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"Double-Boarder" Triple ?

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

Just wanted to tell my friends here that the prostate biopsy came back positive.

Very minor, Stage 1. Easily treatable with radiation or surgical removal. I've got to talk to a radiation oncologist and surgeon to make that decision.  Chemo is virtually never used on prostate cancer, and is never curative for prostate cancer.

This is not a life-threatening diagnosis, so "Do not cry for me, Argentina."  Also, it is absolutely unrelated to lymphoma.

I am posting regarding this on the Prostate Board, and will not tie up space here regarding it.

I was getting tired of wellness, and needed a little drama in my life !  I am totally OK with this, so you be OK with it also.

 

Any prayers welcome,

max

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illead's picture
illead
Posts: 847
Joined: Aug 2012

If you say so Smile.  We're just relieved they caught it early, and know you will do fine.  Please keep us informed with your progress though, cause you know we love ya!

Becky

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
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Joined: May 2012

B&B,

I aint goin nowhere, if I may speak in Southern.

As I mentioned some time ago, my theme song is the Doobie Brother's old hit, Cheat the Hangman .

 

.

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

I am thankful it's minor and very treatable but I think you'vce had enough experience with cancer :).  As far as drama, you've probably had enough of that or you could keep up with the Kardashians :).  Gosh, now you're gonna be on two boards!  I'm sure you will be as welcomed and helpful there as you are here on this board.  I know you'll keep us updated.

Thanks for sharing and you're in my prayers,

Jim

 

 

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

I have been using that Board for a few months, learning, gathering information.  If my life were a location, I guess it would be Syria.

The guy who recommended Pabst Blue Ribbon therapy owes me a refund !

Mary N.
Posts: 100
Joined: Jun 2013

I have also been looking at the prostrate cancer forum because my husbands prostate cancer flared up again.  It has since gone down with the hormones and then I check this one for me.  Actually the guy who recommended Pabst was wrong.  It is Sierra Nevada.  Best wishes to you double dipper!

illead's picture
illead
Posts: 847
Joined: Aug 2012

Their brewery is only 40 miles from us Smile

Becky

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

Becky,

Doc approved any grog 5% Al/Vol, or above !

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Well darn, Max....

  I was hoping you would get a clean report and not have to deal with anything new. Sure glad it's in the early stage and treatable. You hang in there and let us know how things go. I see my Oncologist on the 30th, so I'm a bit anxious on what the next plan will be...if any. I'll post if anything new is decided. Prayers for you....Sue

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
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Joined: May 2012

 

Always a special delight to here from you Sue.  I hope things go well at your oncologist.

Early prostate is usually either surgically removed or hit with some radiation. I am seeing a radiation onc Monday, and a urological surgeon the week after for opinions. My Gleason Score (a rating of how aggressive the cells are) is very low, indicating indolent/lazy disease.

max

Aaron's picture
Aaron
Posts: 239
Joined: Jun 2012

i expect there are better ways to get your kicks than to send oncologists kids to college max, but to each their own brother;) I'm sure glad they got to it early and thinking back to the stories you told me about the last go around this should be a walk in the park, relatively speaking. Be well my friend

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

 

You are exactly right, Aaron. Compared to six months of r-abvd, one surgery, or a few radiation sessions should seem pretty mild. I told my adult kids, when they asked about treatments,

"Oh, this will be about like getting a flu shot at the drug store compared to the last cancer experience."

I has laproscopic removal of my gall bladder when I had my port removed several years ago. I recall that when I woke up in recovery the pain was vicious, and I was yelling for some meds. My thought was "This is much less pain than an open incision?  Liar !" The docs brag about less scarring. What they don't ordinarily mention is that you are hung with your head tilted down, and then your abdomen is pumped full of gas (I believe it is nitrogen, or some other inert gas), so that a camara can be moved around inside. No wonder it hurts ! You have been balooned up like the Michelin man !  I am not going to be on Baywatch any more, so a little scarring does not matter to me.

