First Votrient scan is good news

thaxter
thaxter Member Posts: 124

After three months on Votrient I got my first scan today and the doc showed me all four lung mets are much smaller. Largest one is just under 2 cm after being 3.5 cm on 10/29. I am taking 400 and 600 mg on alternate days 

Comments

  • Awesome news, Thaxter!! 

    Awesome news, Thaxter!! 

  • Joe C
    Joe C Member Posts: 37
    Congratulations Thaxter!

    Congratulations Thaxter!

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    Joe C said:

    Congratulations Thaxter!

    Congratulations Thaxter!

    Great news, Thaxter!
    We are

    Great news, Thaxter!

    We are always happy to hear the good news reports!

    Hugs

    Jojo

  • BDS
    BDS Member Posts: 172
    First Scans

     

    Congratulations Thaxter - may you have continued success on Votrient. - BDS

     

  • foroughsh
    foroughsh Member Posts: 779
    Congratulations, it's always

    Congratulations, it's always good to hear drugs have done their duties

  • Srashedb
    Srashedb Member Posts: 482
    Good news

    it is wonderful to hear your news; after so much bad news, getting this report is excellent!

    Sarah

  • APny
    APny Member Posts: 1,995 Member
    Srashedb said:

    Good news

    it is wonderful to hear your news; after so much bad news, getting this report is excellent!

    Sarah

    So nice to read happy news.

    So nice to read happy news. I'm so glad for you.

  • Ed Brabant
    Ed Brabant Member Posts: 61
    Votrient

    Great news. So far Votrient is working for me as well. I have been handling it real good. 800mg a day. Scans are showing shrinkage. I take mine in teh morning. Since I switched to morning shrinkage seems more. Did your hair go white? Mine did. Now it's almost back to gray/brown. 

  • foxhd
    foxhd Member Posts: 3,181
    APny said:

    So nice to read happy news.

    So nice to read happy news. I'm so glad for you.

    That is impressive Thax!

    I hope the Il-2 experience has helped make your response better. You'll be the new trend setter! Do well. Maybe some day we can do some pickin'. Let's say ..15-20 years from now.

  • thaxter
    thaxter Member Posts: 124

    Votrient

    Great news. So far Votrient is working for me as well. I have been handling it real good. 800mg a day. Scans are showing shrinkage. I take mine in teh morning. Since I switched to morning shrinkage seems more. Did your hair go white? Mine did. Now it's almost back to gray/brown. 

    Take mine before bed

    reading advice here I have been taking mine before bed. But I may switch to morning because right now I can almost count on diarrhea around 12 hours after the dose or at mid day which is not too convenient if you want to be out and about. So maybe if I take in the am that will change. Hair is getting white. Beard almost there and the first half inch of hair on my scalp is white and hair is thinning a lot. Mouth issues are much better but still a problem eating spicy stuff and whenever I eat my whole face sweats. Also my face is often flushed. My TSH was way high (25 as opposed to the 1-5 range) but he is waiting for more tests before putting me on synthroid

  • Ed Brabant
    Ed Brabant Member Posts: 61
    Votrient

    My thyroid function went hay wire. I am taking meds for that. It's at home I can't remember what it is but the levothyroxine I was taking made me spend LOTS of time in the bathroom. I take diphenoxylate for the diarerra. Can't live with out them. Little white wonder pills. 6 over the course of the day. 

  • damatken
    damatken Member Posts: 16
    Wonderful news!

    So glad to hear you got some good results.  My husband is still having stomach pain which we relate to gastritis even with alternating doseage 400-600.  When the pain gets too bad, his doctor told him to stop the Votrient until the pain is gone and then slowly start back at 200.  He also deals with diarrhea and his hair is white as well.   He has been on and off Votrient now since October.  Labs look good thus far and he can work when called so we are thankful. Scheduled to return to UVA in 2 weeks for scans and then results.  Praying for good news.  He has been on and off so many times due to gastritis issues.  Not as severe as in the beginning when he was placed on 800 mg.  Way too strong, too fast.  We now have that worked out. 

  • Footstomper
    Footstomper Member Posts: 1,237
    damatken said:

    Wonderful news!

    So glad to hear you got some good results.  My husband is still having stomach pain which we relate to gastritis even with alternating doseage 400-600.  When the pain gets too bad, his doctor told him to stop the Votrient until the pain is gone and then slowly start back at 200.  He also deals with diarrhea and his hair is white as well.   He has been on and off Votrient now since October.  Labs look good thus far and he can work when called so we are thankful. Scheduled to return to UVA in 2 weeks for scans and then results.  Praying for good news.  He has been on and off so many times due to gastritis issues.  Not as severe as in the beginning when he was placed on 800 mg.  Way too strong, too fast.  We now have that worked out. 

    Great news

    Well done!

