is it linked?

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Bubbs21
Bubbs21 Member Posts: 47
edited December 2015 in Kidney Cancer #1

My RCC was found in the spring 2012 and removed Nov 2012.  At the time of diagnosis I was suffering from chronic intractable migraine. Migraines were better for a brief period but has been chronic and daily for over a year. I also have daily flank pain and pain in my spine.  Could this be signs of a recurrence? Despite much trial and error and drugs nothing has helped the migraines.

 

Thoughts appreciated.

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  • Allochka
    Allochka Member Posts: 1,062 Member
    #2
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    Hi,
    are you having regular

    Hi,

    are you having regular follow-ups for your kidney? If yes, it is very improbable that flank and spine pains are due to RCC.

    Don't have personal experience with migraines, but my former colleague had them, nothing helped her as well...

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #3
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    Allochka said:

    Hi,
    are you having regular

    Hi,

    are you having regular follow-ups for your kidney? If yes, it is very improbable that flank and spine pains are due to RCC.

    Don't have personal experience with migraines, but my former colleague had them, nothing helped her as well...

    I DOUBT IT

    But these are things to be checked out with a Doctor.

     

     

    Icemantoo

  • foroughsh
    foroughsh Member Posts: 779 Member
    #4
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    I haven't heard or read about

    I haven't heard or read about any relations between migraine and rcc mets! Have you had brain c.t to make sure it's migraine? If so, I don't think there is a connection. But flank pain and spinal pain are something we should be careful about. Are you on regular checkups? Ultrasound could show if the recurrence has happened and the tomur is larger than .8 and abdominal and pelvis c.t is the best tool we have to detect early mets. Bone scan is also useful if there is any possible rcc met in the spinal. There are hundred of reasons which could cause that pain so you don't need to panick but as a rcc survivor it's best to let your medical team, know all your symptoms.

    Forough

     

  • Bubbs21
    Bubbs21 Member Posts: 47
    #5
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    foroughsh said:

    I haven't heard or read about

    I haven't heard or read about any relations between migraine and rcc mets! Have you had brain c.t to make sure it's migraine? If so, I don't think there is a connection. But flank pain and spinal pain are something we should be careful about. Are you on regular checkups? Ultrasound could show if the recurrence has happened and the tomur is larger than .8 and abdominal and pelvis c.t is the best tool we have to detect early mets. Bone scan is also useful if there is any possible rcc met in the spinal. There are hundred of reasons which could cause that pain so you don't need to panick but as a rcc survivor it's best to let your medical team, know all your symptoms.

    Forough

     

    Thanks everyone. I had a six

    Thanks everyone. I had a six month follow-up in the spring 2013 and then annually. Testing includes chest x-ray,  ultrasound and blood test for kidney function. I was told he was going to order a full body CT for this year but the requisitions are the same as usual.  As it is difficult to get in to see my urologist, I have contacted my gp for an appointment.  Better safe then sorry.

  • foroughsh
    foroughsh Member Posts: 779 Member
    #6
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    Bubbs21 said:

    Thanks everyone. I had a six

    Thanks everyone. I had a six month follow-up in the spring 2013 and then annually. Testing includes chest x-ray,  ultrasound and blood test for kidney function. I was told he was going to order a full body CT for this year but the requisitions are the same as usual.  As it is difficult to get in to see my urologist, I have contacted my gp for an appointment.  Better safe then sorry.

    Yes, better safe than sorry,

    Yes, better safe than sorry, it's good to have a meeting and make sure everything is fine, So you can enjoy your holiday with peace Plz leat us know the result

    Forough

     

  • foxhd
    foxhd Member Posts: 3,181 Member
    #7
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    foroughsh said:

    Yes, better safe than sorry,

    Yes, better safe than sorry, it's good to have a meeting and make sure everything is fine, So you can enjoy your holiday with peace Plz leat us know the result

    Forough

     

    Have you seen your Tailor?

    Need I ask if your underwear are too small?

    Iceman, you missed your chance.

  • foxhd
    foxhd Member Posts: 3,181 Member
    #8
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    foxhd said:

    Have you seen your Tailor?

    Need I ask if your underwear are too small?

    Iceman, you missed your chance.

    seriously

    Get your scans and mri's. Last year I was in enormous pain with negative tests. Finally after 11 months the tumors in my spinal canal finally showed up on mri. They were radiated and I've been pain free since february. Unfortunately the damage was done and my recovery has been pretty long. But I'm almost there.

  • foroughsh
    foroughsh Member Posts: 779 Member
    #9
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    foxhd said:

    seriously

    Get your scans and mri's. Last year I was in enormous pain with negative tests. Finally after 11 months the tumors in my spinal canal finally showed up on mri. They were radiated and I've been pain free since february. Unfortunately the damage was done and my recovery has been pretty long. But I'm almost there.

    Fox, did you have bone scan

    Fox, did you have bone scan too when you had pain with negative MRI result? Oh, my goodness, I didn't know pain can come sooner than the technology can detect the reason of the pain!

  • skathleen
    skathleen Member Posts: 9
    #10
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    foxhd said:

    Have you seen your Tailor?

    Need I ask if your underwear are too small?

    Iceman, you missed your chance.

    Good job foxhd!

    Good job foxhd!

  • foxhd
    foxhd Member Posts: 3,181 Member
    #11
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    skathleen said:

    Good job foxhd!

    Good job foxhd!

    bone scan

    No. I didn't have a bone scan then.  My weakness and pain exactly mimicced(sp?) a blown disc and a brachial plexus injury. But I did have mri's and ct scans, and nerve conduction studies. Monthly. It was classic "Parsonage-Turner syndrome." I had been doing a lot of house painting, blamed the activity, and then the expectations were that it would improve on it's own. The tumors were in the spinal canal. Sneaky buggers. I should have seen my tailor. Steroids, radiation, votrient and oxy's kept me alive. Barely.

    So, the message is to see your tailor.  I mean pay close attention to your pain and tests Don't stop looking.

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #12
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    foxhd said:

    Have you seen your Tailor?

    Need I ask if your underwear are too small?

    Iceman, you missed your chance.

    I don't think so. Bubbs is a girl.

     

     

     

    Icemantoo

  • foxhd
    foxhd Member Posts: 3,181 Member
    #13
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    icemantoo said:

    I don't think so. Bubbs is a girl.

     

     

     

    Icemantoo

    So,

    So I'm an idiot. Sometimes it is necessary to remind everyone who I am. But pretty funny anyway.

    I apologize Bubbs. It's just that I've been here a long time now. I know how new people are so concerned. We have all been there. Sometimes often. An old friend here named Texas Wedge referred to it as "Gallows humor."

    I hope you were not insulted. Fox.                                                                    I should be checking everyones profile, huh? Ice?

  • Bubbs21
    Bubbs21 Member Posts: 47
    #14
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    foxhd said:

    So,

    So I'm an idiot. Sometimes it is necessary to remind everyone who I am. But pretty funny anyway.

    I apologize Bubbs. It's just that I've been here a long time now. I know how new people are so concerned. We have all been there. Sometimes often. An old friend here named Texas Wedge referred to it as "Gallows humor."

    I hope you were not insulted. Fox.                                                                    I should be checking everyones profile, huh? Ice?

    Thanks Fox and gang,
    I

    Thanks Fox and gang,

    I appreciate the humour.  My grandmother was my 'baba" and my mom is 'baba' to our kids. My husband started calling me little bubbs when we had kids and now that both baba's have passed he calls me bubbs.  So I cherish the name and all it represents. 

     

    No worries.  The humour and advice make this a great network full of caring people.

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