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May 21, 2014 - 1:45 pm
If you all remember when I had my recurrence back in February there was a total of 7 lesions, 5 on the chestwall and 2 next to each other in my liver. The scan last week showed that 3 of the chestwall tumors are gone, 1 is the same size, and 1 has shrunk to half its origonal size. The liver only shows the on larger tumor which has grown some. The 2 liver lesions were right next to each other so it is possible that it was always one tumor or they fused together. So I am back where I started from with just 3 tumors down from 7. I am pursueing surgery again since they were going to operate when there was origonally only 3. If not we are going to do Y90 on the liver and possibly SBRT on the 2 chest wall tumors. Update:My surgeon said he could operate but it would be risky due to the size location and the fact that they took so much of my liver last time. He would be more comfortable if i did y90 first to hopefullyshrink the tumor. Tuff decision. They should have taken the tumor out when it was tiny 6 months ago or 3 months ago when they stopped the surgery for 3 additional spots that arent even there now. I emailed my oncologist and left a message with the interventional radiologist but nothing will get done until tuesday withe the long weekend which i thought was going to be a good weekend. Oh well like they say its a roller coaster ride. So surgery is a big risk but to me so is y90 just due to the fact if i dont respond and more time is wasted. |
Joined: Apr 2013
Great!!
Things sound like they are turning around for you!!
Linda
Joined: Jun 2013
Great news jeff, maybe that
Great news jeff, maybe that Celebrex is helping out,have you still been taking it? Ha e you fully recovered from the mountain biking incident? Anyways congrats on the positive scan.
kenny
Joined: Oct 2011
I am mostly recovered. I
I am mostly recovered. I actually mountain biked last weekend. Plan on doing a lot this weekend. I am still taking the Celebrex. I am considering pushing my oncologist into doing full on ADAPT therapy and no more IV chemo once I am done with surgery and or radiation. Maybe fly out to see Dr. Lin for a consult. Its a good excuse to go to Seattle. Have you made an appointment with Dr. Lin yet.
Joined: Jun 2013
Jeff, I see dr lin next
Jeff, I see dr lin next Tuesday
Joined: Oct 2011
Awesome. I can't wait to hear
Awesome. I can't wait to hear how that goes for you. How are you recovering from surgery.
Joined: Jun 2013
I'm doing good, a little sore
I'm doing good, a little sore still and trying to get my lung capacity back up.
Joined: Jun 2013
Dear Jeff,
Sounds like the chemo is working and I hope surgery or other more permanent treatment will be possible for you. Take care of yourself, because this is not easy. No crazy biking accidents, let the surgeons do the cutting lol.
Laz
Joined: Oct 2011
I am being very careful on
I am being very careful on the mountain bike. I plan to seriously increase my mileage though to put my physical condition over the top in preperation for whatever si coming up for me. I told my surgeon after the last surgery that a lot of people that I ride with train for mountain bike races but I train for surgeries.
Joined: Aug 2012
So happy to hear this news!
So happy to hear this news!
Joined: May 2014
High five!
So glad to hear this.
Joined: Apr 2009
Good News, Jeff!
So glad things are moving in a positive direction. Hope all goes as planned for the surgery or Y90.
Luv,
Wolfen
Joined: Oct 2011
My liver surgeon responded to
My liver surgeon responded to after reading the scan report and said that he dicussed it with his thoracic surgeon and they would be happy to consider surger again but they need to look at the actual scan on disc. So i am picking up the disc today and delivering it to him tomorrow.
Joined: May 2012
That's great news! I didn't
That's great news! I didn't even realize you could have them in your chest wall. Go get them Jeff!
Joined: Oct 2011
The chest wall is rare but
The chest wall is rare but does happen.
Joined: Sep 2012
Fantastic news! Don't stop
Fantastic news! Don't stop fighting for surgery. Be persistent. I suspect I'm preaching to the choir. Congratulations.
Joined: Jan 2010
Encouraging News!
I am so very glad that you have gotten this encouraging news.
I hope the doctors can do the procedures you mentioned.
Will be keeping you in my thoughts as you work thru this part.
Hugs,
Marie who loves kitties
Joined: Mar 2010
Great news Jeff
Some positive news for you. Good to hear.
Joined: May 2011
Oh, Jeff, this is great news!
Oh, Jeff, this is great news! Praying that surgery will in your near future. Strange the kind of things we wish :)
I so admire your perseverence.
CM
Joined: Oct 2011
I agree. Surgery is what i am
I agree. Surgery is what i am praying for. It really is something what we wish for or willing to go through.
Joined: Jan 2013
Y90
Lisa just had that done. Less invasive. I hope all works out and soon. I always like to get on top of things.
Joined: Oct 2011
Your right. Way less invasive
Your right. Way less invasive but i always get after it as agressive as i can. I have already had 3 liver resections. Sadly it is almost routine now.
Joined: Oct 2011
I am working on setting up
I am working on setting up Y90 now.
Joined: Jun 2012
yay!
great news - congratulations!!
Karn
Joined: Oct 2011
This is excellent news!
Your strength and ability to advocate for yourself is impressive, Jeff. Keep on keepin' on!
Joined: Oct 2011
Its my will to survive formy
Its my will to survive formy wife is what really drives almost to the point of obsession.
BTW I contacted Dr. Lins office and gave them a brief history of my case. They contacted me yesturday and said they would forward it to him. I want to go full ADAPT therapy once i am done with surgery or radiation. I want to find out if it is worth it for me to fly out there to see him to get a specific protocall that my onc and i can follow.
Joined: Jun 2012
Eye of the Tiger, Man!
(a good motivational song from the 80s! Appropriate in your case
Joined: Oct 2011
Yea i am old enough to
Yea i am old enough to remember that song.
Joined: Aug 2013
Keep strong!
I hope everything goes smoothly for you! I'm glad you're getting the surgery. I'm hoping my brother is able to do that eventually.
Joined: Apr 2010
Good
Great that they are shrinking!!!! HOPE you are able to get the surgery. We are about in the same position chemo wise etc. Fingers crossed for best possible senerio for you!!
The liver surgeon told me today that mine have shrunk (need more shrinkage before surgery) so heading in right direction. Hoping this time off to have him take my spleen out next week from chemo doesn't hurt things to badly.
Crap, guess they won't be calling with my surgery date on Monday, forgot the darn holiday!!!
Winter Marie
Joined: Oct 2011
Thats great that your tumors
Thats great that your tumors are shrinking. Keep fighting.