Removal of the prostate is actually pretty tricky, whether done by laproscopic or open incision, and would take about a week to start to recover from, but I need some catch-up time for old movies and TV classics anyway.  It is very tightly hidden between other organs. I read recently that until the late 1800s, anatomists did not even know that there was such a thing as a prostate; it was believed before then to be some sort of appendage to the bladder.

If I go radiation an issue is that it can take years thereafter to determine if there is relapse, because the radiation makes the PSA levels randomly drift up and down, and they become hard to interpret.  I might be gone from excessive bacon consumption by the time that resolves !

max

Sten's picture
Sten
Posts: 162
Joined: Apr 2013

Max,

I wish you good recovery from this new disease.

Sten

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Max, as soon as I saw the title of your post, I knew you were facing another cancer journey. That is not what I had hoped for. I am glad it is easily treatable, but I'm sorry you have to go through more treatment. 

I understand that you need to post about the nuts and bolts (tee-hee) at the prostate board but remember that we "lymphomaniacs" care about you and want to know what treatment you decide on and how is it going. 

And of course, I will remember you in my prayers.

Hugs,

Rocquie

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
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Joined: May 2012

 

Thanks dearly, Rocquie and Sten.  Semper fi, do or die (planning only the former, not the latter !)

 

max

Jeff148's picture
Jeff148
Posts: 183
Joined: Apr 2014

!

Jeff148's picture
Jeff148
Posts: 183
Joined: Apr 2014

You are one positive person.I'm glad they caught it early!! Very treatable. I will continue to pray for you. My recovery continues. I have a CT scan in December. My hair is growing in a strange fashion...a natural pho-hawk. Hair on both sides of my head is growing toward the middle. At least my kids think its cool. It was stick straight before. At least you won't ose your hair again!!

Jeff

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Your hair will be back to near normal in no time.  My hair came back very fine at first and slightly different texture and definitely much darker but now, alas, the grey is returning :).

It was strange not being able to "lather up" in certain places but thank goodness, I can do that again too ;).

 

Cheezburger animated GIF

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
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Joined: May 2012

My cats saw this and all want doos like this now Jim !

When I was in England in the 80s at the height of the punk craze, the guys all had stuff like this on their heads. Some had spikes standing a foot or more high.

max

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
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Joined: May 2012

Jeff,

Yup, radiation to the pelvic region will not cause hair loss on the head.  But it can cause localized hair death. Years ago a friend had a serious cancer inside his nose and was being treated at Emory in Atlanta. Told me he got radiation one afternoon, and the next morning half his beard had fallen out !

You may have read somthing I have written here a few times: My facial hair came back before the hair on my scalp, but in a bizarre fashion. Beard would grow on one side only for a few weeks, and then go away on that side of my face, and then grow only on the other side for a few weeks, back and forth for a month or two.  I asked my family doctor about it and he said that he could not explain it, but added that neither could anyone else.  It later grew normally.

"Balance" is what we seek !

max

ThisisLife's picture
ThisisLife
Posts: 101
Joined: Jul 2012

I'm sorry to hear that Max.  But, you are a fighter and I have no doubt this is just another blip on the screen and you will come through it just fine.   Sending you a big 'ol hug!

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

This is Life,

Received hug (it was extra-sweet! ).    I used to be an amature rosarian, but they are a very high-maintenance flower.

Attached is the best version of a great "rose" hit, what with Conway's twang and hint of sadness.  A bouquet of rose photos with it....

 

Keep blooming ! 

www.youtube.com/watch?v=fhw7MjSMkAQ&list=RDfhw7MjSMkAQ

.

 

girliefighter's picture
girliefighter
Posts: 232
Joined: Mar 2013

Max,

Thinking about you

XXXOOO

Carie

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

 

Carie,

Always loved that pink glove pic you use here. It cheered me up just a moment ago. 

Been fighting insurance "Wellness" requirements. I go to some sort of doc a couple times a month for this or that, all within the same health system, and they all have my medical records online, but the "Wellness Coordinator" is whining because I have not sent them my blood pressure !  They wanted me to take a PSA recently, while I am seeing a urologist for prostate cancer !  These petty clerks are more demoralizing than having a disease itself.  Without small-minded, petty people, however, brilliance and character would not stand out as the rare traits that they are.

