Stage iv with metastasis to peritoneum and liver.

kipper1219
kipper1219 Member Posts: 27
edited March 2015 in Colorectal Cancer #1

I did everything right, I thought I did anyhow.  I had a colonoscopy in 2012.  It was because I was sharting blood and pus and had God awful gas.  The dr. said I had what appeared to be possible IBS or colitis.  I was given a 10 pass on my next colonoscopy and given some meds.  The first med and the second med didnt work at all.  The second med almost completely cleared up the blood in my stool and I no longer had gas.  In February of 2014 I decided that after smoking for decades that I wanted to get real with my weight.  I worked out, walked thousands of miles IBS or Colitis.  Then I got a Uti, I will be honest and say that when ever I am on an antibotic that I dont finish them all the way.  So I headed to my medicine cabinet to get an antibotic.  This reared the dragons ugly head again and I started to shart blood and have gas again.  The previous gi dr no longer was in this area, so I started with a new one.  I had my colonoscopy on 1-8-15, on 1-13-15 my life turned into a living hell.  I was diagnosed with cancer.  My doctor immediately had me do a blood test to get a marker.  It was 13.9.  On 2-4-15 I had a hand assisted resection where they took approx 2 feet of my intestines and the tumor and 13 lymph nodes.  The pathology report came back with all 13 lymph nodes had cancer.  It was also on the peritoneum.  As I was healing, I got set up with a cancer dr. in our area.  On my first visit with him he told me I had 2-3 years to live and that I would be on chemo the remainder of my life.  I went thru my first round of folfox treatment and started on xeloda pills.  I had to have a couple of test ran to see if the spread was anywhere else.  I had a MRI and a second CT scan.  I asked about a PET scan and he said on no.  On my return visit to discuss the results of those tests, he revealed to me that the nodule on my liver grew from a 1.1 to a 1.4.  I then said to him what nodule??  I almost feel like a piece of info is being slowly released to me.  I asked if we would do radiation or surgery to remove the nodule and he replied no.  At this point I decided to get a second opinion.  My husband called the Cancer treatment of America and had them contact me.  Im both excited and nervous at the same time.  I have my appointment on Tuesday.  I have 2 children (both grown) and 5 grandsons from 17 months to 11 years.  I want to live!!!  Im finding hardly any info on metatasis survival rates on the peritoneum.

Comments

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #2
    Hello and welcome to the forum

    I am sorry that you have started on this journey, but there is no going back, and joining this forum will be a huge help as you go forward. 

    I wouldn't worry too much about survival rates, they are overrated.  Your supposed 2 - 3 years could stretch into 10 or more. There are folks here on the forum who have had such news, and continue their fight and quite succesfully as well.  So I would suggest not bothering looking for those survival rates. You never know sometimes, when you are reading on a site information that could easily be 10 years old. Allot of progress has been made in a few short years. 

    I hope you find the Cancer Centre of America more helpful in providing all of your medical information promptly.  I know it is hard to miss things at appointments, but some of the big stuff, like a liver nodule, is something you usually hear and it stays in your head. 

    We are happy to have you join us, and we look forward to many years of sharing to come. 

    Sue - Trubrit

  • kipper1219
    kipper1219 Member Posts: 27
    #3
    Trubrit said:

    Hello and welcome to the forum

    I am sorry that you have started on this journey, but there is no going back, and joining this forum will be a huge help as you go forward. 

    I wouldn't worry too much about survival rates, they are overrated.  Your supposed 2 - 3 years could stretch into 10 or more. There are folks here on the forum who have had such news, and continue their fight and quite succesfully as well.  So I would suggest not bothering looking for those survival rates. You never know sometimes, when you are reading on a site information that could easily be 10 years old. Allot of progress has been made in a few short years. 

    I hope you find the Cancer Centre of America more helpful in providing all of your medical information promptly.  I know it is hard to miss things at appointments, but some of the big stuff, like a liver nodule, is something you usually hear and it stays in your head. 

    We are happy to have you join us, and we look forward to many years of sharing to come. 

    Sue - Trubrit

    Thanks Sue! I had my husband

    Thanks Sue! I had my husband and my sister in law when I got the break down. So it wasn't missed. i asked him about PET scan and he said no. I will be a chemo for the rest of my life. I asked him about diet, he said eat what you want too. I was shocked!! I need to make sure that this car (my body) is in the best shape that it can be to survive. That's why my family wanted me to get a second opinion. 

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #4
    kipper1219 said:

    Thanks Sue! I had my husband

    Thanks Sue! I had my husband and my sister in law when I got the break down. So it wasn't missed. i asked him about PET scan and he said no. I will be a chemo for the rest of my life. I asked him about diet, he said eat what you want too. I was shocked!! I need to make sure that this car (my body) is in the best shape that it can be to survive. That's why my family wanted me to get a second opinion. 

    Hard/Easy

    I meant to say 'it is EASY to miss things.....' in my former post. 

    I am glad that you had people with you, four ears are better than two, and six even more so. 

    I am surprised that they will not order a PET scan. I know inusrances are dicy when it comes to paying up, but at least one should be covered. 

    There are others here doing the chemo for life thing, and managing quite well. I know Herdizziness will come on and post soon, she is such an example of what can be achieved while on chemo. If you find one of her posts, be sure to read her profile. Inspiring!

    I found out quite quickly that Oncologist are not nutritionist, and thus I have done allot of research about diet and Cancer. I actually have ended up quite confused by that, as there are so many conflicting studies out there. What I do is try my best to eat a healthy diet, and also enjoy the occasional (I'm working on making it a little less occasional. HA!) treats. If I'm going to die, I'm going to die happy, and not deprived. 

    Weekends tend to be quiet on here. I know others will pop in soon. 

    Sue - Trubrit

  • kipper1219
    kipper1219 Member Posts: 27
    #5
    Trubrit said:

    Hard/Easy

    I meant to say 'it is EASY to miss things.....' in my former post. 

    I am glad that you had people with you, four ears are better than two, and six even more so. 

    I am surprised that they will not order a PET scan. I know inusrances are dicy when it comes to paying up, but at least one should be covered. 

    There are others here doing the chemo for life thing, and managing quite well. I know Herdizziness will come on and post soon, she is such an example of what can be achieved while on chemo. If you find one of her posts, be sure to read her profile. Inspiring!

    I found out quite quickly that Oncologist are not nutritionist, and thus I have done allot of research about diet and Cancer. I actually have ended up quite confused by that, as there are so many conflicting studies out there. What I do is try my best to eat a healthy diet, and also enjoy the occasional (I'm working on making it a little less occasional. HA!) treats. If I'm going to die, I'm going to die happy, and not deprived. 

    Weekends tend to be quiet on here. I know others will pop in soon. 

    Sue - Trubrit

    I for the most part keep

    I for the most part keep upbeat. I sometimes find myself up all night doing research. I should of joined this Forumn sooner. But I look forward to all the insight I can get. :)

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