I'm Back!!!

JulieBelle
JulieBelle Member Posts: 61
in Ovarian Cancer #1

Hi All

Sorry for my absence.  I have had another stint in hospital (11 days) with infection problems. 3 my Onc thinks!  My Picc line (which was removed and another put in on the other arm), shingles and a chest infection!  Consequently he threw all sorts at it and finally we pulled through. This was a tough one and even though I have now been out of hospital for 10 days I am still totally lacking my usual oomph!   My wonderful hubby and daughter herre for me and my niece (a nurse) came over from new Zealand to help me too which was wonderful.   She flies home today.  We had a lot of fun together - laughter being one great medicine I believe!

I did have a piece of very exciting news while in hospital.  A CA125 tet showed a DROP of 96 points from 650 to 556!   Seemed incredible whil my body was going through all that!   I was back on the Etopotide last week but have dropped the Avastin - just too expensive at $3,600 a dose until it is approved on our free medical (PBS) list for Ovarian Cancer.   I had 6 rounds and can always do a few more down the line if it is felt it would be worthwhile.

I have managed a couple of short walks this week, my lungs are much improved and feeling a little better each day.  My darling grandson turns one this Saturday and what a joy he is!

Love & healing to all, Julie xx

Comments

  • Alexandra
    Alexandra Member Posts: 1,308
    #2
    Good to have you back Julie!!!

    OMG, you went through all those painful things at the hospital and as always emerged a winner with lower CA125 and sunny attitude.

    I hope the troubles are behind you and you feel better and better every day. Happy first Birthday to your little grandson!

    PS. So Canada is not the only former British colony, where Avastin is not approved by government and not covered by insurance for ovarian cancer. Figures...

    Big hugs,

    Alexandra

     

  • Loewenhart
    Loewenhart Member Posts: 21
    #3
    My new hero

    Just dropping in to wish you well,  Juilie. I'm new to to board and enjoying the chit chat. It sure gives me hope to read the stories from all of the very strong people on-line. Keep laughing and stay well.

     

  • wholfmeister
    wholfmeister Member Posts: 315
    #4
    Sending healthy thoughts!

    Julie! You have been through so much!  Thank goodness you are on the better side of it all now.  Keep drawing on all those sources of strength.  I'm happy for your dropping CA125.

  • scatsm
    scatsm Member Posts: 296 Member
    #5
    you are amazing!

    You are always upbeat even while the most awful things are happening to you...I admire your spirit and hope that you can have some peace. You certainly deserve it! Enjoy your grandson and be well, Julie.

    All the best,

    Susan

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #6
    scatsm said:

    you are amazing!

    You are always upbeat even while the most awful things are happening to you...I admire your spirit and hope that you can have some peace. You certainly deserve it! Enjoy your grandson and be well, Julie.

    All the best,

    Susan

    Hi Julie!

    Wow, you've been through the wringer, but I am so glad you are feeling better and have a big drop in your CA 125!  Your family sounds wonderful and I'm glad you have your darling grandson.

    Praying that you continue to feel better each day!

    Kelly

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,360 Member
    #7
    Now to Julie

    It is WONDERFUL to hear how you have rebounded.  I agree that family and laughing are wonderful forms of treatment and are great for the soul. 

  • Mwee
    Mwee Member Posts: 1,338
    #8
    Way to go, Julie!

    So glad to hear your good news. Enjoy that birthday party.

                                                         ((((((HUGS)))))))    Maria

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