Bless you; I love it when you check back in with the the gang.  Study, study, study !  I worked for years in academic advising at a good college, and health-related professions are absolutly the best thing to enter today,

max

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Hey there Max ,

I haven't been on forum for a while, having family crisis. Nothing God can't handle.  

 

Yep you will sail threw this, I'm sure. 

You are so strong and such a fighter this 1st stage lazy junk is no match for you. 

I'm keeping you in prayer and positive you can and will overcome. 

I am pulling for you.

Hugs.

 

~GG~

 

illead's picture
illead
Posts: 847
Joined: Aug 2012

"The Rose" was beautiful.  Thank you for that.

Becky

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

GG,

Sorry you are having family "drama." 

My father was brilliant and successful, but an alcoholic. My mom was highly creative and functional (an accomplished interior decorator), but paranoid schizophrenic. My brother is a "clean" alcoholic.  My adopted sister has had a sociopathic personality disorder since early childhood.   I know drama !  I was in a prodigy study at a state university as a child, but flunked out of high school.  I hold an M.A. today, and know several languages.

This sort of summarizews it:  https://www.youtube.com/watch?v=0e_HtjZS8SQ   "I'll be OK" is the key line in the song.   You be OK too.

Bless you, and I can feel your kind sentiments and prayer,

max

Lifeisbeautiful's picture
Lifeisbeautiful
Posts: 50
Joined: Jul 2014

Hi Max, 

This is not what I was hoping to find out when I came to read new posts on this forum. I'm sorry and I'm sad but also very optimistic. You almost sound like my oncologist when you talk about the prostate cancer. When I first saw him he said that it's not good news to hear you've got cancer but I'm so lucky because I got the best cancer anyone can get! So I often joke about it now and say "I'm so lucky!". At least you won't have to go through chemotherapy again and hopefully it would be like a breeze for you. Whishing you best of luck (we all need it!) and just go get this monster and kill it again because you know you can and you will do it!

Bill_NC's picture
Bill_NC
Posts: 128
Joined: Jan 2013

MAX you are in my thoughts and prayer. Wish you all the best. Take care Buddy.

Please don't mind me calling you Buddy, because you and Jim were the first persons to respond to my first post.

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
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Joined: May 2012

Bill ! You and me, BBF ! ("Best Buddies Forever !")

Thanks for your kind wishes,

max

Lifeisbeautiful's picture
Lifeisbeautiful
Posts: 50
Joined: Jul 2014

Hello Max,

I rarerly come to this forum lately but always curious to find out the news about people like you Max or Jeff, Rocquie, Carie, GG, Amanda and there might be others I can't remember their names right now. Unfortunately when the news aren't good, it affects me more than I would like and I prefer not to get sad these days. It is getting harder and harder (just had my chemo # 10 today and for the first time I cried when the nurse inserted the needle into the port because it was very painful and I think I can't tolerate pain as well as I used to anymore, felt very embarrassed ) but the worse thing is that I find I feel a little depressed these days and I hate it since I'm such a positive and optimistic person by nature and this is not me!!! :( So you see, I still had the need to come here and find out about you guys and complain about me. I wanted to know how are things with you Max and what's the progress? It can't be easy to go through another cancer but you seem to be be a very well informed smart person and very strong ( at least that's how I think about you) who will go through this with lots of optimism . Keep fighting and please let us know about your journey .

Best of luck Max! :)))

Natasha

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

Hang in there, Natasha.  I'm glad you have checked back in, since your friends here might be emotionally supportive of you in your trials, even when you are not really aware of it.  If you want to complain "about you" here at any time, DO IT !

I remember when I was near the end of my 12 infusions of r-abvd.  My reaction may have been a little different from what most seem to feel, which is relief. Finishing somewhat frightened me, and I was actually asking if the doctor might not think that adding a few more treatments might me a good idea.  I do know that the first PET following the last scheduled round of chemo is worrisome for most people, at least if what I read here is indicative.

