New to the site

Welcome to the forum

Sorry you have joined our little (, sadly, not so little) club,

FOLFOX can knock the stuffing out of you, and this is what you are experiencing. I tried my best to stay active, but there came a time when I was so tired, I could barely move off of the couch. 

The only thing I can suggest is, when you are tired, try to do a little something. I would go out and try and walk around the block. I lost my balance during chemo, so I had a walker with a seat. When I couldn't go any further, I would sit down until I could move again. This worked for a while, at least.

I love your avatar picture, by the way.

I hope you come and visit often. We really are a great group of folks; patients and caregivers, and can help you though this journey.

Sue - Trubrit 

Dear Friend,

I agree with the advise above. Get out and walk. I never drank coffee before, but during chemo I started and it helped me with the energy.

Hang in there. 

Laz

nkeelty said:

Thank you all!

I can honestly say this is not a group I would have wanted to join. However, am so glad it is here to find things out and give my family and friends a break from this disease. I have been lucky so far, I have had no nausea, my hair has thinned but is still there, I have some energy but tire easily, I have no mouth sores, and the only loss of feeling I have is in my left pinky finger. I had a CT scan for naval drainage from the surgery and it showed the tumors shrinking. That is not what they were looking for but I am glad they did look. I wanted to hug my surgeon when she told me that! I think the worst thing that has happened was when they said there was no cure and I was on palliative care. That messed up my day and my kids day as well.

I love all the support here and will be back often. Especially during the “dark” days when I want to give up.

Thank you all for the support!

Norah

Naval Drainage!

For 6 weeks after the surgery I have had this clear yellow liquid draining from my naval. They had to go back a close it up. It has healed almost immediatel. Well there goes another body part lol. 

Laz

Welcome

Welcome to the boards, and I am sorry to see you here.  Despite that, this is the place to be. (My profile has more details of how I went through this)

I am (was/is) Stage IIIC and serious Lymph nodes.  

Not sure if you have all the details, or I am misreading, but 2 rounds is not equal to four treatments from everything I know (and having gone through the chemo thingie, just closing out couple of months back.)  It could be nomenclature, but if you had four treatments (hooked up, pump thing) that is four treatments in my mind.  

So you are either 2 out of 12 or 4 out of 12.   (Again it may just be a different way or counting?)

In terms of energy, just live as close to normal as possible and work around the tired.. There is a down part when disconnect (tired) depending on timing and steroids provivded.  My crash was usually two days after disconnect.  And for most out of the 12 sessions, could do okay.  The other times (later than 2 or 4 in either event) was when it hit.  Days 2-3 after disconnect was the worst.  And when it was worst, slept almost 2 days straight.  Otherwise, some good naps to do things (for maybe 4-6 hours after the nap was over) was fine.

If you have not had surgery, the scans and the rest are not accurate(ish).  And stage means #%^&$.  Either you get chemo or not when the surgey is done.  (And when in there it is when it is known. My scans indicated possible late Stage II or early Stage III from the first doctor I went to)

If it is pre-surgery treatments, then your story many be different.  

Hang in there,...