Welcome to the new Cancer Survivors Network website! Existing members can click HERE to review the changes and new features on CSN.

Great news

Allochka
Allochka Member Posts: 974

Hello,

I have some good news to share today :-) 

As I've already posted, my partner's cancer was detected early because of his Hep C diagnosis. He had to have abdominal ultrasound to check liver due to Hep C diagnosed couple of weeks prior to it. liver was Ok, but kidney cancer was detected.

So we've dealt with cancer first, and then last May, afetr birth of our Alice, he had begun Hep C treatment. It was finished recently, and today we've received post treatment blood test results - virus is undetectable !!!

It doesn't mean that he is cured yet, he has to repeat the test in 3 months. if negative in 3 months - then he is cured. But being negative now gives a great hope, because not everyone responds to treatment.

we are extremely glad. Of course, Hep C can't be compared to cancer in terms of seriousness of the disease, but still it is very unpleasant thing to have. Chronic hep C can lead to liver cirrhosis and even, in rare occasions, to liver cancer. So this thing had to go out of his system :-) 

But anyway, we are parting with Hep as friends - after all, this diagnosis led to kidney cancer discovery and thus saved my partner's life.

So thank you, Hep C, but still we hope to never see you again :-)

Comments

  • Jan4you
    Jan4you Member Posts: 1,330 **
    WHEW, Glad to know he's in

    WHEW, Glad to know he's in remission/free of Hep C! Didn't know treatment was that advanced.

    thanks for sharing this GOOD NEWS!!

    Warmly, Jan

  • Shecka1121
    Shecka1121 Member Posts: 113
    Jan4you said:

    WHEW, Glad to know he's in

    WHEW, Glad to know he's in remission/free of Hep C! Didn't know treatment was that advanced.

    thanks for sharing this GOOD NEWS!!

    Warmly, Jan

    This calls for a celebration.

    This calls for a celebration.  Wonderful news for you and just another move in the right direction to a LONG and healthy life.  Enjoy your beautiful family.

  • Allochka
    Allochka Member Posts: 974

    This calls for a celebration.

    This calls for a celebration.  Wonderful news for you and just another move in the right direction to a LONG and healthy life.  Enjoy your beautiful family.

    Thank you! :-)
    Jan,

    Thank you! :-)

    Jan, unfortunately standard, more or less affordable treatment is not that advanced :-( it lasts for a year, has terrible side effects (crazier than chemotherapy, as I've heard), and gives only 50-60% cure rate. We were very lucky to be able to afford newer therapy, which lasts only 3 months, minimal side effects and very high cure rates. It is sad that this cool medicine is not yet available for every Hep C patient due to its price. And insurance in our country doesn't cover it . But I'm sure that in several years it will be much cheaper and thus avbl for all who need it. It is just the matter of time, und luckily most Hep C patients without cirrhosis can wait a bit... Hep is not cancer, when every month counts.

  • suzymcdo
    suzymcdo Member Posts: 20
    Such great news for both of

    Such great news for both of you!

  • foroughsh
    foroughsh Member Posts: 779
    Virus is undetectable! What a

    Virus is undetectable! What a lovely report.  congratulations for good respond to the treatment

    Forough

     

  • I am alive
    I am alive Member Posts: 315
    so happy for you!!!

    Now you two can enjoy baby Alice in all her glory! 

  • Jojo61
    Jojo61 Member Posts: 1,309
    What fabulous news! So happy

    What fabulous news! So happy to hear this!

    We all celebrate alongside you, Allochka!

    Hugs

    Jojo

  • Max57
    Max57 Member Posts: 175 **
    Chan Chan

    Let's have a drink great news it's a battle any round we win it counts

  • Denisedh
    Denisedh Member Posts: 28
    Great news

    I know other people who have had similar great results from that treatment.  Very happy for you!

  • mrou50
    mrou50 Member Posts: 389
    Good news

    Congratulations time to relax a little and enjoy life again.

     

    Mark

  • Allochka
    Allochka Member Posts: 974
    mrou50 said:

    Good news

    Congratulations time to relax a little and enjoy life again.

     

    Mark

    Thank you all! Yes, time for

    Thank you all! Yes, time for small celebration, and I'll be waiting for you all to report more celebration causes - your NEDs or stable conditions! :-)

  • APny
    APny Member Posts: 1,995
    Allochka said:

    Thank you all! Yes, time for

    Thank you all! Yes, time for small celebration, and I'll be waiting for you all to report more celebration causes - your NEDs or stable conditions! :-)

    Wonderful news. Now go

    Wonderful news. Now go celebrate!

  • foxhd
    foxhd Member Posts: 3,181
    APny said:

    Wonderful news. Now go

    Wonderful news. Now go celebrate!

