Haven't been on for while

kimberly sue 63
kimberly sue 63 Member Posts: 421 Member
in Ovarian Cancer #1

i have not posted for a while.... I still look at posts on occasion .   I hope all are doing well. I think it is time for a role call!!! I would like to know how everyone is doing and if there is anything new . I'll go first!..... I celebrated one year from chemo at the end of October !!! I was diagnosed serous epithelial IIIc march 28th 2012. Finished chemo-dense treatment at end oct 2012.... Last ca125 was a 6, 3 months ago any tomorrow I get blood work done again. I was also diagnosed with brca 1..... I have 4 daughters.... Only my youngest has tested so far and she was positive for the brca gene.... She is only 20....

kim

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  • JoanC
    JoanC Member Posts: 231
    #2
    Roll Call

    I also do not post very often but read post most everyday. DX April 2008 Stage 3 C

    Still NED last CA 125  was 7 as of yesterday. No reocurences Finished chemo Oct 2008

    Joan

  • kikz
    kikz Member Posts: 1,345 Member
    #3
    The activity

    on this site has gone way down; a lot are more active on Facebook.   

    I was diagnosed March 2010.  Just finished chemo in July for first recurrence.  Am in remission. Next month will have first CA 125 since treatment.  Feeling really good.  No major problems.  Of course I had less chemo this time.  It only took four infusions to tame the beast. 

    Good to hear from you ladies.

    Karen

  • Loewenhart
    Loewenhart Member Posts: 21
    #4
    kikz said:

    The activity

    on this site has gone way down; a lot are more active on Facebook.   

    I was diagnosed March 2010.  Just finished chemo in July for first recurrence.  Am in remission. Next month will have first CA 125 since treatment.  Feeling really good.  No major problems.  Of course I had less chemo this time.  It only took four infusions to tame the beast. 

    Good to hear from you ladies.

    Karen

    Hello Kikz.
    I just joined

    Hello Kikz.

    I just joined this board a short time ago. I find the similar stories somewhat comforting and the success stories, like yours, upflfting. I would be wary of Facebook and privacy. I feel much safer on this site. Am I wrong?

    I was diagnosed in April. The chemo, carbo/taxol  initially worked and then stopped. I had the debulking surgery and a total of 6 chemo. I will be looking now for a different chemo or a clinical trial. What chemo worked for you?

  • Alexandra
    Alexandra Member Posts: 1,308
    #5
    Good to have you back Kim!

    I am 46 in Toronto, Canada. Married + 1 daughter (20)

    Dignosed in May 2012, stage 3C, BRCA1+.

    Finished chemo Taxol / Carboplatin in Nov. 2012, NED for 9 months.

    1st recurrence in Sep. 2013, no treatment yet, feel fine, waiting for the PARP trial.

    I'm getting another CT scan today to see if tumors have grown and if biopsy is possible.

     

  • Loewenhart
    Loewenhart Member Posts: 21
    #6
    Alexandra said:

    Good to have you back Kim!

    I am 46 in Toronto, Canada. Married + 1 daughter (20)

    Dignosed in May 2012, stage 3C, BRCA1+.

    Finished chemo Taxol / Carboplatin in Nov. 2012, NED for 9 months.

    1st recurrence in Sep. 2013, no treatment yet, feel fine, waiting for the PARP trial.

    I'm getting another CT scan today to see if tumors have grown and if biopsy is possible.

     

    Hi Alexandra
    You will find

    Hi Alexandra

    You will find the new pre-CT scan drink much improved. It had virtually no taste. 

    I will be going for a consultation at Southlake today to see what other chemo they have to offer.

     

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #7
    kikz said:

    The activity

    on this site has gone way down; a lot are more active on Facebook.   

    I was diagnosed March 2010.  Just finished chemo in July for first recurrence.  Am in remission. Next month will have first CA 125 since treatment.  Feeling really good.  No major problems.  Of course I had less chemo this time.  It only took four infusions to tame the beast. 

    Good to hear from you ladies.

    Karen

    good to see you yo see you

    good to see you yo see you going well!!! 

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #8
    Loewenhart said:

    Hi Alexandra
    You will find

    Hi Alexandra

    You will find the new pre-CT scan drink much improved. It had virtually no taste. 

    I will be going for a consultation at Southlake today to see what other chemo they have to offer.

     

    Hi All!

