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FAQ about the CSN study

greta's picture
greta
Posts: 240
Joined: Jun 2000

Please excuse the long post.  A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013.  I thought it might be helpful to post the most common questions and my answers.

What is the CSN survey? What is its purpose? The survey is one component of a formal evaluation and study of CSN that was launched in November by way of an online survey that was emailed to certain members. The American Cancer Society is committed to offering services that are evidence-based – in other words, there is scientific evidence that the service does what it purports to do. Therefore, the survey follows standard scientific research practice and principles to learn about the benefits of participating in CSN and how members use it.     

I received email from someone called Greta at CSN. Is the email legitimate? Who is Greta?  If you’re cautious about opening email from someone you don’t know, you’re probably doubly wary of clicking a link in it. It’s certainly understandable, too. In this case, the email is legitimate and the links are safe to click on.  Greta (me) is American Cancer Society staff, director of survivor programs, and responsible for CSN.

Who was selected to participate? CSN members with an active account and valid email address who logged in at least 1 time between October 2010 and October 2013 were selected to participate.  

Why didn’t I get a survey? If you fit the criteria above, didn’t receive a survey, and would like to participate, please email me at Survey3@cancer.org.  There are many possible reasons to explain why you didn’t receive an email: the email address you have on file (located on your CSN account page) is no longer active so the email we sent was returned as “undeliverable;” the email address you have on file is active but you haven’t checked it for email;  you updated your email address but it has a typo and was returned to us; your internet provider sent the email to your spam folder or blocked its delivery entirely; your email bounced back to us because your mailbox was full or something else prevented delivery.

Will there be more than one survey? Yes. If you complete the first survey, some of you will be asked to complete a second, shorter survey about 2 months later.  If you complete the second survey, some of you will be asked to complete a third survey 2 months after you completed the second one.

What should I do if I lose my internet connection while filling out the survey? If you lose your connection or have to stop filling out the survey before you have completed it, all you have to do is click the survey link again. It will take you back to the beginning of the survey, but everything you already entered will still be there so all you need to do is click through to where you left off.

Why didn’t you ask about CSN website performance, design, usability, etc.?  Obviously, website performance, design, usability, and customer service are critically important. The current survey would be far too long if it included all the questions we need to ask about the site itself, so we decided to put them in a separate survey that we plan to send sometime in the spring or summer. Feedback from CSN members has to be collected correctly and properly analyzed  to facilitate well-informed, important decisions about technical aspects of the site.

Best regards,
Greta

Skiffin16's picture
Skiffin16
Posts: 8286
Joined: Sep 2009

I highly endorse Greta and her work here on CSN and constantly trying to make it available and easy to communicate with each other. Staying on things when at times they go south, always being open to communication and asking much of nothing in return.

Thanks Greta....

Thoughts and prayers your way...

John

katenorwood
Posts: 1914
Joined: May 2012

I know surveys can be a pain sometimes.  But I feel this one specific is needed.  I can't do a whole lot money wise or out in the public for CSA.  But this small thing I can do.  Thank you Greta for your wonderful work for us all !  Katie

Ingrid K's picture
Ingrid K
Posts: 813
Joined: Mar 2011

GRETA:

Thanks so much for all the behind the scenes work that you do.  Most of us can't even imagine the amount of hours that go into keeping this site up and operating so that we can reach out to each other any time of the day or night.

Let me know if you need any more feedback from a user -- I would be happy to do another survey .... or two.

Ingrid

 

Skiffin16's picture
Skiffin16
Posts: 8286
Joined: Sep 2009

Good point IK....

Greta and I have a great communication network..., LOL.

Usually I text, PM, or email her when something isn't working right on the site... Usually at any odd hour that might happen..., and you all know our schedules...

She gets back with me as soon as she can, that includes, nights, evenings, week-ends and Holidays...

 

As CSN is to us, it is as much and more to Greta... We (I) only pretty much hang in the H&N section of CSN... Greta is involved with every forum, topic and area both frontline and behind the scenes....

So now you know a little additional info on her dedication.... Please provide her with any support that you can...

John

debbiejeanne's picture
debbiejeanne
Posts: 3095
Joined: Jan 2010

thank you Greta.  we probably don't say it enuf but we really appreciate all you do to keep this site running smoothly.  this site means  A LOT to us and helps many people so what you do is greatly needed.  thanks for everything!

dj

fisrpotpe's picture
fisrpotpe
Posts: 1349
Joined: Aug 2010

Thanks Greta for all you do for all here on CSN. 

i received my survey for the first time just this week. I filled it out. Thanks for including me. 

john 

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

It was not bad only took a few mins of my time and if it helps someone else why not. I just wish I knew about CSN when I was going through treatment and needed help and support.

 

Thanks

Hondo

Skiffin16's picture
Skiffin16
Posts: 8286
Joined: Sep 2009

You still need help and support..., LOL... :)~

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

Just remember that when I am getting in the boat so I don't fall out.Wink

 

Tim, Hondo or whatever you want to call me

greta's picture
greta
Posts: 240
Joined: Jun 2000

to each of you. You are amazing individuals and an awesome group. Thank you for your kind words, support and offers of help! Smile

 

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