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Wilms tumor

LukasGr
Posts: 5
Joined: Nov 2014

Hello everyone I want to share my story, even though it just begun. I am 18 years young, I was healphy and fine until this autumn. I had very big pain in my back and after few days I got high fever and sudden lost of body mass. Soon after that I went to family doctor he said it probably just muscle inflammation. I drunk antibiotics and thing got better. But one month ago same happened again and after echoscopy doctor told it is probably tumor in left kidney, and something in liver too. 

 I was very frightened at first but I am young and I can survive it easy I thought. So just a week ago I had my belly MRI which showed insanely big tumor and trump near hard, that means surgery is very dangerous. It also showed liver tumors. Next day I did lungs CT and they found some in my lungs too.   Next day they told me that it is not RCC like I thought, but Wilms tumor, children cancer and very rare in adults.

 

After that they did biopsy and said it should react to chemoteraphy very good so now tomorrow I am starting chemoteraphy and hoping for best. I would like to get some information, maybe someone child had it or even adult survivors. Thing I know: I will play basketball again! And sorry for my bad english I live in eastern Europe, Lithuania, and wrote this whole story with smartphone.

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Well thank goodness for smartphone eh!  I am so sorry to hear about your health. I only have experience with kidney cancer, but there are a couple of members who have experience with Wilms, so I hope they see your post.

This is a tough thing for you to face at such a young age, but stay strong and determined! have you been able to play some basketball up until now? I assume that it's your passion! 

I will keep you at the forefront of my thoughts and prayers, all the best tomorrow. Try and stay in touch via that smartphone of yours, let us know how you get on:)

 

I am in Europe too, France,

 

Djinnie

LukasGr
Posts: 5
Joined: Nov 2014

Yes, it is my life and basketball never stops! I plaid hoops septermber 17 last time. That day I torn some of my ankle liggaments, but that is nothing compared to cancer. Hoping to back hooping few months after full kidney removal.

For now I am having port tommorow near my chest so I can have easy chemo. Waiting first results. Doctor saying my back should stop ache after few chemos so I can leave drugs and start walking more again. Thank you for your comment and I still wait to hear feom someone who had this cancer.

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Hi

I'm diagnosed with kidney cancer and don't know about that tumor. It's clear that you're a determined and strong young man. That personality will help you through this fight.  so I wish you all the best . you're in my thought and prayers. There is another site which might help. Smartpatients.com 

Forough

 

 

 

 

 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

This has come up many times. Do a search. That should help.

LukasGr
Posts: 5
Joined: Nov 2014

I search over net but this is rarely happens to people over 5 years age and nmeven more rare for grown ups. I would likr someone who maybe had this experience to share that should I expect. It is easy to find RCC stories, but I would like to hear from same fellows like me or someone who might had it in childhood and how they beat it etc.

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Hi, I hope the chemo went well today! With regards to finding someone who has dealt with Wilms. If you log in and connect to Childhood Cancer a little way down you will see 34 yr Wilms survivor. Most of the posts are old but there are three very recent ones. Why not try making contact with them, they may be able to offer some advice.

All the best:)

 

Djinnie

LukasGr
Posts: 5
Joined: Nov 2014

Yes you right, I should have checked children cancer at the beggining. Thank you! There are so many wilms tumor survivors and they all much older than me (I have so much more confidence now).

Thanks everyone for cheers and I wish all of you to stay strong and never surrender!

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Lukas,

I am so glad that you have found what you were looking for, you sound so much happier now! I hope everything goes well for you Lukas and that you are back playing basketball before not too long. Let us know how thing go:)

 

Take care

 

Djinnie 

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Hi Lukas. Fox meant to do a search here in the kidney cancer group. At the top there's a search box where you can search for previous posts. Go to the top of the kidney cancer discussion board and you'll see a box "Search by Keyword". Type in Wilms wilms (I'm not sure if the search is sensitive about capitalization) and then do a search and you should find previous discussions about Wilms. Also, you might find people there that have had it and you are able to message them through the CSN messaging by clicking on their name. After you click their name you can read their bio and also you can message them as long as you are logged into CSN.

Best wishes,

Todd

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Welcome. Sorry to hear about your health problems. I"m afraid I don't know much about Wilms tumors except like you said that it usually strikes children and young adults.

I wish you the best with your chemo. Please keep us posted.

I hope someone who knows more about it will post. There are people here with Wilms. I've seen posts before. 

Best wishes to you.

Todd

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