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When will my hair start to grow again??

EZLiving66's picture
EZLiving66
Posts: 1452
Joined: Oct 2015

Happy Saturday to all you wonderful ladies (and Red Corvette)!!

It will be seven weeks on Tuesday since my last chemo and my hair is STILL not growing back.  I look like Uncle Fester!!  I never lost all my eyelashes or eyebrows but they're a lot thinner than before.  All I have on my head are some little tufts of white which I never lost - although they pull out very easily.  No hair any other place either!

I do see two little sprouts in the front and I've been babying them but I don't think they'll ever be enough for a "comb over." Wink  My husband says he'll still love me even if I'm bald but I would hate to have to wear a wig in the summer.  Winter is ok because it's like wearing a nice, warm hat but.....I can't imagine sweating in a wig!  I do have some fake bangs so maybe I'll just wear those under one of my many scarves if it never comes back.

I have been seeing some major progress on the port site wound.  The Wound Care clinic prescribed some stuff I soak the "shoe string" in before I pack the wound.  It stings a little but the wound seems to be getting smaller every day and it doesn't hurt so much at night.  I go back in on Tuesday for them to evaluate and measure it to make sure this therapy is working.  I wish I would have gone there right away back in November!!

Our youngest daughter is driving home from college today (three hours) so we can switch vehicles for the week.  Hers is having some problems and our mechanic at work is going to take a look at it next week.  I'm so excited!  We're taking her out for lunch before she drives back.  I went to Sam's yesterday - first time I've been shopping in many months.  It was tiring but I feel like I'm getting my strength back in my legs, especially the left one.  By the time I walked out of there, the leg was kind of dragging again and I was in bed by 9 p.m. BUT...at least I got out and about!!!  Today I feel ready to take on the world (even though I'm bald).

Love,

Eldri

debrajo's picture
debrajo
Posts: 1095
Joined: Sep 2011

So glad you got out and about!  It will get some better.  I had a good hip and one with ostephroina(sp) in it.  After chemo and radiation the good one had osteophina and the other full blown ostephrosis.  I take D3 and Calsuim twice a day.  So far, nothing has broke, but if I walk more than a mile, I better have hycodone with me or I wont make it back!

Double Whammy, Suzanne, I believe is the one who's hair never grew back.  She could probably tell you more about this.  Mine started growing back within one week of finishing chemo.  I lost all brows, lashes, head hair, and everywhere else.  Only the head hair has come back.  no lashes bother me the most!  I can d

raw the brows on pretty good, but my hand shakes too much to put artifical lashes on, so I go around looking like a perplexed Hoot-Owl

1  

don't give up, you had a rough time with the meds...your system took a beating and needs to reboot!  Best, Debra

EZLiving66's picture
EZLiving66
Posts: 1452
Joined: Oct 2015

LOL, "a perplexed Hoot-Owl?"  I had to laugh when I read that but I understand how hard it would be to put on artificial lashes - my right hand really shakes too besides having numb fingers.  God only knows what I'd look like if I tried that!!!  It's hard enough to put on mascara to the few lashes I have left without poking out my eyes! Tongue Out

Love,

Eldri

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Glad you felt like getting out.  Even a little outing is good for you.  If you made it through sam's you are doing great.  On a good day I have to sit dowN a couple of times to make it through Walmart 

Each time I got hair back, it started to grow a little at about 3-4 weeks.  Now I am getting a little fuz in the back and I am still on Taxol/Carbo, so I don't know what that is about.  It Kind of worries me.  It did grow back while I was on Doxil, but Doxil doesn't take your hair and Taxol/Cabo does. ???

Hugs and prayers, Lou Ann

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

lost all of my head hair when I was on Carbo/Taxol, though I did lose most of it.  And what was left did continue to grow during chemo, though very, VERY slowly.  No hair anywhere else, though.

My head hair has really begun growing now at 6 weeks post chemo.  Eldri, your body had such a hard time with chemo I wouldn't be surprised if it takes a bit longer for yours to begin to come back in force.

Chris

EZLiving66's picture
EZLiving66
Posts: 1452
Joined: Oct 2015

I wonder if any of those hair-growing topical treatments would help?  I have to go see my regular doctor at the end of next month.  If nothing is growing by then maybe she would prescribe something....in the meantime, I heard that goose grease grows hair (I just made that up). Cool

Love,

Eldri

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

and now I don't remember where...  someone was recommending Nioxin Scalp Therapy, though there was also a discussion about how now that it was being manufactured in Mexico it was no longer the same formulation.  I actually discovered a small old sample in my medicine cabinet that I am trying out on the top of my head...  my hair is thinner there anyway.  Someone also recommended some Bosley product.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1707
Joined: Jun 2015

I'm still bald everywhere with no signs of growing hair. It will be 5 weeks on Monday since my last chemo. Frown

Cucu me
Posts: 214
Joined: Apr 2015

on Monday....