Since you asked, I did quite a bit of research on how to best approach first-line treatment for early-stage prostate cancer, and the choices are (for most guys):  (1) "watchful waiting," or monitoring the disease frequently while doing nothing in terms of treating; (2) radiation; and (3) surgical removal.   Choices 2 and 3 are very close to identical in curative outcomes, and the decision comes down to a variety of differing side-effects.  

You will note that I did not mention chemo. As I have written before, chemo is non-curative for prostate cancer, and is usually used only in stage 4, after numerous other therapies have failed. Thus, this organ cancer is a whole different world from lymphoma and leukemia, where chemo is usually the only game in town.

I decided on surgical removal ("radical prostectectomy"). I get laproscopic in late January.

As noted, I am quite ok with this. The likelihood of curative effect is very high, and it is unlikely I will ever have this particular worry again.

Since not everyone reads all of a thread, I will also repeat that prostate cancer is wholly unrelated to lymphoma, and this is a secondary cancer, not a relapse of any kind.

I am not going to post a link, but the Pretenders had a great hit in the 80s entitled I'll Stand by You.  It is about someone being there for another in a dark time. I hope you might get inspiration from listening to it.

Standing by you,

max

 

.

Lifeisbeautiful's picture
Lifeisbeautiful
Posts: 50
Joined: Jul 2014

Thank you Max!

Your encouragement is greatly appreciated and I promise to "hang in there" even when I don't feel like it. Yesterday I slept most of the day and missed out "our Saturday Movie Night" with my husband (we rent a DVD on Saturdays and have a light dinner together) because I fell asleep at around 8 pm and only woke up this morning at 5 because my baby boy was babbling away (he is almost 6 month old now). The fatigue is so bad and I just feel exhausted. This weather and the sun going down so early is not helping either but the end is near, only 3 more weeks!!! :) I must remember to stay strong and not give up now. Unlike you Max, the last infusion felt wrong in the sense that I'm so convinced that my cancer is cured and I'm poisoning my body for nothing and I feel awful about it. I might be in denial or over optimistic but this is how I feel....I AM CANCER FREE!

I'm glad you don't have to go through another chemotherapy again and I hope your surgery is not too painful and very successful. When are you planning the surgery?

Have a happy and sunny Sunday!

Natasha

 

amanda_christy's picture
amanda_christy
Posts: 60
Joined: Aug 2014

Its nice to know we are all thinking of each other, even when we dont say.... :-) we aren't alone in this.

Im so sorry ur experiencing pain.... It not easy to go thought 12 infusions!!! I had 6 infusions and cried at the last one. Don't know y really! lolz.

Know that u are amazing and very very brave. U'll b back to ur old self again as soon as u get through the last 2 infusions hon, hang in there :-))

Wat ur experiencing i call 'meltdowns'. We're all having them! :-D

Amanda

Lifeisbeautiful's picture
Lifeisbeautiful
Posts: 50
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Thanks Amanda!

Your words are so sweet and I'm just amazed by how much support and understanding I get on this forum. Unless you go through what we go through, I don't think you'll be able to understand. People might feel sympathy or emphaty but will never be able to understand completely but I don't blame them. 

I'm glad this is already over for you and I wish all the best but mostly stay healthy and be happy!

Natasha

Jeff148's picture
Jeff148
Posts: 183
Joined: Apr 2014

Natasha,

I remember what you are going through. There is a little excitement to be nearing the end, but the soreness, nausea, fatigue, etc, make it tough to enjoy the moment. For me, it was one day at a time. Sometimes, one hour at a time. I loved sleep, because it made time go by fast. However, I forced myself to get out of my nest to get the blood circulating. My nest was my corner of the bedroom. One of the best things I did was completely clean and change that area of my room. You are going to get through this!!! These experiences make us stronger and more empathetic. Everyday is a gift!!

Lifeisbeautiful's picture
Lifeisbeautiful
Posts: 50
Joined: Jul 2014

Hi Jeff!

Nise to hear from you. I was actually wondering how you're doing and how is life without chemo and cancer? How long does it take to start feeling better and closer to normal?

Thank you for your encouragement, it helps to know there are other people who went through all of this (fatigue ,pain, muscle weakness, numbnes, weird taste, depression and maybe much worse) and there is an end to it! Soon, so soon!!!

