Oy what a day....

scatsm
scatsm Member Posts: 296 Member
in Ovarian Cancer #1

Arrived at noon for big chemo day gemzar/carbo/avastin. Had Gemzar last week no problem Except for blood sugar went to 350 next morning. Decided with PCP to use short acting insulin on big chemo days as I have to use decadron for 4 days in a row. At my last chemo for the first occurrence I had a reaction to the carbo so I am now tagged 'allergic' 

so, they start pre chemo drip...aloxi and emend And saline. All good til 6 mins in to Gemzar my heart starts racing and goes to 257 . Nothing they did worked to bring it down. My blood sugar was in the 200's and I'd taken meds and hadn't eaten since 7 am. Finally after 3 hours I got a beta blocker and it worked. They admitted me the hospital and here I will stay til someone figures out whst happens. Had an EKG and all is well.primary suspect is the decadron....it's effect on my normally easy diabetes was scary. They just gave me more insulin and an hour later it's still 350. Yikes!

and I haven't gotten chemo so I will have to start all over again . Grrrrrr!

i didn't think this was going to be easy, but really.

and I am NPO and no one knows why and while they have said they will call the doctor, I am still thirsty and hungry.

couldnt I just be home vomiting and exhausted like I thought I'd be?...

 

 

Comments

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #2
    Darn it, Susan!

    And oy vey is right!  Why couldn't things go easy for you your first big chemo day?  But the best place for you right now is the hospital, with the professionals taking care of you.  They'll figure this out and make the necessary adjustments to allow you to start your chemo.

    Sending lots of positive thoughts your way with big cyber hugs,

    Kelly

  • Alexandra
    Alexandra Member Posts: 1,308
    #3
    OMG Susan, I am so sorry

    I don't understand the NPO part, you probably need an insulin drip if they don't feed you soon.

    I am hoping that it was resolved yesterday and you are having a GOOD Friday.

    Hugs,

    Alexandra

  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #4
    Alexandra said:

    OMG Susan, I am so sorry

    I don't understand the NPO part, you probably need an insulin drip if they don't feed you soon.

    I am hoping that it was resolved yesterday and you are having a GOOD Friday.

    Hugs,

    Alexandra

    Darn steroids

    and darn Carbo too! I have to take extra insulin too during chemo. Even when I don't eat much sugar is still high...500 sometimes! They should atleast give you fluids. This cancer sucks but you will get to enjoy another remission. Stay strong..hope you are home in your own bed....Val 

  • scatsm
    scatsm Member Posts: 296 Member
    #5
    Still in the hospital, no chemo

    Looks like I had some kind of 'cardiac event' that that has to be investigated before I can be on chemo. I am feeling some frustration over how slowly things are unfolding....waiting on my gyn/onc to get back to me is taking forever. I'm here for another night at least. Miss my dogs and being home....thankfully my son can be there while I'm here. I had a lot of great visits with friends and some great laughs today, but beneath the smiles are the worried looks. If I can't have chemo, then what?

     

  • Alexandra
    Alexandra Member Posts: 1,308
    #6
    scatsm said:

    Still in the hospital, no chemo

    Looks like I had some kind of 'cardiac event' that that has to be investigated before I can be on chemo. I am feeling some frustration over how slowly things are unfolding....waiting on my gyn/onc to get back to me is taking forever. I'm here for another night at least. Miss my dogs and being home....thankfully my son can be there while I'm here. I had a lot of great visits with friends and some great laughs today, but beneath the smiles are the worried looks. If I can't have chemo, then what?

     

    Susan, just another bump in the road.

    The cardiac event happened before you started chemo and you were not allergic to Gemzar the last time. It's definitely because of steroids. Doctors will figure it out, put you an a different steroid and re-start chemo. I can imagine how frustrating it is to be at the hospital during long week end. I hope you got food. I would've raided the nearest vending machine by now.

    I am thinking of you my dear.

    XOXOXO

     

     

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #7
    Alexandra said:

    Susan, just another bump in the road.

    The cardiac event happened before you started chemo and you were not allergic to Gemzar the last time. It's definitely because of steroids. Doctors will figure it out, put you an a different steroid and re-start chemo. I can imagine how frustrating it is to be at the hospital during long week end. I hope you got food. I would've raided the nearest vending machine by now.

    I am thinking of you my dear.

    XOXOXO

     

     

    Dear Susan

    I'm glad you've had visits from friends.  Wish we could be there with you too.  I think you'll start your chemo soon but I know how hard it is to wait and wonder.  I'm glad to hear too that your dogs are in good hands while you are temporarily in the hospital.  I know I would worry about my cats.  Sending lots of positive thoughts your way.

