
Posts: 40
Joined: Jan 2016

I was instructed to go with Advil when weaned off the Vicodin. I had the partial 5 weeks ago and had Advil on the OK list upon discharge. I think if you never had kidney trouble, they allow it. I questioned it and they said they preferred Advil over Tylenol because the painkillers had Tylenol in them and concern was if alternating them then there may be too much Tylenol taken. Also, Daisybud and I have both kidneys so maybe less risky than those of you with one? Anyhow, so glad you are feling better! My Dermabond glue peeled off today and my "body peircing holes" are nicely healed. I still have the occasional stabs of abdominal pangs reminding me that I am still healing. Went to SeaWorld last weekend and today but pushed a wheelchair and used it when I felt the pangs. I needed the time outside away from the recliner! It will be nice to get out of the house to go to the Dr Kim! 

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

Yeah cant wait to get out of the house!  I am going to ask about advil and if I can resume my 80mg asprin and a of course about the pathology report.  I haven't talked to him about it yet.  I am little worried about it.

 

corey50
Posts: 111
Joined: Feb 2009

I don't blame you. I had a radical nephrectomy over 7 years ago. I took vicodin for about a week after surgery. I normally would never take anything that strong, but this is not one of those times to "tough it out". Take the meds,even if its just tylenol, on a regular basis so you're not waiting until you are in extreme pain and then it takes longer to get relief.. You should be able to reduce the dosage as time goes on. I only took the vicodin for a week because I had an allergic reaction to the surgical tape they used and I ended up with hives and welts completely covering my torso. At first they thought it might be the vicodin so told me to stop. That reaction was almost as bad as the pain from surgery. The pain and soreness will get better every day and then all of a sudden it will start to hurt again, that too is normal, everything is healing on the inside too. Just don't overdo it (nows the time to pawn off the housework and laundry LOL) also no driving for at least 6 weeks. and always check with your doc or the nurse on any concerns. I know I hated calling thinking I was a bother, but this your life and too bad if you're bothering them. As far as hurting all over, that does happen too. We are turned and twisted on the operating table and all that leads to soreness after. I would recommend a little walk everyday, just around your yard if you can. It helps clear the head besides keeping the blood flowing. I live near the beach and had my husband take me down there only a couple of days after I came home, as you said, just to get out of the house. Tylenol is absorbed thru the liver while Advil and motrin are filtered thru the kidneys. So those of us with kidney issues, or only one or half of one, should stick to Tylenol, but definitely check with your doctor on this too. Also, I had a small infection right at my surgery site on the scar and had to take antibiotics, please keep an eye on this wound you have from the tapes and let your doc know if you think its getting infected. Don't worry too much about the path report (easier said than done, right) it is what is and you'll find out soon enough, so try to put it out of your head until you meet with your doc. I wish you good health as you continue on your recovery. 

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

I will be going out for a walk around the yard tomorrow..  The sores from the allergic reaction to tape are healing up and I go to dr on Tuesday.  Have questions to ask and discuss the path report.  I didn't need to take anything at all today so far.  We will see how the night goes. :]

Ree_Maryland's picture
Ree_Maryland
Posts: 158
Joined: May 2014

Wonderful you made it through the first week . now should be getting better. i took perks for 2 days than went off the pain meds. my daughter who helped take care of me .insitisting I take the pills . the sight where i had the neph at itched for several mths . been almost 2 yrs now since my sugery ,i go back April 5 for chest xray and visit the dr. 

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

Ree, good luck with your upcoming dr visit. 

medic1971's picture
medic1971
Posts: 190
Joined: Sep 2015

Welcome back,

Happy to hear you are back and doing okay.  I am sorry to hear about the skin tear with the tape, you might list that as an allergy.  Some people are allergic to the adhesive used in some tapes that will actually irritate, and in some cases inflame, the skin making it more prone to tearing.

I think I used the narcotic pain meds at night for about 2 or maybe even 3 weeks post-op.  I had my surgery in Oct and my abdominal muscles are still sore.  Feels like that I did a hundred crunches the day before.

Sending good vibes and prayers to you for your visit on Tuesday!

 

Jason

corey50
Posts: 111
Joined: Feb 2009

Sorry guys, posted twice by accident. 

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

I notice how sore my stomach muscles are too.  Also, my mid back hurts like I have a side stitch from running.  I tend to hurt all over but I guess that from not moving around as much.  Thats next on my list as soon as I know its ok.  Dr said nothing much for 4 weeks after surgery.  He said that delayed bleeding happens in partials if not careful.

APny's picture
APny
Posts: 1949
Joined: Mar 2014

What I did right after surgery is slowly walk around my house for about 5 - 6 minutes every hour. I couldn't do it outside as there was snow and ice. Then I gradually worked up to 8 minutes, then 10, etc. Finally I went back on the treadmill after about 1 month and a half for 15 - 20 minutes in the morning and in the afternoon. But I wasn't running just walking faster than up till then.

Jan4you's picture
Jan4you
Posts: 1320
Joined: Oct 2013

I thought you could not take NSAIDS (advil/ibroprofin) if you had only one kidney left.

So yes it would be helpful to take an anti-inflammatory like Advil. ASK you MD

And I am still bothered by his ripping off that tape. Hmm.. Ask him about that too.

Let us know how you are doing. Walking is helpful.

Your back issues could be from laying flat from surgery? You could ask your surgeonif they moved you into some other position, but I thought we're all flat on surgical table.

Again, healing..and soon you'll start to feel better. ICE your sore abdomen and I wouldwear that lumbar wrap to support those sore muscles.

Hugs, Jan

donna_lee's picture
donna_lee
Posts: 900
Joined: Feb 2009

I can't remember the term, but I was on a tiltable table, at about 45-50 degrees with my left side down, which allowed organs to drop by gravity and not crowd the kidney and later the liver areas.

The "don't drive" command is at the request of your auto insurance carriers.  They really don't care to have a post surgical patient, weak and rummy, and on pain meds, going out and having a crash.  It makes you almost always at fault and the carrier having to pay out a chunk of money.  And the docs don't want to see you back in ER with further damage or complications.  I guess it becomes a judgement issue.

On my first surgery, I couldn't even walk without someone to by my pillar of strenth.  On the second one, we spent the 1st night out with our daughter, but  were still a 5 hour drive from home;  my husband drove the first 3 hours and I drove the last 2 and was fine, but wasn't taking pain pills.

So glad to hear you are progressing satisfactorily.  Keep up the good work.

Hugs, donna_lee

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

I also had terrible pain in my upper back and around right shoulder, it was killing me for a week if I wanted to sit still for half an hour. I thought it might be because of positioning during surgery, the fun part was I had almost no pain near by incision! It got better day by day. but almost six months post surgery I had moderate pain in my chest, again right side, I had bone scan, CT scan but nothing showed up. It took almost 9 months but suddenly recovered. Neph is a major surgery and it might have some side effects as long as 2 years (My oncologist told me) so don't worry but the most accurate suggestion is what our own Dr. tells us

Forough

Jan4you's picture
Jan4you
Posts: 1320
Joined: Oct 2013

Forough, I wonder if that early pain you had in your upper back and shoulder was that trapped gas? That is a typical place it likes to sit and its horrible! I thought worse than incisional pain. And you can take GasX products as its not in the intestines. I would move my arm around 360 degrees for days to get it to move.

Hope your other pain improves.

Jan

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