Take care and enjoy your new life!

Natasha

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

I've had the flu three days. Last week the CDC announced that this year's shot is not very effective due to a transformation of one of the most common strains. And I had the vaccine about a month ago.  It is still recommended that most people get it nonetheless.

I just noticed that Natasha had asked me a while back when my prostatectomy (prostate removal) is, but I did not answer her. January 28, then back home the next day.  How easy is that ?

Lifeisbeautiful's picture
Lifeisbeautiful
Posts: 50
Joined: Jul 2014

Funny you posted the day I was wondering about you. ;) And yes, it's so fast compare to almost 6 months of chemotherapy!!! I hope all goes well for you. 

Best wishes,

Natasha

Anonymous user (not verified)

http://www.bbc.com/news/uk-scotland-glasgow-west-18494725

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

Thanks for the tea link, GKH. I couldn't  tap it open but will type the link in manually this afternoon.

The fact that it is from Scotland reminded me of my trips there to Sub Base Dunoon, referred to by all of the Americans as "Holy Loch."  I bought some  fine coffee cups there once, and so loved them that I ordered more online. The company is Dunoon Ceramics, still in business.  All of the cups have British themes. 

 

http://aboutsubs.com/holy-loch.htm

http://www.dunoonmugs.co.uk/

max

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

 

I went and did my two-month follow-up with the urological surgeon this morning, in reference to my prostate removal in late January.  I had my PSA blood draw a week ago, and he gave me the results:  "0.0", or "perfect."

In lymphoma language, this is equivalent to "NED" or "complete remission."  The doctor said that based upon the particulars of my case the odds of me never seeing prostate cancer again now are 90%.

As I have stated, prostate cancer is totally unlike lymphoma in virtually every way.  For one, CTs and PETs are mostly worthless, and very seldom used.  Neither can usually spot disease, unless it is highly advanced.  The only clinical proof of disease (after removal of the gland) is PSA in the bloodstream.

Surgical removal for Stage 2 disease is somewhat aggressive/radical, but I was just not in any mood to play with this. There are significant side-effects to surgery that can take years to recover from, but as I have had as a motto for years, I'd rather have side-effects than cancer.

I am thankful, as you can imagine. "Round 2" is now over.

max

Jeff148's picture
Jeff148
Posts: 183
Joined: Apr 2014

Awesome news and an answer to prayer!!! Adding someone to the prayer list is sobering; taking someone off the list is awesome!!!!!

Jeff148's picture
Jeff148
Posts: 183
Joined: Apr 2014

:)

NANCYL1
Posts: 289
Joined: Jun 2012

Max:

I have not been on lately.  Have been dealing with other medical issues which make me a triple boarder, I guess.  I wrote a note to GG on the board.   Wonder how she is.  Sounded very worried about a spot on her cheek.  She has not posted back.

Good to hear that you are ok.

Nancy

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

Thanks for mentioning GG, Nancy. I will look at what she wrote; I can't do much internet time on weekends either, working Friday through Monday nights every week.

Jeff -- Can ya leave me on the list, at least for an occasional prayer ?  It's obviously working well !

 

max

 

Jeff148's picture
Jeff148
Posts: 183
Joined: Apr 2014

You are back on :)

anliperez915's picture
anliperez915
Posts: 772
Joined: Sep 2011

Max that's awesome news!
I'm really happy that you're ok and you're moving on from this. Take care

Sincerely,
Liz

illead's picture
illead
Posts: 847
Joined: Aug 2012

We are so happy, that is the greatest news.

Becky & Bill

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3329
Joined: May 2012

 

An article for everyone's "Weird Chemo News" files.  An RN told me once that she knew a patient that chemo cause one eye to change color, but the other remained its original color.  This fingerprint issue may be worse...

 

http://abcnews.go.com/Health/woman-denied-bank-transaction-chemo-erased-fingerprints/story?id=30498992

 

.

Mary N.
Posts: 100
Joined: Jun 2013

So glad you are doing well!  You are correct that there certainly side effects from the surgery but much better than the cancer.  Prayers for continued progress!

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