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Everolimus update

Suekub's picture
Posts: 137
Joined: Apr 2013

Hi all

haven't posted for a while. Further CT last week (4weeks after previous one) again showed some small increase in size of most mets (pancreas, spleen, liver) which would normally mean that I would be booted from the Meteor trial but there is a component which allows study doctor to make a call to continue on drug if felt that it would beneficial. Decision has been made to continue whilst further investigations into other trials are made. Onc wants to give Sutent a try if next CT shows further progression. Axitinib also an option but comes at a huge financial cost.

I feel that I may never catch a break! Whilst is great to hear about so many who have recently had good scan results I can't help but feel it must be my turn after such a sh****y last 3 years. please forgive my self pity, it is coming up to the 3rd anniversary of both my husband's and fathers's deaths on the 14th.

Best wishes






foxhd's picture
Posts: 3183
Joined: Oct 2011

Everyone sympathizes with you. If that is the right word. You have had a bad streak of luck. But I also see that there are still options and opportunities. Our collective strength is with you.

NanoSecond's picture
Posts: 653
Joined: Oct 2012

Sue.  I am very sorry to hear about this latest news.  Please suggest to your doctor that he try to focus on immune-therapy clinical trials for your next move.  These are the only ones that offer the promise of a long term response and even remission (albeti for a small percentage of patients so far).

Suekub's picture
Posts: 137
Joined: Apr 2013

My onc (female) made a couple if calls while I was with her on Tuesday to try and locate any trials - only possible one at the moment is I believe a phase 1 met inhibitor (??) she is now waiting to hear back from the head of medical oncology at another major Sydney cancer centre. Trials here in Australia are VERY limited.


GSRon's picture
Posts: 1304
Joined: Jan 2013

Oh my Sue.. you sure have had a lot going on... not fair at all...  Hope somehow things improve..  sending prayers your way...


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