14 months post treatment

Goyca
Goyca Member Posts: 220
in Head and Neck Cancer #1

Hello all dear H&N friends,

Been away for a while trying to get all life issues sorted and back on track. Missed u all.

I am 14 months post treatment! Had my Pet scan this May, and it was NED :) though I'm having some pain in my forehead and the doctor asked for an MRI on Christmas. So till then, will keep u posted.

 

Time passes fast. I found a job finally, the salary isn't amazing but the culture is and I love it.

After Meegs passed away, a friend that I met her here on the forum, I was so down, and the need to do something was burning. Remember guys I told you that I created a facebook page named HOPE as a support for cancer patients in my country. So I decided to start an NGO and start effectively helping. now I'm recruiting partners for my NGO that will help young adult cancer patients. In my country NGO needs 7 board members and internal policy and lot of legal papers... , so it will take some time but I'm doing it no matter what. For Meegs for me and for everyone I met here. You guys were such a rock for me.

 

wish you all pain free day.

sending u hugs.

goyca.

Comments

  • wmc
    wmc Member Posts: 1,804
    #2
    Goyca glad you stopped by.

    I know many have been thinking about you. It was hard when Megs passed and a few others. I think that is what hits me the hardeat as so many become like family to me in a way. Maybe because everyone has been there and fought the beast and even all the caregivers have been on that road with us as well. Glad to hear you are doing good. Please stay in touch.

    Bill

  • MrsBD
    MrsBD Member Posts: 615 Member
    #3
    Something Positive

    Thank you for doing something positive to help others. I'm glad you found a job and are healthy too. It's good news like yours that inspires hope in the newcomers. 

  • KB56
    KB56 Member Posts: 318 Member
    #4
    14 months

    Goyca, it's good to hear from you and I'm glad you're doing well.   It seems like just yesterday you were in the midst of it all.    

     

    i love the name of your FB page!  Hope, that's what you try and give people that are just diagnosed.   Good luck with the site.  

    Great news on the NED!  Here's to many more

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #5
    Good to hear

    You are making progress and moving forward.

    Just keep us posted!

  • gypsy1955
    gypsy1955 Member Posts: 1
    #6
    Noellesmom said:

    Good to hear

    You are making progress and moving forward.

    Just keep us posted!

    14 months

    I am new on here and really not sure how to get in the chat rooms for head and neck cancer. Was wanting to know where to go to chat with those that are having a hard time swallowing after radiation and chemo .It's been 15 months since I've finished treatments an I still have alot of swelling and can't swallow anything. I also have a trache and peg tube

     

     

  • wmc
    wmc Member Posts: 1,804
    #7
    gypsy1955 said:

    14 months

    I am new on here and really not sure how to get in the chat rooms for head and neck cancer. Was wanting to know where to go to chat with those that are having a hard time swallowing after radiation and chemo .It's been 15 months since I've finished treatments an I still have alot of swelling and can't swallow anything. I also have a trache and peg tube

     

     

    Welcome to the H&N Group

    Thechat rooms are on the left side of the page but I don't use them so someone else will help. You would be better to just start a new post hear and just say Hi and what and where your cancer is and everyone will try to answer and help. Radiation can cause lots of side effects and make it very hard to swallow. The swelling might be lymph trying to fine a path it they removed and glands or radiated them. My cancer was just above my vocal cords in what is called supreglottic. I only had surgery and no chemo or radiation. They took my larynx and 86 glands so I do understand the trach as I am a total neck breather and have a stoma. Trully sorry you can't swallow, what has your doctor say?

    I will add you to my prayer list and keep you in my thoughts.

    Bill

  • Barbaraek
    Barbaraek Member Posts: 626
    #8
    gypsy1955 said:

    14 months

    I am new on here and really not sure how to get in the chat rooms for head and neck cancer. Was wanting to know where to go to chat with those that are having a hard time swallowing after radiation and chemo .It's been 15 months since I've finished treatments an I still have alot of swelling and can't swallow anything. I also have a trache and peg tube

     

     

    Chat room

    The chat room is a general one...all members on the CSN may participate. When I went on for the first time there were two caregivers, a breast cancer survivor, and a head and neck person in the "room". For specific questions it might be better to post it in the head and neck forum. We are pretty speedy with replies and it will be more specific to your need, I think.

     

    barbara

  • Goyca
    Goyca Member Posts: 220
    #9
    Thank u all for ur ongoing

    Thank u all for ur ongoing support .

     

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