CSN Login
Members Online: 3

You are here

More news from Djinnie! Good news!

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hello everyone!

I was very excited to receive a really long and lovely email from Djinnie! She is now in a hospital on the coast of France. Djinnie spoke about it so eloquently, it would be silly for me to try and paraphrase it, so here is an exerpt from her email:

"They are a unique hospital in every way, they work constantly on the fact that one med does not fit all, which has always been my constant beef. I am attached ( and don't I know it) to this machine which has a tower level of drugs, they are gradually mixed synergistically until the chemical balance is 100% to work well within my body. I have never seen that before, have you? Anyway sometimes a spanner gets thrown in the works and we have to do a remix. It's amazing! Well I think I am almost there, I still need stabilising around 3.00 am usually, but it's a close thing now. To be without that agony, I can't tell you the difference, I have never felt so much pain, not something I will ever forget, I can tell you!  I have so much news, without getting into a War & Peace sized email it will be difficult to relay it right now.  The service here is second to none, firstly French Hospitals never have a perfect time limit to send you home, you stay until everything is back on an even keel, for me that is at the pain angle, but I have met so many off shoots of little agencies that want to help, it is a big bonus. We have located a heart problem which is top of the list of priorities this week. Have to take an ambulance trip to some coastal retreat for that one. Might pick up an ice cream on the way,lol!

The food is great, the staff are the most caring, loving I have ever come across, and the services are out of this world. I get massages every day, along with those today I am having reflexology and a facial, can you believe that!!! It will boost my image."
 
She asked me to let everyone here know how well she is feeling. She ended her message to say that she has regained the will to fight and signed it "a revitalized Carolyn".
 
I know everyone here will just as elated to hear this wonderful news. To feel no more pain, to have a smile on her face again. My/our prayers have been answered.
 
Big hugs and sweet dreams to all!
 
Jojo

 

sblairc's picture
sblairc
Posts: 586
Joined: Feb 2014

Happy tears knowing her heart and body are feeling peace. 

Allochka's picture
Allochka
Posts: 911
Joined: Nov 2014

So glad ! Thank you for keeping us posted!

angelsnls
Posts: 67
Joined: Nov 2014

Thank you so much for this update Jojo I have been thinking about Djinnie a lot since your last post, it sounds an amazing place and so glad she is smiling and in no more pain.

Love to you and her

Angela xx

 

 

 

APny's picture
APny
Posts: 1984
Joined: Mar 2014

Thank you so much for the good news. I am so relieved and happy to hear that she's without pain and that they're doing everything they can to help her. That hospital sounds amazing. Go Djinnie!

jason.2835
Posts: 337
Joined: Nov 2014

I didn't know French hospitals were so awesome!  This is great news for sure.  I can't think of a nicer place for DJ to be; on the French coastline, eating French food... God bless her!  I love it!

- Jay

Srashedb
Posts: 482
Joined: Dec 2013

Jojo:

what a great post and turn of events; the pain she has been enduring has left and now she can deal with things better.

the heart issue they have uncovered may improve her major problem with the node that was suffocating her.

thank you so much, JoJo and please let her know that she is alwayes in my thoughts

Sarah

angec's picture
angec
Posts: 924
Joined: Mar 2012

Awesome news! And to say that she is so well deserved of this fancy treatment is an understatement! So happy and pray it continues to go well and soon our lady will be back on the boards with us.  Thanks, JOJO.. Hope you are doing well!  xxoo

donna_lee's picture
donna_lee
Posts: 955
Joined: Feb 2009

The Princess and the Pea.  She had to have a lot of lousy matresses before she found one she could sleep on.  I'm so happy for her, and thank you, JoJo for conveying the good news.

Donna

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Thanks for staying in touch with Djinnie and for keeping us in the loop.

Please share with her our love and good wishes for her well being.

Todd

I am alive
Posts: 316
Joined: Jul 2012

This is such good news!!! Thank you Jojo!! It's so funny because I was JUST thinking about Djinnie.......just wondering how she is doing, etc., and 10 minutes later logged on and your post was at the top of the heap!!! I love thinking of Djinnie getting a massage and much love in a lovely French hospital on the coast of France. Hey! Let's all go!!! Facials too? and that machine she describes, mixing up doses, scanning, etc...,that sounds like something I want to know more about! Dear Djinnie, you go, girl!!

hydrangea's picture
hydrangea
Posts: 32
Joined: Oct 2012

What a great way to start the day! Thanks so much Jojo for sharing such wonderful news about Djinnie.  I feel as though all of our prayers for Djinnie have been answered.  She is an amazing woman and it is a relief to know that she is receiving the best care and treatment possible.  Best news ever!

Diane

 

 

rae_rae's picture
rae_rae
Posts: 300
Joined: Oct 2010

and a big smile on my face. I am elated at the wonderful news. God Bless You Djinnie! Thank you for sharing the news Jo Jo!Laughing

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Thanks Jojo.

