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Positive CT scan results:Update

janderson1964
Posts: 2215
Joined: Oct 2011

If you all remember when I had my recurrence back in February there was a total of 7 lesions, 5 on the chestwall and 2 next to each other in my liver. The scan last week showed that 3 of the chestwall tumors are gone, 1 is the same size, and 1 has shrunk to half its origonal size. The liver only shows the on larger tumor which has grown some. The 2 liver lesions were right next to each other so it is possible that it was always one tumor or they fused together. So I am back where I started from with just 3 tumors down from 7. I am pursueing surgery again since they were going to operate when there was origonally only 3. If not we are going to do Y90 on the liver and possibly SBRT on the 2 chest wall tumors.

Update:My surgeon said he could operate but it would be risky due to the size location and the fact that they took so much of my liver last time. He would be more comfortable if i did y90 first to hopefullyshrink the tumor. Tuff decision. They should have taken the tumor out when it was tiny 6 months ago or 3 months ago when they stopped the surgery for 3 additional spots that arent even there now. I emailed my oncologist and left a message with the interventional radiologist but nothing will get done until tuesday withe the long weekend which i thought was going to be a good weekend. Oh well like they say its a roller coaster ride. So surgery is a big risk but to me so is y90 just due to the fact if i dont respond and more time is wasted.

LindaK.
Posts: 500
Joined: Apr 2013

Smile

 

Things sound like they are turning around for you!!

 

Linda

kennyt's picture
kennyt
Posts: 110
Joined: Jun 2013

Great news jeff, maybe that Celebrex is helping out,have you still been taking it? Ha e you fully recovered from the mountain biking incident? Anyways congrats on the positive scan.

kenny

janderson1964
Posts: 2215
Joined: Oct 2011

I am mostly recovered. I actually mountain biked last weekend. Plan on doing a lot this weekend. I am still taking the Celebrex. I am considering pushing my oncologist into doing full on ADAPT therapy and no more IV chemo once I am done with surgery and or radiation. Maybe fly out to see Dr. Lin for a consult. Its a good excuse to go to Seattle. Have you made an appointment with Dr. Lin yet.

kennyt's picture
kennyt
Posts: 110
Joined: Jun 2013

Jeff, I see dr lin next Tuesday

janderson1964
Posts: 2215
Joined: Oct 2011

Awesome. I can't wait to hear how that goes for you. How are you recovering from surgery.

kennyt's picture
kennyt
Posts: 110
Joined: Jun 2013

I'm doing good, a little sore still and trying to get my lung capacity back up.

lp1964's picture
lp1964
Posts: 1240
Joined: Jun 2013

Sounds like the chemo is working and I hope surgery or other more permanent treatment will be possible for you. Take care of yourself, because this is not easy. No crazy biking accidents, let the surgeons do the cutting lol.

Laz

janderson1964
Posts: 2215
Joined: Oct 2011

I am being very careful on the mountain bike. I plan to seriously increase my mileage though to put my physical condition over the top in preperation for whatever si coming up for me. I told my surgeon after the last surgery that a lot of people that I ride with train for mountain bike races but I train for surgeries. 

jen2012
Posts: 1607
Joined: Aug 2012

So happy to hear this news!

CammieS
Posts: 43
Joined: May 2014

So glad to hear this.

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wolfen
Posts: 1328
Joined: Apr 2009

So glad things are moving in a positive direction. Hope all goes as planned for the surgery or Y90.

Luv,

Wolfen

janderson1964
Posts: 2215
Joined: Oct 2011

My liver surgeon responded to after reading the scan report and said that he dicussed it with his thoracic surgeon and they would be happy to consider surger again but they need to look at the actual scan on disc. So i am picking up the disc today and delivering it to him tomorrow.

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

That's great news! I didn't even realize you could have them in your chest wall. Go get them Jeff! 

janderson1964
Posts: 2215
Joined: Oct 2011

The chest wall is rare but does happen.

Chelsea71
Posts: 1170
Joined: Sep 2012

Fantastic news!  Don't stop fighting for surgery.  Be persistent.  I suspect I'm preaching to the choir.  Congratulations.

Lovekitties's picture
Lovekitties
Posts: 3356
Joined: Jan 2010

I am so very glad that you have gotten this encouraging news.

I hope the doctors can do the procedures you mentioned.

Will be keeping you in my thoughts as you work thru this part.

Hugs,

Marie who loves kitties

YoVita's picture
YoVita
Posts: 590
Joined: Mar 2010

Some positive news for you.  Good to hear.

Cathleen Mary
Posts: 827
Joined: May 2011

Oh, Jeff, this is great news!  Praying that surgery will in your near future.  Strange the kind of things we wish :)

I so admire your perseverence.

CM

janderson1964
Posts: 2215
Joined: Oct 2011

I agree. Surgery is what i am praying for. It really is something what we wish for or willing to go through.

Trubrit's picture
Trubrit
Posts: 5389
Joined: Jan 2013

Lisa just had that done. Less invasive. I hope all works out and soon. I always like to get on top of things. 

janderson1964
Posts: 2215
Joined: Oct 2011

Your right. Way less invasive but i always get after it as agressive as i can. I have already had 3 liver resections. Sadly it is almost routine now.

janderson1964
Posts: 2215
Joined: Oct 2011

I am working on setting up Y90 now.

lilacbrroller's picture
lilacbrroller
Posts: 412
Joined: Jun 2012

great news - congratulations!!Smile

 

Karn

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annalexandria
Posts: 2573
Joined: Oct 2011

Your strength and ability to advocate for yourself is impressive, Jeff.  Keep on keepin' on!

janderson1964
Posts: 2215
Joined: Oct 2011

Its my will to survive formy wife is what really drives almost to the point of obsession.

BTW I contacted Dr. Lins office and gave them a brief history of my case. They contacted me yesturday and said they would forward it to him. I want to go full ADAPT therapy once i am done with surgery or radiation. I want to find out if it is worth it for me to fly out there to see him to get a specific protocall that my onc and i can follow.

lilacbrroller's picture
lilacbrroller
Posts: 412
Joined: Jun 2012

(a good motivational song from the 80s! Appropriate in your case

janderson1964
Posts: 2215
Joined: Oct 2011

Yea i am old enough to remember that song.

UncleBuddy
Posts: 1019
Joined: Aug 2013

I hope everything goes smoothly for you! I'm glad you're getting the surgery. I'm hoping my brother is able to do that eventually. Smile

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Great that they are shrinking!!!!  HOPE you are able to get the surgery.  We are about in the same position chemo wise etc. Fingers crossed for best possible senerio for you!!

The liver surgeon told me today that mine have shrunk (need more shrinkage before surgery) so heading in right direction.  Hoping this time off to have him take my spleen out next week from chemo doesn't hurt things to badly.

Crap, guess they won't be calling with my surgery date on Monday, forgot the darn holiday!!!

Winter Marie

janderson1964
Posts: 2215
Joined: Oct 2011

Thats great that your tumors are shrinking. Keep fighting.

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