CSN Login
Members Online: 22

You are here

Hi, Everyone...Newly Diagnosed

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Hi, Everyone...I had my right kidney removed on May 22nd 2014 at MD Anderson. I had a 6cm (in greatest dimension) Clear Cell tumor. The path report stated 6cm Clear Cell Stage 1 Grade 2 confined to kidney.  Also, no invasion into renal vein, renal sinus or perinephric adipose tissue. No lymphovascular invasion indentified. Margins of resection (ureteral, vascular,and soft tissue negative for tumor. Primary Tumor: pT1b and Regional Lymph Nodes: pNO. It states there is no gross extension in to the perinephric fat and does not extend to Gerota's fascia. The adjacent kidney parenchyma is unremarkable. The pelvicaliceal system is smooth and devoid of any lesions.  I was wondering if anyone knows if confined to kidney means encapsulated?

 

Djinnie's picture
Djinnie
Posts: 947
Joined: Apr 2013

Hi there, 

Welcome to the site, sorry that you have had to join us. This is a good place to come if in need of support. I am pleased to hear that your cancer was caught in good time, and that everything went so well with the surgery. All in all very successful with the tumour being confined to the kidney, the meaning of fully encapsulated is within the kidney.

Heal well:)

 

Djinnie

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Hi, Djinnie...Thanks for the info!! And, Hugs right back to you..:)

cheatinlil's picture
cheatinlil
Posts: 166
Joined: Jun 2014

I can't answer your question but I wanted you to know you are not alone.  I'm new too and just looking to make friends.

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Thank You, Cheatinlil...Appreciate the support. Sending Hugs...:)

Jan4you's picture
Jan4you
Posts: 1168
Joined: Oct 2013

Welcome Pandabear! Glad you found us!

Sounds like it is the same thing as contained within kidney and encapsulated. But maybe others may come on to clarify that more exactly.

Your report sounds good and very hopeful! Glad to hear that.

 

How are you feeling now? Healing up well?

Stay well my dear,

Jan

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Thanks, Jan!! I am doing great. I had my surgery on a Thursday and was home by Saturday and out shopping on Monday!! I only had to take Tylenol for a few days afterward. So, I am thrilled with my recovery!! Thanks for responding and sending Hugs your way..:)

icemantoo's picture
icemantoo
Posts: 2640
Joined: Jan 2010

Panda,

Congrats on the excellent path report.

Although everything is fine 6cm carries a low risk of concerns in the future, Make sure you do all the follow up scans they suggest.

 

 

Icemantoo

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Hi, Icemantoo...Thank you and I promise I will go to all my scan appointments...:)

aamdsi
Posts: 284
Joined: Apr 2014

To say "hello and welcome" for this is a place I bet you never hoped you'd be.

BUT that being said - it is a place of support, opinions, coaching, laughs and virtual hugs.  It's a wonderful place where all "know" what you are going through and thus not alone.

Glad you are recovering well, just remember to go at it slower than you want to.  As has been repeatedly said to me, the recovery is for the long haul.

Also so glad that your results were so good 8-)  A happy step in the right direction!

Laurie

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Hi, Laurie...Thanks and sending Virtual Hugs your way...:)

Jojo61's picture
Jojo61
Posts: 1278
Joined: Oct 2013

Glad you found us, and glad your surgery went well. It is a great group here...they are the silver lining of all of this kidney stuff!

Take care of yourself and keep us posted on how you are doing!

Hugs

Jojo

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Hi, Jojo...WOW...You're Gorgeous and what a smile!!...:)....Thanks for responding. You're right. Everyone seems so nice. I will take care of myself and you do the same. Hugs right back at ya..:)

Galrim's picture
Galrim
Posts: 305
Joined: Apr 2013

And since you have no major independant prognostic features your risk of recurrence is very low. Congratulations on that :-)

Your histology is almost similar to mine though I see your tumor and raise with 1.7 cm :-)

/G

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Hi, Galrim...HaHa..on the 1.7..:DDD...I'm happy to see that you are doing great after 4 years. That's gives me some peace. I have been really scared. So afraid that it will come back. I'm not sure how to overcome that fear. I suppose time will help.  Thanks for commenting and sending Hugs your way...:)

twinthings's picture
twinthings
Posts: 409
Joined: Jun 2013

Hi Pandabear and welcome! 