My hair started to grow after the fifth week post chemo.

Eldri you will be fine, takes time.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Before my first go around with hair loss I asked at a local beauty school if there was anything that would help me keep my hair and they recomended Nioxin.  I tried it, It was expensive, and for me it did nothing.  Lou Ann

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

Eldri I guess it's like we always say, you are a statistic of one! As you are already hearing, we all heal and recover at our own rate.  It is so wonderful that your port site has finally started to heal! And you are getting your strength back! After all you've been through, give your hair a break- its way to early to give up on it. So happy that you are on the road to recovery! Love and hope, Sandy

Red Corvette
Posts: 114
Joined: Jan 2016

Eldri, you're doing great! You're strong, your recovering, your husband loves you, and we love you too! Going today with my wife to get her new wig we ordered last week styled and picked up. Have to say we're kind of excited about it. Guess this crazy disease makes you appreciate the oddest things. Happy Sunday to all the great ladies here today!

Red

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1707
Joined: Jun 2015

Our friend Anne - AWK, said the same thing when it came time for me to shave my head!!!

At least bald reminds us that we are killing the bad cells.  I am ready to stop looking like ET now. lol

Red - you and your wife will find a lot of new appreciations along this journey. There are some good things that do come with the bad.

I'm glad you are there for your wife. My husband's love and support have been so appreciated during this journey.

Love and Hugs,

Cindi

Hopeful162's picture
Hopeful162
Posts: 82
Joined: Sep 2014

l had three rounds of carbo/taxol and lost all my hair after one session, but I really didn't mind other than having a cold head, as it was winter, and especially at night. I simply wore a hat to bed! My hair grew back about three or four months after the last chemo and came in salt and pepper gray and very curly, which was very different from the light to dark brown hair I started with (aided by hair color for some years). Now I am content to go natural, but I still look twice when I see myself in the mirror. I am one year NED this month with UPSC and hope to remain that way!

EZLiving66's picture
EZLiving66
Posts: 1452
Joined: Oct 2015

Did you only have three rounds of chemo in total or did you have three rounds, radiation and then three more rounds?  I too have UPSC but had to quit chemo after three rounds because of the side effects.

Love,

Eldri

Hopeful162's picture
Hopeful162
Posts: 82
Joined: Sep 2014

Yes, only three rounds of carbo/taxol and no radiation to treat my UPSC! Before surgery my oncologist said that six rounds of chemo would be a given for my UPSC biopsy diagnosis, but that was changed when nothing was found except for a good sized polyp within my uterus. Clean pelvic wash, omentum, ovaries, tubes and 13 lymph nodes meant stage 1, but still grade 3. Therefore the tumor board felt that three rounds would be sufficient as they did not feel comfortable with no treatment seeing that UPSC has such a poor prognosis if it should be found elsewhere later. I did have some neuropathy in my fingers and toes, but that has resolved completely now.

EZLiving66's picture
EZLiving66
Posts: 1452
Joined: Oct 2015

I have Stage II - it had spread slightly into my cervix (even though I had a normal PAP two weeks before).  My doctor recommended six rounds of Taxotere and Carboplatin.  My CT scans both came back clean for any other tumors.  I only was able to do three rounds.  I had minimal side effects from the first two but the third one was horrible.  I don't know if I could have lived through a fourth.  Your story makes me hopeful that three rounds was enough to take care of any stray UPSC cells floating around!

Please keep in touch!

Love,

Eldri

molimoli
Posts: 514
Joined: Aug 2014

ones.

You can all "rock" bald, but first you have to develope an attitude sometimes called tude. Once you get the right tude on ,bald becomes a piece of cake.

You all had me laughing and thats a good thing. Now find a 'tude' thats right for you, don't forget the bright lipstick ,we can't have 'tude ' with pale lips.  pale lips and bald head  shows a lack of tude and spells 'thou art depressed',now that's not a good thing.

I am loving you all nuff nuff.  Moli

ConnieSW
Posts: 1537
Joined: Jun 2012

i vote we adopt that as our motto, Moli.  Maybe someone can write a ditty and we will have a theme song.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Yeah, 'tude!!!

 

molimoli
Posts: 514
Joined: Aug 2014

LOL, and I suppose we do have some great singers on this board.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Dangly sparkly earrings help with the 'tude, too!

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1707
Joined: Jun 2015

Not sure my Tude will ever include going out in public bald. LOL... I do like my bangs with the scarves. As you know, wigs are out for me!

