Olfactory neuroblastoma... Plz help

Khulud
Khulud Member Posts: 4
in Head and Neck Cancer #1
I checked my husband MRI last night and this what i found

Heterogeneous tumor along both sides of cribriform plate with solid and cystic component as described above.
The appearances favor an olfactory neuroblastoma/esthesioneuroblastoma.
Neurosurgical consultation and further evaluation with MIBG scan is recommended.


Since then i couldn't sleep, I'm 6 months pregnant with little girl
Im sooo depressed and scared i still didn't tell him about what i found
But i arranged appointment with neurosurgeon tmr, and still waiting for the biopsy result
Plz plz anyone had it or know some one got the same kind of cancer plz respond to my post
Im scared and don't know what to expect
I read that the surviver rate is high but still i need to hear from people

Thank you

Comments

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #2
    Khulud, i'm a little

    Khulud, i'm a little confused.  have you been told you definitely have cancer or are you waiting on biopsy results?  if you have cancer, i think you should tell your husband.  you will need his support as you go thru this journey.  be sure your docs know you are pregnant.  that is critical.  i had different cancer but there are some here who had what you describe and i'm sure they will reply when they see this.  it will be a rough ride but you can do this.  there are many of us survivors here as living proof.  when is your appointment?  is that when you get the results?  you need to write down all your questions and possibly take someone to the appointment with you to help you listen and understand what is said.  try to calm down so you can think of your questions and be prepared for the appointment.  please let us know what your find out.  i'm sure the others will help you with this post very soon.

    God bless you,

    dj

  • Khulud
    Khulud Member Posts: 4
    #3
    debbiejeanne said:

    Khulud, i'm a little

    Khulud, i'm a little confused.  have you been told you definitely have cancer or are you waiting on biopsy results?  if you have cancer, i think you should tell your husband.  you will need his support as you go thru this journey.  be sure your docs know you are pregnant.  that is critical.  i had different cancer but there are some here who had what you describe and i'm sure they will reply when they see this.  it will be a rough ride but you can do this.  there are many of us survivors here as living proof.  when is your appointment?  is that when you get the results?  you need to write down all your questions and possibly take someone to the appointment with you to help you listen and understand what is said.  try to calm down so you can think of your questions and be prepared for the appointment.  please let us know what your find out.  i'm sure the others will help you with this post very soon.

    God bless you,

    dj

    Hi Dj.
    Thanks for your replay

    Hi Dj.

    Thanks for your replay and support, im sorry if my post is littile confusing, i was writing while im crying, im do not have cancer it is my husband but i have access to the result since i work in the same hospital 

     

    the biobsy result still in progress since 9th of jun

     

    the neurosurgeon called me today, he told me that we need to wait the biopsy result before deciding anything or come to conclusion, he told me that my husband might need chemo or radiotherapy in combination with surgery 

    God bless you 

  • corleone
    corleone Member Posts: 312 Member
    #4
    This form is extremely rare,

    This form is extremely rare, so you probably won’t get too many replies. I can’t help you either, since I had nasopharyngeal carcinoma. However, I did see some of the forum members with this disease, posting a while ago: jedsnearlythere, dlygoblue, Sarahss, ValerieMo. Others could also chime in, but most of them are not very active in this forum.  What you can do is try and search by keyword (e.g. esthesioneuroblastoma, or similar) in the forum, see what you can come up with.

    Once you have a clear/confirmed diagnosis and treatment, determined by the oncologists, we can help you/your husband coping with the treatments/side effects, because treatment is pretty similar, not too many choices.

     

  • Khulud
    Khulud Member Posts: 4
    #5
    corleone said:

    This form is extremely rare,

    This form is extremely rare, so you probably won’t get too many replies. I can’t help you either, since I had nasopharyngeal carcinoma. However, I did see some of the forum members with this disease, posting a while ago: jedsnearlythere, dlygoblue, Sarahss, ValerieMo. Others could also chime in, but most of them are not very active in this forum.  What you can do is try and search by keyword (e.g. esthesioneuroblastoma, or similar) in the forum, see what you can come up with.

    Once you have a clear/confirmed diagnosis and treatment, determined by the oncologists, we can help you/your husband coping with the treatments/side effects, because treatment is pretty similar, not too many choices.

     

    Thank you corleone fir ur

    Thank you corleone fir ur replay im new to this form im going to find the way to look over the names u gave to me

    I start having littile hope

    i pray for every one here plz pray for us

  • hwt
    hwt Member Posts: 2,328 Member
    #6
    corleone said:

    This form is extremely rare,

    This form is extremely rare, so you probably won’t get too many replies. I can’t help you either, since I had nasopharyngeal carcinoma. However, I did see some of the forum members with this disease, posting a while ago: jedsnearlythere, dlygoblue, Sarahss, ValerieMo. Others could also chime in, but most of them are not very active in this forum.  What you can do is try and search by keyword (e.g. esthesioneuroblastoma, or similar) in the forum, see what you can come up with.

    Once you have a clear/confirmed diagnosis and treatment, determined by the oncologists, we can help you/your husband coping with the treatments/side effects, because treatment is pretty similar, not too many choices.

     

    Sorry to hear

    My cancer was of the lower jaw so not the same. Most of us have had surgery, rads and/or chemo so if that is your husband's course of tx, we will help you and your husband through.

    God Bless

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