    Diagnosed in September 2010

    Stage 2b, high grade (grade 3) serous

    Optimal debulking surgery on October 11, 2010

    Six sessions of carbo/taxol

    Pre surgery CA 125: 2,800+

    After surgery but before chemo CA 125: 7

    NED since March 2011 (two years and eight months and counting!)

    No recurrences

    I myself do not do Facebook.  I'm very low-tech and am a fairly private person.

    Kelly

     

  • wholfmeister
    wholfmeister Member Posts: 315
    #9
    Age: 61 (?!? Really

    Age: 61 (?!? Really !?!)

    Location: Ohio, home of the Ohio State University Buckeyes!

    Diagnosed: March 2012

    Stage 3 c, high grade. Second, unrelated cancer in uterus, stage 1, discovered in pathology from surgery.

    Genetics: I still haven't had the testing done.

    Treatment: 3 rounds of taxol/cisplatin to reduce tumors away from bowel before surgery in June, followed by 5 months of IV/IP taxol and carboplatin. Nearly made it through a planned year of monthly taxol for maintenance.  Just started carbo/gemzar.   Early on I made some big changes to my diet and added some supplements. Still crave Diet Coke...with pizza...with breakfast...with salad...at bed time...when I breathe...I really miss it!

    CA 125 was around 300 at diagnosis, shot up to 2000 with first chemo treatments, but was down to less than 5 in January 2013. TI don't think I was ever truly in remission, because the numbers slowly but consistently rose every month this year until now it is 145.  There are two small pelvic lymph nodes on CT scan.  Hence, the carbo/gemzar started last week.

    Current status: No hair, beautiful wig #3. Tingling neuropathy in the middle 3 toes on each foot.  Except for being tired, I don't feel sick.  Looking forward to a fun Thanksgiving with my daughter and son-in-law in NYC!

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #10
    wholfmeister said:

    Age: 61 (?!? Really

    Age: 61 (?!? Really !?!)

    Location: Ohio, home of the Ohio State University Buckeyes!

    Diagnosed: March 2012

    Stage 3 c, high grade. Second, unrelated cancer in uterus, stage 1, discovered in pathology from surgery.

    Genetics: I still haven't had the testing done.

    Treatment: 3 rounds of taxol/cisplatin to reduce tumors away from bowel before surgery in June, followed by 5 months of IV/IP taxol and carboplatin. Nearly made it through a planned year of monthly taxol for maintenance.  Just started carbo/gemzar.   Early on I made some big changes to my diet and added some supplements. Still crave Diet Coke...with pizza...with breakfast...with salad...at bed time...when I breathe...I really miss it!

    CA 125 was around 300 at diagnosis, shot up to 2000 with first chemo treatments, but was down to less than 5 in January 2013. TI don't think I was ever truly in remission, because the numbers slowly but consistently rose every month this year until now it is 145.  There are two small pelvic lymph nodes on CT scan.  Hence, the carbo/gemzar started last week.

    Current status: No hair, beautiful wig #3. Tingling neuropathy in the middle 3 toes on each foot.  Except for being tired, I don't feel sick.  Looking forward to a fun Thanksgiving with my daughter and son-in-law in NYC!

    Best to you.... You have such

    Best to you.... You have such a great attitude !!!!enjoy the holidays!!!!

  • Glad to be done
    Glad to be done Member Posts: 569
    #11
    kimberly sue 63 said:

    Best to you.... You have such

    Best to you.... You have such a great attitude !!!!enjoy the holidays!!!!

    Hi Kim... 
    Great to see you. 

    Hi Kim... 

    Great to see you.  I am glad all is going well for you.  I just had a check up and all is well.  Feeling great.  CA was 5.8 which I was very happy with.   It has been almost two years since I was diagnosed in January of 2012 and I have been NED for 17months.  Gearing up for the holidays.  Going to be a great Thanksgiving.

    Stay Happy and most of all healthy.

    Hugs, Eileen

     

     

     

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #12
    Glad to be done said:

    Hi Kim... 
    Great to see you. 

    Hi Kim... 

    Great to see you.  I am glad all is going well for you.  I just had a check up and all is well.  Feeling great.  CA was 5.8 which I was very happy with.   It has been almost two years since I was diagnosed in January of 2012 and I have been NED for 17months.  Gearing up for the holidays.  Going to be a great Thanksgiving.

    Stay Happy and most of all healthy.

    Hugs, Eileen

     

     

     

    Great news!!! That's the way

    Great news!!! That's the way to start the holiday season!   I too have had a check up this week!! I'm a 4!!! And a year from my kast chemo. Kim 

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