Prevention regiment after high-grade dysplasia.

royaleblue
royaleblue Member Posts: 1
in Colorectal Cancer #1

Hi all,

 

I've had Crohn's disease for 16 years now, and after a routine colonoscopy last revealed probable high-grade dysplasia, my GI guy recomended a total colonectomy with out the option of a j pouch (due to the likelihood of Crohns manifesting in the pouch). I couldn't bear the idea of that, so I elected against it. Naturally I'm looking at any supplements or lifestyle changes that y'all can recommend. So far I've reduced my meat consumption, and I supplement with a mushroom extract, fiber therapy, a daily blueberry/raspberry smoothie, and tumeric supplement. What else would you do if you were in my situation? 

Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #2
    Hi

    I have no experience with Crohn's disease, but feel certain that your doctor could recommend a dietition who could help you with your intake.

     

    As a result of rectal cancer I have a colostomy.  Others on here have an iliostomy.  If you need to consider either in the future, I recommend you read:

    The Ostomy Book: Living Comfortably with Colostomies, Ileostomies, and Urostomies

    Barbara Dorr Mullen and Kerry Anne McGinn RN BSN OCN

     

    It certainly helped me.

     

    Marie who loves kitties

     

  • lp1964
    lp1964 Member Posts: 1,239 Member
    #3
    Lovekitties said:

    Hi

    I have no experience with Crohn's disease, but feel certain that your doctor could recommend a dietition who could help you with your intake.

     

    As a result of rectal cancer I have a colostomy.  Others on here have an iliostomy.  If you need to consider either in the future, I recommend you read:

    The Ostomy Book: Living Comfortably with Colostomies, Ileostomies, and Urostomies

    Barbara Dorr Mullen and Kerry Anne McGinn RN BSN OCN

     

    It certainly helped me.

     

    Marie who loves kitties

     

    Dear Friend,

    Either way is a hard decision: living with your existing condition and possible worsening or living without the entire large intestine are no good option. That's a personal decision you have to make with the guidance of your doctors. 

    I have been living with a colostomy for 2 years now and I do take all kinds of supplements, some that you mentioned yourself. The only thing I could recommend is the Yerba Mate tea, just make sure it is note smoked. 

    I wish you good luck,

    Laz

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #4
    D3, LEF

    I'd definitely check my 25-hydroxy vitamin D levels, so many here have had disasterously low levels that required substantial vitamin D3 (and K2) supplementation, like 5000-10,000 iu per day or even more.  Again, guided by before and after blood tests for vitamin D levels.

    We used the the Life Extension Foundation protocols for preventing colon cancer recurrence, as a starting point for supplement formulation.  Should you change your mind about surgery,  we also used the LEF.org recommendations on surgery.

     

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