New here~fallopian tube carcinoma stage 2

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wife2elliot
wife2elliot Member Posts: 5
in Ovarian Cancer #1

I was diagnosed June 24,2014 with fallopian tube carcinoma stage 2..I had mentioned prior to testing to my PCP that something was wrong..I was tired, abdomen swollen,

and was getting up at night every 15 minutes to use the bathroom..he still had me wait to have a pelvic ultrasound saying that 8 months prior I had had a normal one..

Laparotomy,removal of both ovaries (cancer was in right fallopian tube and right ovary with a grapefruit sized benign tumor encapsulating both),both fallopian tubes,

omentum lining, 31 lymph nodes, cervix and uterus. Also included in the removal were 2 para aorta lymph nodes as I had had a heart attack a few months prior to my

diagnosis...I am 42, live in New England,am married with 2 children, ages 15 and 19..I homeschool, have many hobbies, was in hospice nursing prior to becoming a full

time stay at home mom in 1998..

  Jan 20th I have my last chemo..I hope! I have carboplatin and taxotere (had a reaciton to the taxol on the 4th round!)..

Looking forward to getting to know anyone else here that could give me some info on fallopian tube carcinoma..such little info avallable! I was told at my oncologist

office downstate from where I have treatments that this early stage does not return as another cancer and then I read different the more I research what little is

out there for info..does it recur? I have no lymph node involvement..

Lynne

Comments

  • Alexandra
    Alexandra Member Posts: 1,308
    #2
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    Welcome to CSN Lynne

    Your doctors are doing everything possible (surgery + chemo) to minimize the chance of recurrence. Though no one could guarantee that cancer won't recur, with stage 2 your prognosis is much better than with higher stages. In any case you are the statistics of one. Don't take the numbers below literally and don't let the fear of recurrence affect your day-to-day life. All the best to you and your family.

     

    Fallopian tube carcinoma

           

    Stage

    Relative 5-yr Survival Rate

    		  

    I

    87%

    II

    86%

    III

    52%

    IV

    40%

    http://www.cancer.org/cancer/ovariancancer/detailedguide/ovarian-cancer-survival-rates

     

  • wife2elliot
    wife2elliot Member Posts: 5
    #3
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    Alexandra said:

    Welcome to CSN Lynne

    Your doctors are doing everything possible (surgery + chemo) to minimize the chance of recurrence. Though no one could guarantee that cancer won't recur, with stage 2 your prognosis is much better than with higher stages. In any case you are the statistics of one. Don't take the numbers below literally and don't let the fear of recurrence affect your day-to-day life. All the best to you and your family.

     

    Fallopian tube carcinoma

           

    Stage

    Relative 5-yr Survival Rate

    		  

    I

    87%

    II

    86%

    III

    52%

    IV

    40%

    http://www.cancer.org/cancer/ovariancancer/detailedguide/ovarian-cancer-survival-rates

     

    Thank you,Alexandra

    Thank you so much for the encouragement! I really do appreciate it as the information I was given seems to be so miniscule..I am encouraged! 

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,369 Member
    #4
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    wife2elliot said:

    Thank you,Alexandra

    Thank you so much for the encouragement! I really do appreciate it as the information I was given seems to be so miniscule..I am encouraged! 

    Alexandra is right: you are

    Alexandra is right: you are statistic of one.

    With that said you have a very rare form of cancer so information would be extremely rare and (probably) old. 

    Continue to take care of yourself.

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #5
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    NoTimeForCancer said:

    Alexandra is right: you are

    Alexandra is right: you are statistic of one.

    With that said you have a very rare form of cancer so information would be extremely rare and (probably) old. 

    Continue to take care of yourself.

    Hi Lynne

    We know how scary it is to think about a recurrence but it sounds like you've done everything you can do to kick your cancer's butt to the curb.  Best wishes to you as you move closer to finishing your chemo.

    Hugs,

    Kelly

  • wife2elliot
    wife2elliot Member Posts: 5
    #6
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    NoTimeForCancer said:

    Alexandra is right: you are

    Alexandra is right: you are statistic of one.

    With that said you have a very rare form of cancer so information would be extremely rare and (probably) old. 

    Continue to take care of yourself.

    Thank you,

    Thank you~I am trying to think realistically and not get in to the mindset that this is 'it' for treatment after my last chemo on Jan 20. PET scan

    3 weeks after chemo and then we go from there. You take care too and thanks for replying!

  • wife2elliot
    wife2elliot Member Posts: 5
    #7
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    lovesanimals said:

    Hi Lynne

    We know how scary it is to think about a recurrence but it sounds like you've done everything you can do to kick your cancer's butt to the curb.  Best wishes to you as you move closer to finishing your chemo.

    Hugs,

    Kelly

    Kelly

    Thank you for your encouragement~this last round was the worst for me as far as feeling sick and the Neulasta shot is quite painful but works incredibly

    well for me so am blessed to have it available. Hugs back to you!

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #8
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    The research is starting to

    The research is starting to show that ovarian cancer may really be starting from the fallopian tube. Kim

     

  • Kathleencosta4
    Kathleencosta4 Member Posts: 1
    #9
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    Was diagnosed with fallopian

    Was diagnosed with fallopian tube cancer September 2014. As you stated there is very little information on this cancer. My Wish now is to have this cancer added as one of the below the belt gynocological cancers so people can be aware that having ovarian cancer symptoms without having ovarian cancer does not mean your'e cancer free . I had sonograms for one year complaining of all my symptoms and it wasnt until I insisted on a hysterectomy that my cancer was found

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