It sucks for you to have to get to know us, it means we have something in common...RCC, and in our case, Clear Cell.  I'm happy to hear your surgery was a success and you are cancer free.  I too, am cancer free although I have a hard time wrapping my head around it still.  My surgery was May 2013.  I still think about it every day.  Like you, I was stage 1, grade 2 with clear margins, yet, I can't seem to quit worrying that it will return.  I wish I could offer some advice as to how to overcome the fear of recurrence but, I got nothin'.  I keep hearing time will help.  We shall see.

I traded my urologist in for an oncologist and instead of doing the standard urologist recommended chest x-ray every 6 months, I have the oncologist recommended chest, abdomen and pelvis ct's every 3 months.  That has definitely given me some peace of mind.  I've had 4 ct's since my nephrectomy, 3 of which the doctor was watching an enlarged node in my lungs.  The 4th ct, last month was good, so I will now have my ct's at 6 month intervals.  So stay on top of your follow ups and make sure you are getting the proper tests.  I had to fight for it but, that's OK.  I'm worth the fight and so are you!

Best of luck to you!

Sindy

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Hi Sindy...Sighhh, Yeah, Only 22 days from diagnosis to surgery for me. It just doesn't seem real yet. I had no symptoms and it was discovered by accident. So, I'm still in shock! It's nice to talk to someone who had nearly the same diagnosis as me. I am a patient at MD Anderson so I'm hoping that I get excellent advice and aftercare. But, I will make sure that I get all the appropiate scans on time. So happy to hear that your last CT was good. Stage 1 Grade 2 is supposed to have a good prognosis. I see you had a recent Hernia surgery. I hope you are feeling better today. Sending you Hugs and Positive Vibes for a speedy recovery. Take Care, Donna

aamdsi
Posts: 284
Joined: Apr 2014

Had the same thing happen with them finding the tumor totally by accident, and mine was also T1b (6cm) with clear edges. But now 3.5 months out and all is pretty good.

We are the lucky ones since they did catch it and now on the other side of the whole thing.  Yes, dealing with the fact we have cancer is HARD.  Wish I had tricks or such that will help ease that- but I still am fighting those same "demons".  I will say that resuming my normal routines have helped.  Running and such makes me feel like I am like I was before I found all this out. 

It's the nights that are tough.

This board helps.  People's senses of humor here are priceless! 

You're "tough" and have made it this far. Since you conquered this - now imagine what other marvelous things you can do! 

 

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Hi, Aamdsi...You're absolutely right!! Getting back to a normal routine helps. And, I'm slowly doing that everyday. It gives me some comfort in knowing that I'm not alone and that there are people like you that understands exactly what I'm feeling. Take Care and Hugs from Texas...:)

aamdsi
Posts: 284
Joined: Apr 2014

From way up here in Michigan 8-) 

Maybe send you some rain too?

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

@aamdsi...I'm on the coast. It's not too dry here yet. Maybe send some in August..That's if we don't get a Hurricane!!...:/

foxhd's picture
foxhd
Posts: 3054
Joined: Oct 2011

Pandabear and cheatinlil, everyone starts as a newbie. We all needed advice and support. I've become internet close ( as having never met in person) to many members. It's one thing to be on a forum of your interests and another to be on a forum because you are scared to death. But we do this together. I am thrilled that I am still  here. If I was asked why I still post when others drop off, I will say that I am here because I am living proof that we can prosper and not be cancer free. We all share the load, the love, and the Karma.

Pandabear1011's picture
Pandabear1011
Posts: 110
Joined: Jun 2014

Thank You, Fox. You are an inspiration!!...Sending you hugs from Texas...:)

aamdsi
Posts: 284
Joined: Apr 2014

putting on my schedule now, "Send rain to Sindy in August"

Sure can't use some now?  We had ducks swimming in our backyard last week.  Even my Lab says ENOUGH!

You doing better this week?

Subscribe to Comments for "Hi, Everyone...Newly Diagnosed"