  • thaxter
    thaxter Member Posts: 124
    damatken said:

    Wonderful news!

    So glad to hear you got some good results.  My husband is still having stomach pain which we relate to gastritis even with alternating doseage 400-600.  When the pain gets too bad, his doctor told him to stop the Votrient until the pain is gone and then slowly start back at 200.  He also deals with diarrhea and his hair is white as well.   He has been on and off Votrient now since October.  Labs look good thus far and he can work when called so we are thankful. Scheduled to return to UVA in 2 weeks for scans and then results.  Praying for good news.  He has been on and off so many times due to gastritis issues.  Not as severe as in the beginning when he was placed on 800 mg.  Way too strong, too fast.  We now have that worked out. 

    Keep it up

    Good luck on the scans, my results are giving me the resolve to stay with Votrient as long as it works. I do wonder if I am up to doing a bus tour of the British Isles this year which we hope to do since I retired in December. 

  • Footstomper
    Footstomper Member Posts: 1,237
    thaxter said:

    Keep it up

    Good luck on the scans, my results are giving me the resolve to stay with Votrient as long as it works. I do wonder if I am up to doing a bus tour of the British Isles this year which we hope to do since I retired in December. 

    Britain

    Make sure you get some Steak and Kidney pies! They taste of sweet revenge! The best folk music is around Whitby in Yorkshire where Martin McCarthy and the Watersons live. Actually, the best Fish and chips is there too.

  • jayneb69
    jayneb69 Member Posts: 1
    new to csn!

    Hi guys im new to csn but saw the word votrient and felt i was on the right post. Im jayne 45 from the UK and i had a full left nephrectomy (open surgery) end of july last year. After finding it to be grade 3 i was put on 3 month ct scans. First scan end of nov 2014 showed mets to 3 areas and now at stage 4 grade 4. Yes i was slightly hysterical initially but was transferred straight away from urology to oncology under a RCC specialist and started on votrient that day. I have been on votrient just over 2months 800mg daily with lots of the same side effects as yourselves. After my latest 3 month scan last week im off to see my onc tomorrow for results. Im scared as this is my first scan since starting votrient so not sure what results if any to expect. Im feeling as positive as my.mind allows lol. Nice to meet you all xx

  • todd121
    todd121 Member Posts: 1,448
    jayneb69 said:

    new to csn!

    Hi guys im new to csn but saw the word votrient and felt i was on the right post. Im jayne 45 from the UK and i had a full left nephrectomy (open surgery) end of july last year. After finding it to be grade 3 i was put on 3 month ct scans. First scan end of nov 2014 showed mets to 3 areas and now at stage 4 grade 4. Yes i was slightly hysterical initially but was transferred straight away from urology to oncology under a RCC specialist and started on votrient that day. I have been on votrient just over 2months 800mg daily with lots of the same side effects as yourselves. After my latest 3 month scan last week im off to see my onc tomorrow for results. Im scared as this is my first scan since starting votrient so not sure what results if any to expect. Im feeling as positive as my.mind allows lol. Nice to meet you all xx

    Good luck

    I hope the drug is working for you and you see stable/shrinking tumors. Disappearing tumors even!

    Todd

  • todd121
    todd121 Member Posts: 1,448
    Great. Glad to hear it!

    Always glad to hear good news on this board. Terrific. Hope you keep seeing it improve.

    Todd

  • Footstomper
    Footstomper Member Posts: 1,237
    jayneb69 said:

    new to csn!

    Hi guys im new to csn but saw the word votrient and felt i was on the right post. Im jayne 45 from the UK and i had a full left nephrectomy (open surgery) end of july last year. After finding it to be grade 3 i was put on 3 month ct scans. First scan end of nov 2014 showed mets to 3 areas and now at stage 4 grade 4. Yes i was slightly hysterical initially but was transferred straight away from urology to oncology under a RCC specialist and started on votrient that day. I have been on votrient just over 2months 800mg daily with lots of the same side effects as yourselves. After my latest 3 month scan last week im off to see my onc tomorrow for results. Im scared as this is my first scan since starting votrient so not sure what results if any to expect. Im feeling as positive as my.mind allows lol. Nice to meet you all xx

    Welcome

    To the club no one wants to join. I live in America and get a lot of people asking me what treatment I would get in the UK. I tell them I dont know because I've only had cancer in the States

  • Footstomper
    Footstomper Member Posts: 1,237

    Votrient

    My thyroid function went hay wire. I am taking meds for that. It's at home I can't remember what it is but the levothyroxine I was taking made me spend LOTS of time in the bathroom. I take diphenoxylate for the diarerra. Can't live with out them. Little white wonder pills. 6 over the course of the day. 

    Little white wonder pills

    Cant live without them. Heard about them here. I wonder why the doc didnt prescibe them until I asked?