    Warm hugs,

    Kelly

     

  • Rosamond M
    Rosamond M Member Posts: 86 Member
    #8
    What a day!

    Susan,  you are such a strong personality to deal with all this. Strong people

    can handle anything once they know what they are dealing with so I hope this

    is soon sorted for you. So often there are no perfect words - only thoughtful

    wishes of caring for your situation coming your way!

    Rose.

  • scatsm
    scatsm Member Posts: 296 Member
    #9
    Rosamond M said:

    What a day!

    Susan,  you are such a strong personality to deal with all this. Strong people

    can handle anything once they know what they are dealing with so I hope this

    is soon sorted for you. So often there are no perfect words - only thoughtful

    wishes of caring for your situation coming your way!

    Rose.

    The days just keeps on going...

    Had a frustrating day with little news yesterday but today the heart enzyme test seems to have gone down indicating no heart attack and so chemo is back on the table for today. The best outcome would be that I tolerate it well. I think I will be heavily premedicated and the drip will be super slow......I might even be able to go home tonight. Fingers crossed!

  • Alexandra
    Alexandra Member Posts: 1,308
    #10
    scatsm said:

    The days just keeps on going...

    Had a frustrating day with little news yesterday but today the heart enzyme test seems to have gone down indicating no heart attack and so chemo is back on the table for today. The best outcome would be that I tolerate it well. I think I will be heavily premedicated and the drip will be super slow......I might even be able to go home tonight. Fingers crossed!

    Good luck Susan!!!
    image

     

  • forme
    forme Member Posts: 1,161 Member
    #11
    Stay strong

    Oh Susan,

    Stay strong as best you can given the circumstances. I hope that you are receiving your chemo and that all is going well. Fingers crossed that you will be home tonight.

    Positive thoughts coming your way.

    Hugs,

    Lisha

     

  • kikz
    kikz Member Posts: 1,345 Member
    #12
    Praying

    and hoping things are straightened out now and you can do what you need to do to kick *as.  You have a great spirit which is so important on this journey.  Wishing only the best for you.

    Karen

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #13
    kikz said:

    Praying

    and hoping things are straightened out now and you can do what you need to do to kick *as.  You have a great spirit which is so important on this journey.  Wishing only the best for you.

    Karen

    Dear Susan

    I hope things went well for you yesterday and you are resting comfortably today.

    Take care,

    Kelly

  • scatsm
    scatsm Member Posts: 296 Member
    #14
    the 77 hour chemo is finally over!

    I am home and ready to deal with the actual chemo effects...I'm exhausted and so thankful for all your support

    !Let the vomitting begin!

  • Alexandra
    Alexandra Member Posts: 1,308
    #15
    scatsm said:

    the 77 hour chemo is finally over!

    I am home and ready to deal with the actual chemo effects...I'm exhausted and so thankful for all your support

    !Let the vomitting begin!

    Susan, I am so glad that ordeal is over and you're home

    Rest up and let chemo do its thing.

    We are all cheering for you from the sidelines.

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #16
    Alexandra said:

    Susan, I am so glad that ordeal is over and you're home

    Rest up and let chemo do its thing.

    We are all cheering for you from the sidelines.

    Yahoo, Susan

    I'm glad you got the chemo and are home too!  Keeping my fingers and toes crossed that all of the side effects will be minimal.

    Warm hugs,

    Kelly

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,360 Member
    #17
    scatsm said:

    the 77 hour chemo is finally over!

    I am home and ready to deal with the actual chemo effects...I'm exhausted and so thankful for all your support

    !Let the vomitting begin!

    So happy to hear you were

    So happy to hear you were able to get it done and are home.  Good luck on the side effects.  Sending you warm thoughts.

  • Hearty Pioneer
    Hearty Pioneer Member Posts: 158
    #18
    scatsm said:

    the 77 hour chemo is finally over!

    I am home and ready to deal with the actual chemo effects...I'm exhausted and so thankful for all your support

    !Let the vomitting begin!

    There is no place like home

    Glad you made it through and you are home. Rest well.

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #19
    scatsm said:

    the 77 hour chemo is finally over!

    I am home and ready to deal with the actual chemo effects...I'm exhausted and so thankful for all your support

    !Let the vomitting begin!

    lets hope you dont vomit

    lets hope you dont vomit after all of that!!! Hope you are able to relax and be peaceful so your body can heal!! Kim

     

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