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When is the most common timeframe to have the first post-surgery scan???

HarleyMom117's picture
HarleyMom117
Posts: 27
Joined: Oct 2013

My open radical was on Oct. 2, which got rid of my 4cm cubed tumor (named Edward) -- stage 1B, grade 3.   My first post-surgery urology and oncology appointments are coming up in January.   I just got the reminder in the mail -- and, apparently, I do NOT have a scan scheduled.   That really surprised me -- I fully expected to have a CT at 3 months post.

Can you guys let me know when you had yours -- and if this is the 'norm'??

THANK YOU!!!

Terri    Laughing

icemantoo's picture
icemantoo
Posts: 3216
Joined: Jan 2010

Terri,

 

It seems like after reading these posts for a few years that 3 to 6 months is normal. Like you my culprit was 4.2 cm. My wait, just under 5 months.

 

Icemantoo

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Hi Terri, 

There are quite a few of us on here that have had our first scans at six months:)

 

Djinnie

GSRon's picture
GSRon
Posts: 1304
Joined: Jan 2013

Well, my best guess is that the more your Dr thinks there may be chance of recurrance the sooner the first (and subsequent) scans.   I am on the 90 day plan.. my Doctor knew what I did not... 

Good Luck..!

Ron

dhs1963's picture
dhs1963
Posts: 510
Joined: May 2012

My first scan was six months....they found something nice and glowy in my lung.  That was removed.  Now it is every three months.

donna_lee's picture
donna_lee
Posts: 900
Joined: Feb 2009

I think it is pretty much related to the stage of the cancer (I through IV); and I will add, the protocol the Dr. is following.

Mine, at Dx, was Stage IV, having already mets to the liver and nodes. First surgery, then I had a CT every 3 months for the next year.  And luckily, between #3 and #4, a node was found to be enlarging, was biopsied and removed.

My oncologist felt that they had caught any errant cell growths, so over the following year, I only had a CT at 6 months and a year.  That second scan at 1 year found another enlarging node; this time confirmed on P.E.T. and surgically removed.

Here I am, 5 + years later, and I'm being weaned to a CT about every 6 months and will then probably go to yearly until at leat the 10 years free mark.

I'm aware that a CT has much more radiation, and the Dr. has sometimes substituted a combination Chest X-ray and Ultrasound of the Ab/Pelvis.

Next time you see the Dr. or oncology nurse, ask what his "standard" procedure and frequency will be for your case.

Meanwhile---have a HO, HO, HO season.

Donna

Joe C's picture
Joe C
Posts: 37
Joined: Dec 2013

Hi Terri,

Now I'm only a rookie having just had surgery on Dec 4, but my oncologist said something similar to Donna's team.  I'm on a 3 month plan at least until end of year and may progress to every 6 months after that. I'm stil waiting on final pathology, but my oncologist says it's looking like I should be at stage 3, grade 3, no mets and let me know the timing has a lot to do with the stage/grade.  Hope that helps!

Joe

HarleyMom117's picture
HarleyMom117
Posts: 27
Joined: Oct 2013

THANKS, everyone!!   I feel much better about not having a scan scheduled for 3 months post.   And I'll talk to my oncologist at the January appointment about what he feels an appropriate schedule will be for me.  

You guys ROCK!!  Laughing

Darron's picture
Darron
Posts: 303
Joined: Jun 2013

The biggest thing to me is knowing when your are going to have them and feeling like you are a part of the program vs. beung kept in te dark. I like the idea of asking what the protocol the are using....good for peace I mind

HarleyMom117's picture
HarleyMom117
Posts: 27
Joined: Oct 2013

Couldn't agree more!!   THANK YOU for chiming in!   Instead of waiting until January, I'll give the office a call tomorrow and inquire about the doctor's protocol (I'm assuming the oncologist would be the person to ask -- and not the urologist??)    I have no problem waiting until April, but I would rather know what to expect.   :)

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

hi harleymom i was a T1a, stage 3 and my first scan was at 7 months.......they found a benign lump in my breast which was removed because of its size.  now they have me in for another scan in feb so its kinda every 6 months at the moment for me x

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