    Life is good!!

    Good for you! Share the Karma!!

  • todd121
    todd121 Member Posts: 1,448
    Yay - Great news!

    One of my good friends just went through this. His insurance paid for it. I guess it depends on your insurance.

    There's a debate about whether everyone should automatically get this expensive treatment. I read about it recently in the newspaper. From the article I read, many people have it for years and it never causes a problem, so it might make sense to delay the expensive treatment until it starts to cause a problem. (I'm paraphrasing and probably clobbering the original idea to the point of maybe being wrong?).

    But I think it's awesome they have this treatment. My sister suffers from this. She has no insurance and can't afford the treatment and lives in a state that refused to expand medicaid (I think there are 17 of them?).

    Todd

  • Allochka
    Allochka Member Posts: 974
    todd121 said:

    Yay - Great news!

    One of my good friends just went through this. His insurance paid for it. I guess it depends on your insurance.

    There's a debate about whether everyone should automatically get this expensive treatment. I read about it recently in the newspaper. From the article I read, many people have it for years and it never causes a problem, so it might make sense to delay the expensive treatment until it starts to cause a problem. (I'm paraphrasing and probably clobbering the original idea to the point of maybe being wrong?).

    But I think it's awesome they have this treatment. My sister suffers from this. She has no insurance and can't afford the treatment and lives in a state that refused to expand medicaid (I think there are 17 of them?).

    Todd

    In my country  (Latvia)

    In my country  (Latvia) insurance is rather cheap, but due to this coversmostly basic treatments only. Something more expensive like oncological treatments or basic therapies for Hep C or multiple sclerosis, for example, are covered by the state (from 75% to 100 %). So we have completely different healthcare system here. It works fine when you have no insurance or need smth basic. For more advanced things you have to pay out of your pocket.

    you are absolutsly right, for some people it is never a Problem. They have no or minor symptoms and never develop cirrhosis. My partner most probably had it more than for 10 years, judging by thr condition of his liver. He had some unpleasant symptoms - constant fatigue, insomnia, joint pains from time to time. And we never knew why, just thought of being overworked, or stressed out. It all affected his quality of life, but, being a very positive person, he never complained. He also had liver biopsy, and after results his hepathologist recommended to start treatment in the near future.

    first we also thought about standard therapy compensated by the state, but its length and side effects and effectivity are far from great. Plus the additional "load" - kidney cancer, starting a new job and having newborn at home :-). So we opted for advanced therapy version, and luckily at that time thr manufacturer offered one month of treatment free of charge to slaughter their competitors :-)

    Sorry to hear about your sister.  These drugs will become cheaper and cheaper, as it usually happens, and most Hep C patients can wait for some years with no problems. I hope she has no symptoms and very slow progression of disease, and I'm sure in some 5 years new therapies will be rather affordable. More and more manufacturers are working on their versions, so ee 'll benefit from competition. Good health to your sister and NED to you next week!

  • danbren2
    danbren2 Member Posts: 311
    Allochka said:

    In my country  (Latvia)

    In my country  (Latvia) insurance is rather cheap, but due to this coversmostly basic treatments only. Something more expensive like oncological treatments or basic therapies for Hep C or multiple sclerosis, for example, are covered by the state (from 75% to 100 %). So we have completely different healthcare system here. It works fine when you have no insurance or need smth basic. For more advanced things you have to pay out of your pocket.

    you are absolutsly right, for some people it is never a Problem. They have no or minor symptoms and never develop cirrhosis. My partner most probably had it more than for 10 years, judging by thr condition of his liver. He had some unpleasant symptoms - constant fatigue, insomnia, joint pains from time to time. And we never knew why, just thought of being overworked, or stressed out. It all affected his quality of life, but, being a very positive person, he never complained. He also had liver biopsy, and after results his hepathologist recommended to start treatment in the near future.

    first we also thought about standard therapy compensated by the state, but its length and side effects and effectivity are far from great. Plus the additional "load" - kidney cancer, starting a new job and having newborn at home :-). So we opted for advanced therapy version, and luckily at that time thr manufacturer offered one month of treatment free of charge to slaughter their competitors :-)

    Sorry to hear about your sister.  These drugs will become cheaper and cheaper, as it usually happens, and most Hep C patients can wait for some years with no problems. I hope she has no symptoms and very slow progression of disease, and I'm sure in some 5 years new therapies will be rather affordable. More and more manufacturers are working on their versions, so ee 'll benefit from competition. Good health to your sister and NED to you next week!

    Wonderful News!

    So glad to hear that, what a great boost for your family!

                                         Prayers of good health for us all!

                                          Brenda