You go DJ!!! 99% of all people have no idea of how to fight like you are doing. I am sooo.. proud of you! I'm so happy that you are in a more effective facility.

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Thanks for keeping us informed. Sounds like Djinnie has found a great place to be. I think of her often

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

Thank you for posting this.  If anyone personifies the words of Jimmy Valvano--"Don't give up. Don't ever give up.", it is Djinnie and FoxHD.  Keep fighting. 

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

this has totally made my day!!!  Been so concerned about her and could hear nothing from her.  So glad she email you.  What a change of events!!!  I have been praying for her everyday as I am sure a lot of you have also.  Lets continue to lift her up and that she will be back on here with  us soon.  Tears of joy!!!

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

WOWEEE!!!!! You deserve such an excellent facility after you had to lay on the floor of that other hospital (which made Me so mad for you!).

This brings tears of JOY!!!

Thanks JoJo.. for staying in touch and letting us know. Whew..

Words cannot express how wonderful.. BE a BELIEVER!!!

Hugs to you JoJo and to you Djinnie!!

Jan

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

It's the best news I recieved from this board. Thanks  Jojo for sharing it

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

I have heard a little more from Djinnie. A complication is that her lymph is leaking fluid into her heart. Yesterday they were taking her and drawing the fluid from her heart. I guess it has been causing her blood pressure to spike, and occasionally she would faint. Who knew that a lymph could complicate your health so much? I haven't heard from her since. But her internet access is very sporadic. I will post as soon as I hear.

Hugs

Jojo

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Aww, how miserable that must be. Who knew?

Thanks again for that update.

Now make sure YOU take of yourself, k?

 

Hugs, Jan

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

For keeping us informed. Leaking fluid into the heart sounds less than ideal. If you can pass on some good wishes please do.

BDS's picture
BDS
Posts: 172
Joined: Aug 2012

 

Djinnie sending peaceful and restful vibes your way. - BDS

 

APny's picture
APny
Posts: 1984
Joined: Mar 2014

Thank you for the update, Jojo. I hope they can drain the lymph and stop it from leaking. No wonder she developed heart issues. But it sounds like they're really on the ball there and on top of things. That's very reassuring.

I am alive
Posts: 316
Joined: Jul 2012

Was Djinnie leaking lymphatic fluid?

Phredswife's picture
Phredswife
Posts: 162
Joined: Apr 2014

Thankyou Jojo. So happy to hear this. Hope they can continue to make her feel better. Take care and send her my love.  Melissa

 

alice124's picture
alice124
Posts: 898
Joined: Mar 2012

Wonderful, beautiful news. Keep it coming Djinnie and Jo. So happy. . .

 

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hi again....

I haven't heard any further from Djinnie but that could mean anything!

And yes, her lymph is leaking into her heart, causing problems (such as blood pressure spiking and passing out as a result).

She did hope to go home this past weekend. I know we are all hoping she did!

EDIT:

I heard from Djinnie today. She is doing very well and is excited because she is going home today! Her daughter is arriving tomorrow. She is in very good spirits and asked me to say hello to everyone here for her. She sounds very happy!

Hugs

Jojo

APny's picture
APny
Posts: 1984
Joined: Mar 2014

That is such great news! Thank you, Jojo and please give Djinnie my love and best wishes. So happy she's going home and is in good spirits. What a wonderful thing to wake up to in the morning and reading this :)

Phredswife's picture
Phredswife
Posts: 162
Joined: Apr 2014

Lovely news!Smile

angelsnls
Posts: 67
Joined: Nov 2014

So happy for her please give her loads of love.

Angela xx 

I am alive
Posts: 316
Joined: Jul 2012

So happy.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Just reading your responses warms my heart.

I have received another email from Djinnie. I know she won't mind me sharing this. She is so inspirational, I don't want you to miss out on this message:

"Hi Jojo, 
I am glad to be home at last, obviously I am not in good shape I understand all of that, the meds make me shake badly and I lack coordination. I find if I take a sleep after the morning morphine it stops a lot of the shivering etc. I know I am in last stage but without so much pain I can cope so much better. As my husband says we will take it a day at a time every day will offer something different. I am working hard on my spiritual side and have incorporated that in my fight to get better.
My big concern is that I have boosted my family in such a way that, I may cause disappointment in failure. However! My husband and friends assure me that from here on in I can only look at the final result as a win, win situation. I intend to enjoy every moment I have left, to love and be loved by family and friends, who I wish to hold close:)
 
I have a wonderful husband a beautiful daughter and the most amazing loving family and friends, what more could I want in life. I will fight for as long as it takes, nothing is defined in marble. 
 