I have found using eye liner and brow liner helps me feel like I have some definition to my face.  I tried to wear the false eye lashes and eye brows but they are not for me. Looks and feels heavy on my face. Initially, I thought I would be able to wear them.  We learn what works best by trial and error I guess.

I think if I end up with limited (or no) eyebrows and lashes, I'll get the permanent liners for both. My PA at the cancer center got her eyes lined and loves it. She said it hurts though - maybe some numbing stuff will help?!

Love and Hugs,

Cindi

 

molimoli
Posts: 514
Joined: Aug 2014

I too hate wigs and all head coverings for that matter. I wear my hair almost bald  on back and side leaving a little length on top where I often display my tude, sometimes carrot top, navyblue, mahogany red ,any color my tude adopts for the month or two.sometimes from my friends I get a thumb up, thumbs up ,a wide smile , laughter followed by shaking of the head and big ole eyes rolling then sometimes they just look with that she's back to life, God help us look.

Life is just a one time thing. Do it in many ways.

Yes Cindi it's amazing the  many ways out there to enhance appearance, That's great you already have a plan B.  you won't need it though.

Hugs, Moli

molimoli
Posts: 514
Joined: Aug 2014

That's what I am talking about Chris, tude with style taken to another level.I am just hoping you' all can imagine the level of freedom and individuality  tude brings with it,just imagine .Moli.

ncg007
Posts: 136
Joined: Nov 2015

Has anyone tried Jamaican Black Castor Oil for hair growth?  The massage therapist at hospital recommend I start applying it at bedtime on my head and eyebrows after I complete my final chemo treatmen; I've got one more to go.  It needs to be 100% cold processed and can be purchased at health food or Sally's Beauty.  Regular castor oil was recommended for lashes.  I have not done any research yet.

Double Whammy's picture
Double Whammy
Posts: 2831
Joined: Jun 2010

My hairloss is specific to Taxotere that I had for breast cancer.  I think most of you receive Taxol.  Not the case with Taxol (which I could have had but was not presented with that option).  I don't think you have a thing to worry about with Taxol.  You've been pretty sick with lots of other things going on.  Maybe you're just a "slow responder".  Good luck.

Suzanne

EZLiving66's picture
EZLiving66
Posts: 1452
Joined: Oct 2015

I too was treated with Taxotere for UPSC.  I see there is a class action suit against the company that makes it.

http://www.coloradolaw.net/html/taxotere-chemo.html

Love,

Eldri

Double Whammy's picture
Double Whammy
Posts: 2831
Joined: Jun 2010

It's all about failure to inform, basically.  I'm hoping you're just a slow responder, Eldri, they kept saying that to me, but it's been 5 years now . . .   It is really too soon to tell with you.   If in a reasonable amount of time (6 months or so) you don't see improvment, PM me.   The FDA has already been involved in this battle with Sanofi and have now required that they list this possibility in their patient information.  Finally, someone is listening to us!

Suzanne

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

on Amazon, and it has a lot of positive reviews there.  Not extravagantly priced, either.

Chris

ConnieSW
Posts: 1537
Joined: Jun 2012

how did things go yesterday, Eldri?

EZLiving66's picture
EZLiving66
Posts: 1452
Joined: Oct 2015

The wound went from 7 to 5 (in whatever measurement they do) so that was good although they thought there was a little tunnel under the healed part.  They packed the wound and the tunnel (that hurt) and showed me how to do it.  They don't want the skin to close if it's still open underneath.  If the tunnel is still there next week they're going to give me a collagen injection (sounds painful, but maybe not?).  All-in-all, I see progress so I am hopeful that after three months, this thing WILL heal!! 

Love,

Eldri

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Happy that that stupid wound is finally starting to heal. That must be a relief after all this time.  Hugs and prayers, Lou Ann

Donswife48
Posts: 327
Joined: Nov 2015

I'm kind of knowledgeable about wound care because my husband had several through the years he was a paraplegic.  If that was the measurement in only a weeks time, that sounds good.  Yes, they want it to heal from the inside out w/o tunneling, but it seems to be turning towards the good.  I am really sorry your oncologist didn't act on this sooner.  What was he thinking?  Rest and enjoy your freedom from chemo, I have 3 more to go and I'm hating the thought of THREE MORE TO GO!  Also, I just got my order from etsy about the pre-tied scarves.  I ordered 2 from 2 different sellers and they are both beautiful.   Maybe you would like to look at those until your hair starts to grow out.  Hugs Nancy

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Wow, after three months you must be ecstatic that there is some sort of improvement.  Here's hoping that tunnel disappears by next week and you don't have to go through another procedure.

Chris

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