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Texas R.E.
Texas R.E. Member Posts: 5
in Kidney Cancer #1

I have read this discussion board for along time and

 

 

 

you all have been very helpful and a blessing.I had my left kidney removed Feb 2012 . 7cm tumor FG2 3/4 Rcc. 6mo.scan showed mast. both lungs. scans every 3 mo.Every scan some growth and more tumors. April 2013 IL-2  tuff treatment but very doable. No responce. I have just had scan and some growth for over a year. I was excepted in Bristol myres trial 214 and am on arm A nivolumab and ipilimumab. First scan wed. I would like to know if there is anyone on tthis trial? Thank you all again very much.

 

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  • Yeric
    Yeric Member Posts: 65
    #2
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    trial

    Hello Texas.  Gaining enty to this group is tough.  I do believe you are qualified.  Ummm Oh goody?  I envey your trial.  Mine was in 2007. Interluken 21 plus Nexavar.  I did okay.  Nine months in Seattle.  Not bad duty.

    One night The Wife took me to the ER when I had an issue.  The Doctor asked me if I was on drugs.  I told him I was in a interlukin 21 plus nexavar trial.  He turned to his nurse and asked her to call the P.D laison and ask what kind of drugs that had the street names of interlukin and nexavar were. 

    Good times. 

    There are bound to be somebody here with experience with one or both of those. 

    They will be along directly.  I hope the very best for you. 

    Bobby

     

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #3
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    Yeric said:

    trial

    Hello Texas.  Gaining enty to this group is tough.  I do believe you are qualified.  Ummm Oh goody?  I envey your trial.  Mine was in 2007. Interluken 21 plus Nexavar.  I did okay.  Nine months in Seattle.  Not bad duty.

    One night The Wife took me to the ER when I had an issue.  The Doctor asked me if I was on drugs.  I told him I was in a interlukin 21 plus nexavar trial.  He turned to his nurse and asked her to call the P.D laison and ask what kind of drugs that had the street names of interlukin and nexavar were. 

    Good times. 

    There are bound to be somebody here with experience with one or both of those. 

    They will be along directly.  I hope the very best for you. 

    Bobby

     

    Greetings Texas!
    I do not

    Greetings Texas!

    I do not have any answers to your questions, but I just wanted to welcome you to this forum!

    I am sure others will come on and answer your questions.

    Be good to yourself,

    Warmly, Jan

  • Texas R.E.
    Texas R.E. Member Posts: 5
    #4
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    nivo. ipi trial

    First scan results back 38% reduction all tomurs in both lungs. First positive news I have had in over 3 yr.

  • sblairc
    sblairc Member Posts: 585 Member
    #5
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    Texas R.E. said:

    nivo. ipi trial

    First scan results back 38% reduction all tomurs in both lungs. First positive news I have had in over 3 yr.

    THAT IS AWESOME!

    YES! So happy for you. 

  • Yeric
    Yeric Member Posts: 65
    #6
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    Texas R.E. said:

    nivo. ipi trial

    First scan results back 38% reduction all tomurs in both lungs. First positive news I have had in over 3 yr.

    trial numbers

    Good Job there Texas.  We have all our fingers and toes crossed.  All our best

    Bobby

  • Ree_Maryland
    Ree_Maryland Member Posts: 161 Member
    #7
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    Texas R.E. said:

    nivo. ipi trial

    First scan results back 38% reduction all tomurs in both lungs. First positive news I have had in over 3 yr.

    scans

    wishing you the very best and so happy for you , good news for a change. 

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #8
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    Hey Tex! Welcome!
    So sorry to

    Hey Tex! Welcome!

    So sorry to hear about the challenges you have had. It sounds like you have some good options ahead of you. We are here for you, whether you need advice or support or just need to vent.

    Wishiing you the best.

    Hugs

    Jojo

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