Apr 01, 2014 - 5:26 pm
I have not been here lately. This is to let my fellow sisters know there is hope. In 2008, my life changed with UPSC 1A, Stage 3 and the treatment called the "Sandwich Method".
Just came back from my doctor and my tests showed no evidence of disease at this time (NED). I am glad I had the the 'full monty' 5 years ago with chemo/radiation. Robotics were not in the game for me; but was discussed, and then changed to full surgery. My 'scar' is not a worry, the hair loss returned, and I too didn't know what was in my future. I will continue to go once a year for a while as I don't know if a time will ever make me feel that NED can disappear at anytime in my life.
I did and continue to do research classified as worthy, recognized literature. I have a physican who answers all my questions and appreciates that I stay up on what is happening to UPSC. I feel always like part of the health-care team for me; not an outsider to a specialized medical world. This was very important in my personal needs. It was and continues to be hard to look at what is stated about UPSC. Yet, it has shown greater hope than 5 years ago.
I also would like to thank this site for providing a means to 'hear' from others who share their help, thoughts, and stories. It made me feel not alone.
An article I would like to share is in Fall' 2011 MD Anderson "Network" ( www.mdanderson.org/network) It is a short article about a women who at age 57 had stage 3 UPSC and she was seven years out from her 2004 diagnosis.
When I saw this article, I was mid-out in my post-treatment. It provided me with hope and strength.
Each of us has their own journey and along that road decisions to make about our personal set of health circumstances.
Blessing to all of you where-ever you are in your journey...sisters together