Sep 06, 2013 - 3:40 pm
My favorite, most trusted onc of 26 years mentioned that he wanted me to have herceptin and perjeta indefinitely after stopping taxotere.
My new, local onc mentioned continuing only herceptin. I told him other onc wanted both and he didn't see why.
Well I hate getting caught in these kinds of situations and felt really stuck in the middle. Immediately tried to call my trusted onc, only to find out he was on extended medical leave (turns out he was in a bad car accident). Finally reached him this past Tuesday and asked him how strongly he felt about me having herceptin alone vs herceptin + perjeta. Of course, he said, "Very strongly." I asked him to please call newer onc as I could not get in the middle and he agreed. Only problem, other onc was out of town until Wednesday and chemo was Thursday.
I stayed up all night Wednesday being a worry wart about this. I called early Thursday morning and the local onc's nurse told me both drugs were ordered and not to worry.
As much as I am relieved to be on the protocol my trusted onc wants, perjeta is the drug that I always have a reaction to. I always, alway get flushed and nauseated immediately. My onc nurses have been great about working with me and trying different meds, slowing infusion, etc, but it always happens: immediate flushing and nausea. This time Danny said I looked grey and had bad chills (no fever). Had to be covered with my fleece and 4 prewarmed blankets and was still cold. More ativan and finally slept it off.
Today, it is all gone--just a little nausea being handled with zofran
Too bad I couldn't skip the perjeta...Lol. Well, if the perjeta beats back the beast, we know it is all worth it!