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Great news

Allochka's picture
Allochka
Posts: 870
Joined: Nov 2014

Hello,

I have some good news to share today :-) 

As I've already posted, my partner's cancer was detected early because of his Hep C diagnosis. He had to have abdominal ultrasound to check liver due to Hep C diagnosed couple of weeks prior to it. liver was Ok, but kidney cancer was detected.

So we've dealt with cancer first, and then last May, afetr birth of our Alice, he had begun Hep C treatment. It was finished recently, and today we've received post treatment blood test results - virus is undetectable !!!

It doesn't mean that he is cured yet, he has to repeat the test in 3 months. if negative in 3 months - then he is cured. But being negative now gives a great hope, because not everyone responds to treatment.

we are extremely glad. Of course, Hep C can't be compared to cancer in terms of seriousness of the disease, but still it is very unpleasant thing to have. Chronic hep C can lead to liver cirrhosis and even, in rare occasions, to liver cancer. So this thing had to go out of his system :-) 

But anyway, we are parting with Hep as friends - after all, this diagnosis led to kidney cancer discovery and thus saved my partner's life.

So thank you, Hep C, but still we hope to never see you again :-)

Jan4you's picture
Jan4you
Posts: 1320
Joined: Oct 2013

WHEW, Glad to know he's in remission/free of Hep C! Didn't know treatment was that advanced.

thanks for sharing this GOOD NEWS!!

Warmly, Jan

Shecka1121
Posts: 114
Joined: Apr 2015

This calls for a celebration.  Wonderful news for you and just another move in the right direction to a LONG and healthy life.  Enjoy your beautiful family.

Allochka's picture
Allochka
Posts: 870
Joined: Nov 2014

Thank you! :-)

Jan, unfortunately standard, more or less affordable treatment is not that advanced :-( it lasts for a year, has terrible side effects (crazier than chemotherapy, as I've heard), and gives only 50-60% cure rate. We were very lucky to be able to afford newer therapy, which lasts only 3 months, minimal side effects and very high cure rates. It is sad that this cool medicine is not yet available for every Hep C patient due to its price. And insurance in our country doesn't cover it . But I'm sure that in several years it will be much cheaper and thus avbl for all who need it. It is just the matter of time, und luckily most Hep C patients without cirrhosis can wait a bit... Hep is not cancer, when every month counts.

suzymcdo
Posts: 20
Joined: Sep 2015

Such great news for both of you!

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Virus is undetectable! What a lovely report.  congratulations for good respond to the treatment

Forough

 

I am alive
Posts: 316
Joined: Jul 2012

Now you two can enjoy baby Alice in all her glory! 

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

What fabulous news! So happy to hear this!

We all celebrate alongside you, Allochka!

Hugs

Jojo

Max57's picture
Max57
Posts: 160
Joined: Mar 2015

Let's have a drink great news it's a battle any round we win it counts

Denisedh's picture
Denisedh
Posts: 28
Joined: Aug 2015

I know other people who have had similar great results from that treatment.  Very happy for you!

mrou50
Posts: 389
Joined: Mar 2013

Congratulations time to relax a little and enjoy life again.

 

Mark

Allochka's picture
Allochka
Posts: 870
Joined: Nov 2014

Thank you all! Yes, time for small celebration, and I'll be waiting for you all to report more celebration causes - your NEDs or stable conditions! :-)

APny's picture
APny
Posts: 1948
Joined: Mar 2014

Wonderful news. Now go celebrate!

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Good for you! Share the Karma!!

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

One of my good friends just went through this. His insurance paid for it. I guess it depends on your insurance.

There's a debate about whether everyone should automatically get this expensive treatment. I read about it recently in the newspaper. From the article I read, many people have it for years and it never causes a problem, so it might make sense to delay the expensive treatment until it starts to cause a problem. (I'm paraphrasing and probably clobbering the original idea to the point of maybe being wrong?).

But I think it's awesome they have this treatment. My sister suffers from this. She has no insurance and can't afford the treatment and lives in a state that refused to expand medicaid (I think there are 17 of them?).

Todd

Allochka's picture
Allochka
Posts: 870
Joined: Nov 2014

In my country  (Latvia) insurance is rather cheap, but due to this coversmostly basic treatments only. Something more expensive like oncological treatments or basic therapies for Hep C or multiple sclerosis, for example, are covered by the state (from 75% to 100 %). So we have completely different healthcare system here. It works fine when you have no insurance or need smth basic. For more advanced things you have to pay out of your pocket.

you are absolutsly right, for some people it is never a Problem. They have no or minor symptoms and never develop cirrhosis. My partner most probably had it more than for 10 years, judging by thr condition of his liver. He had some unpleasant symptoms - constant fatigue, insomnia, joint pains from time to time. And we never knew why, just thought of being overworked, or stressed out. It all affected his quality of life, but, being a very positive person, he never complained. He also had liver biopsy, and after results his hepathologist recommended to start treatment in the near future.

first we also thought about standard therapy compensated by the state, but its length and side effects and effectivity are far from great. Plus the additional "load" - kidney cancer, starting a new job and having newborn at home :-). So we opted for advanced therapy version, and luckily at that time thr manufacturer offered one month of treatment free of charge to slaughter their competitors :-)

Sorry to hear about your sister.  These drugs will become cheaper and cheaper, as it usually happens, and most Hep C patients can wait for some years with no problems. I hope she has no symptoms and very slow progression of disease, and I'm sure in some 5 years new therapies will be rather affordable. More and more manufacturers are working on their versions, so ee 'll benefit from competition. Good health to your sister and NED to you next week!

danbren2's picture
danbren2
Posts: 311
Joined: May 2013

So glad to hear that, what a great boost for your family!

                                     Prayers of good health for us all!

                                      Brenda

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