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Jue
Jue Member Posts: 80
in Ovarian Cancer #1

Hi everyone , when I reported debulking surgrey went well think I was jumping the gun a little , my surgeon said all visible cancer was removed , I had a ct scan 3 weeks after and then to see oncologist the scan reports still show significant abnormalities and what looks like 2new areas of concern ca125at 77...all that in 3 weeks also fluid taken is stage 3 aggressive , I came away so down felt like this disease is taking me over , I went for chemo and the next one in 3 weeks they are going to add avastin to the carbo /taxol to see if it helps also when the chemo over they want me to take avastin as a way of hopefully keeping recurrance at bay , I haven't even got to any talk of remmision yet . I'm just devastated at this disease how do you lovely ladies on this board get through years of this , I think I'm a tough cookie but I'm not so sure . My husband and family are great but no one knows those feelings unless they walk in your shoes as my mum used to say.

 

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  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #2
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    Still have good numbers

    sorry you are going through this..your numbers are still good...I am sure you will get to remisson ...it takes awhile...but so worth the wait. You are very strong ...it is ok to have bad days. I have been on chemo three years..no breaks..hoping for one soon. Live your life...have fun..eat cake if you want. Don't let this disease take away your spirit...stay strong...Val 

  • Jue
    Jue Member Posts: 80
    #3
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    poopergirl14052 said:

    Still have good numbers

    sorry you are going through this..your numbers are still good...I am sure you will get to remisson ...it takes awhile...but so worth the wait. You are very strong ...it is ok to have bad days. I have been on chemo three years..no breaks..hoping for one soon. Live your life...have fun..eat cake if you want. Don't let this disease take away your spirit...stay strong...Val 

    Thanks val

    Thanks val , sometimes u need a reminder to pick yourself up , I think Ive been having a few bad days just getting over operation and then results not what I hoped for . How have u managed so long on chemo val  ? When I asked about being on chemo after the 6 sessions 3before surgery and the 3 I'm just having now they don't want to give anymore.....  just avastin , we have to apply for funding here in England and I've got it for a year more if it works , I've only seen a few good responses to it though .? Has anyone done well on it and had decent remmision ? .

  • seatown
    seatown Member Posts: 261 Member
    #4
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    One day at a time. . . .

    Sorry to hear things did not go as you thought. Let me just repeat the thought that you gotta stay with it--things will get better!

    I have been in a situation somewhat like yours. In Feb. of 2013 I had surgery after 6 months of chemo. (I did not have debulking surgery 1st.) The surgery was to remove any remaining traces of cancer. When I awoke from anesthesia, I was so happy I cried when I was told, "All visible cancer removed." I wasn't paying close enough attention, because later I learned biopsies taken during surgery came back positive for cancer. So it was back to chemo -- the same Carbo/Taxol I had been taking in 2012, plus Avastin. 

    Sorry to say the Avastin did not work for me. I took Carbo/Taxol March to May 2013, plus Avastin March to December 2013. Soon after the Carbo/Taxol compoments were over & I was on Avastin only, my CA 125 number started to climb out of the normal range, where it had been for some months. By early this year, it was back to chemo for me--this time, Carbo only, and my CA 125 is heading downward again though not yet normal.  

    So I have been on some kind of chemo almost continuously since my diagnosis 2 years ago. Have lost my hair twice; otherwise I've tolerated chemo quite well. From sheer terror at the time of my diagnosis, I have been able to lead a mostly normal life outside of all the chemo dates. I hope it will be the same for you. Keep fighting!

    FYI, I've written about my cancer journey here: http://www.CaringBridge.org/visit/CaroleSeaton

     

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #5
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    seatown said:

    One day at a time. . . .

    Sorry to hear things did not go as you thought. Let me just repeat the thought that you gotta stay with it--things will get better!

    I have been in a situation somewhat like yours. In Feb. of 2013 I had surgery after 6 months of chemo. (I did not have debulking surgery 1st.) The surgery was to remove any remaining traces of cancer. When I awoke from anesthesia, I was so happy I cried when I was told, "All visible cancer removed." I wasn't paying close enough attention, because later I learned biopsies taken during surgery came back positive for cancer. So it was back to chemo -- the same Carbo/Taxol I had been taking in 2012, plus Avastin. 

    Sorry to say the Avastin did not work for me. I took Carbo/Taxol March to May 2013, plus Avastin March to December 2013. Soon after the Carbo/Taxol compoments were over & I was on Avastin only, my CA 125 number started to climb out of the normal range, where it had been for some months. By early this year, it was back to chemo for me--this time, Carbo only, and my CA 125 is heading downward again though not yet normal.  

    So I have been on some kind of chemo almost continuously since my diagnosis 2 years ago. Have lost my hair twice; otherwise I've tolerated chemo quite well. From sheer terror at the time of my diagnosis, I have been able to lead a mostly normal life outside of all the chemo dates. I hope it will be the same for you. Keep fighting!

    FYI, I've written about my cancer journey here: http://www.CaringBridge.org/visit/CaroleSeaton

     

    Dear Jue

    We know how discouraged you feel and how this journey is a rollercoaster of emotions.  Please know however that it is very possible that you can achieve remission or NED (no evidence of disease).  Sending lots of prayers and positive thoughts your way that the chemo kicks your cancer's butt to the curb!

    Hugs,

    Kelly

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #6
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    Jue we all have gone through

    Jue we all have gone through the stage of defeat and at times devastation because of this disease. It is ok to morn the changes this disease has impacted upon you. It does get better. My best advice is ....

    1. get a facial theynare amazing

    2. Start walking. Thenexercise helps reduce the fatigue.

    3. Learn to meditate to distract you on those days that the disease is overwhelming.

    4. Cry if you want to it is ok.

    5. Hug younsupport people...it helps

    6. Continue to have hope. There is a lot of research going on.

    7. Take one day at a time.

    Kim

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #7
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    Thinking of you.

    Dear Jue:

    Just wanted you to know I am thinking of you and sending you comforting hugs your way!

     

    Kathy

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #8
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    You can do this!

    Jue,

    I am so sorry that you are going through such a rough time emotionally.  Don't give up!  The women here know what you are going through and will support you on your journey.  It is still early in your treatment and much can be done to help you.  I am wishing you the very best outcome.

     

    Hugs to you,

    Cathy

     

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