I am grateful to hear of the loving support from those on CSN, if there is anything you feel may be of help to others on there suffering please feel free to use it. I will be resting for a little while before I write, I hope they understand for now. I wish everyone all the best and advise them to always stay courageous."
 
God bless our sweet Djinnie!
 
Hugs
Jojo

 

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Thanks Jojo. Tell her she is always in our thoughts

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Who says we aren't a family?

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

We ARE family, Foxy. No doubt in my mind! Cool

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

TEARS... of JOY

TEARS... wondering

Happy, Happy family joined together by the C word~

Hugs to ALL!!!!!!!!!!!!

 

Jan

Srashedb
Posts: 482
Joined: Dec 2013

JoJo and all:

this forum is definitely a family and staying connected with DJ through you is a spiritual thing.

reading DJ's email (between the lines), she has reached a serene acceptance of what may come.

never, when I first signed up here, did I anticipate the bonds we share and I agree that YOU are a major player.

Thank you, Jojo

Sarah

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

JoJo--you are one of the many great people who makes this group a wonderful place.  Thank you for the update.  My eyes teared up a bit reading it.  Thank you.

APny's picture
APny
Posts: 1984
Joined: Mar 2014

Thank you Jojo. I signed in and had a message from her and it just made my day. She's a very special lady and a great inspiration. And you're a sweetheart for sharing your news of her with us.

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Yes, I too had a wonderful message from DJ today, very early. In my emaill, I old her not to respond, but to save her energy, yet she did.

STILL as lovely, generous, giving her kindness and care to all. She is grateful for all of us on this site. She is hoping to get on one day... but it is now hard for her.

To me, she is resigned and making the most of each moment she has. Seems she has only a window of time to correspond as once her meds kick in she's out for awhile.

As the Tim McGraw song says, we should all live like we are dying~

Hugs to you all!!!

Jan

 

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

Does anyone have news from our beloved DJ? I think of her almost everyday, waiting for good news and her coming back to this board soon.

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

What a stromg lady and yet still encouraging others.  Brought tears to my eyes.  I pray for her every day.  Thanks for posting it JO JO.

Allochka's picture
Allochka
Posts: 911
Joined: Nov 2014

Thank you for the news! And all our love to Djinnie!

Dave418's picture
Dave418
Posts: 95
Joined: Aug 2014

Haven't cried a lot since i was diagnosed, but that message from Djnnie got me. 

Stay strong!!

Dave

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hi everyone,

Our Djinnie is a pillar of strength. She had an appointment with her Dr. Laguerre and had good news....here is an excerpt from her email (describing her visit to Dr. Laguerre):

"I also got on very well yesterday JoJo. I was very worried about getting there of being constantly sick, the mornings are so hard for me. Anyway I was up at 5.00 am trying to get everything to settle down, it was tough. My friend Jackie drove up from Vannes to come with us, it saved me struggling with understanding the full conversation, as she speaks perfect French. Well my blood work was pretty good, and my Thyroid levels are in normal range. I had a full physical, along with checking the lymph and lungs. My lungs are completely clear, the breath being completely unlabored. She told me I am doing very well, things have changed around completely. The stay in hospital for two weeks just gave me the energy and the right pain relief to fight with more strength and  determination. Dr Laguerre  was very pleased, my immune system is fighting back at last and I stand a good chance now. That is the best thing I could possibly hear! 
 
I get my scan in 2 months to check on the Infinitor, also as a precaution I am having an MRI to check that I don't have a brain lesion because of the black outs, considering they started around the time I started the meds they are are more likely to be connected to those, best to play safe. We are going to start to reducing the morphine and steroids now too, as Dr Laguerre  doesn't think  I need the same level of meds any more, what wonderful news. I have gone from little hope to living much longer to a chance of a future. How things can change in such a short space of time I am overwhelmed."
 
Terrific news that I know all of you here will be happy to know!
 
Big hugs
 
Jojo

 

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

this has made me so very happy.  I just love this woman and her strength and encouragement.   Just made my day!  I keep praying for her and for even more great news.  What an awesome God we have!!!  

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

WOW~no words (and for me.. lol)

Just tears..

Thanks for posting this.

 

Jan

Srashedb
Posts: 482
Joined: Dec 2013

this is truly amazing news and thank you, JoJo for sharing it; having clear lungs when she was nearly suffocated is about as close to a miracle as I have heard.

I am expecting her to return to this forum at the rate she is progressing.

Please let her know how much she continues to be in my thoughts.

Sarah

Phredswife's picture
Phredswife
Posts: 162
Joined: Apr 2014

This is the best news!! Thankyou Jojo. Please send my love when you next talk to herSmileSmile

 Hugs Melissa

Allochka's picture
Allochka
Posts: 911
Joined: Nov 2014

Incredibly great news! Thank you for postingthis, and our regards and best wishes to Djinnie!

Pages

Subscribe to Comments for "More news from Djinnie! Good news!"