Just an update on me.

jamiegww
jamiegww Member Posts: 384
in Breast Cancer #1

I just thought I would let you all know what is going on with me in case anyone thinks I just left them hanging.  I have been dealing with fluid around my right lung since mid April.  I have now had the fluid drained four times since then and I'm getting pretty tired of that procedure so I am scheduled for a VATS and pluerodesis on June 14th.  That surgeon will also replace my leaking port at the same time so at least I only have one procedure to dread instead of two.  I've been told I will be in the hospital at least four days and possibly ten.  I'm not looking forward to that but I hope it works because I don't know how to deal with this shortness of breath.  Last week I had dose two of my second cycle of Halaven.  My onc had hoped the chemo would stop the fluid but I guess that didn't happen.  I will see her this Thursday to discuss whether I continue with the Halaven or try something else.  The Halaven has caused my hair to thin a little but so far I have managed to keep most of what has grown back since my last infusion of Ixempra in November.  Just like the first time, it grew back curly.  I wish everyone well.

HUGS!!!

Jamie    

Comments

  • coco2008
    coco2008 Member Posts: 418
    #2
    I wish you the best and pray

    I wish you the best and pray they find a way to relieve your breathing problems.

  • New Flower
    New Flower Member Posts: 4,294
    #3
    coco2008 said:

    I wish you the best and pray

    I wish you the best and pray they find a way to relieve your breathing problems.

    Sorry Jamie

    Jamie

     I am very sorry. I have not been here lately too dealing with side effects of experimental drug.

    I wish you good luck with procedure and hope the overall health situation will improve soon. Please take Pink bus to your hospital and know that you are always in my thoughts.

    Hugs

    Olga

  • Josie21
    Josie21 Member Posts: 382 Member
    #4
    Hi Jamie

    Hi Jamie,

    I hope the procedures on the 14th help you with your shortness of breath and that your stay in the hospital will be short.  As always, you and the rest of my pink sisters and brothers are in my prayers.  

    Many hugs coming your way Jamie.

    Ginny

  • SIROD
    SIROD Member Posts: 2,194 Member
    #5
    Pleurodesis

    Jamie,

    I hope the VATS to fix the pleural effusion will work this time.  I hope you have the shorter stay.

    Will be thinking of you on the 14th.  Thanks for the update.

    Best,

    Doris

  • SIROD
    SIROD Member Posts: 2,194 Member
    #6
    Halaven

    Jamie,

    What did the doctor say about Halaven.  Will you be continuing or change to something else?

     

    Doris

     

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #7
    good to hear from

    good to hear from you..

    Denise

  • jamiegww
    jamiegww Member Posts: 384
    #8
    SIROD said:

    Halaven

    Jamie,

    What did the doctor say about Halaven.  Will you be continuing or change to something else?

     

    Doris

     

    Onc seemed encouraged yesterday.

    She said my lungs sounded good and that my liver felt smaller.  I guess the smaller liver was a good thing but I'm not sure why she thought the lung was better because I can tell there is fluid again.  She wants to continue with Halaven but there will be a delay in starting cycle 3 because of my surgery.  I will be a basket case next week just waiting for Friday but hopefully after that I will be breathing better and have a more positive outlook on life in general.

    How are you doing, Doris, with your Taxol treatments and your ulcers?  I hope you are feeling better.

    HUGS!!!

    Jamie 

  • Josie21
    Josie21 Member Posts: 382 Member
    #9
    jamiegww said:

    Onc seemed encouraged yesterday.

    She said my lungs sounded good and that my liver felt smaller.  I guess the smaller liver was a good thing but I'm not sure why she thought the lung was better because I can tell there is fluid again.  She wants to continue with Halaven but there will be a delay in starting cycle 3 because of my surgery.  I will be a basket case next week just waiting for Friday but hopefully after that I will be breathing better and have a more positive outlook on life in general.

    How are you doing, Doris, with your Taxol treatments and your ulcers?  I hope you are feeling better.

    HUGS!!!

    Jamie 

    Hi

    Hi Jamie,

    It definitely sounds like your oncologist is pleased with your progress.  That's good news for sure.  I don't usually wish time by, but I hope the week goes fast for you so you can start breathing easier.  I am sorry you are having such a hard time.  I pray with all my heart that the procedure makes you feel better.

    Hugs,

    Ginny

  • SIROD
    SIROD Member Posts: 2,194 Member
    #10
    jamiegww said:

    Onc seemed encouraged yesterday.

    She said my lungs sounded good and that my liver felt smaller.  I guess the smaller liver was a good thing but I'm not sure why she thought the lung was better because I can tell there is fluid again.  She wants to continue with Halaven but there will be a delay in starting cycle 3 because of my surgery.  I will be a basket case next week just waiting for Friday but hopefully after that I will be breathing better and have a more positive outlook on life in general.

    How are you doing, Doris, with your Taxol treatments and your ulcers?  I hope you are feeling better.

    HUGS!!!

    Jamie 

    Halaven and etc...

    Hi Jamie,

    I didn't think your oncologist would give up on Halaven after only 2 treatments.  I am glad your liver is smaller and your lungs are better.

    Not sure how she looks at your lungs but the fluid is in your pleura.  Most people who have the procedure you are going to have never have the fluid return.  I hope this time this works for you.  I hope the week flies by for you.

    I see my oncologist on Tuesday and will have a treatment at that center instead of my local one.  My blood values are always low with every treatment, the next blood test will show them lower again.  Ulcers don't seem to be bothering me.  I do take 2 pills a day for them.  Thanks for asking.

    Hugs to you too.

    Doris

  • New Flower
    New Flower Member Posts: 4,294
    #11
    disneyfan2008 said:

    good to hear from

    good to hear from you..

    Denise

    Jamie wishing you good luck

    Jamie,

     Please know we are here for you and go with you for your surgery. Usually when my oncologist feels optimistic she is right. Hopefully yours was  correct about improvements and response from Chemo too. 

    For those who follow me, I am still off the experimental drug, very slow recovery fom side effects, have had  2 IV fluids infusions due to dehydration last week.

    Hugs

    Olga

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #12
    New Flower said:

    Jamie wishing you good luck

    Jamie,

     Please know we are here for you and go with you for your surgery. Usually when my oncologist feels optimistic she is right. Hopefully yours was  correct about improvements and response from Chemo too. 

    For those who follow me, I am still off the experimental drug, very slow recovery fom side effects, have had  2 IV fluids infusions due to dehydration last week.

    Hugs

    Olga

    Jamie --

    Geez, I am so so sorry that you are having such a difficult time with your lungs, liver and endless appointments, as well as medical testing.  I will continue to keep you in my prayers, dear Sister in Pink.

    Hoping chemo continues to work, and there is no need for you to spend 4 days in the hospital.  However, if that is what will be best for you, I hope and wish for a speedy recovery - and your 4 days - seem like 4 hours - LOL

    Gentle hugs and Strength, Jamie.

    Vicki Sam

  • jamiegww
    jamiegww Member Posts: 384
    #13
    New Flower said:

    Jamie wishing you good luck

    Jamie,

     Please know we are here for you and go with you for your surgery. Usually when my oncologist feels optimistic she is right. Hopefully yours was  correct about improvements and response from Chemo too. 

    For those who follow me, I am still off the experimental drug, very slow recovery fom side effects, have had  2 IV fluids infusions due to dehydration last week.

    Hugs

    Olga

    Olga

    I know you have been so brave throughout this drug trial but I hope they don't put you back on it because those side effects are too much for you sweetie.  You are constantly reminding us to stay hydrated so for you to need IV fluids tells me they might need to "rethink" that drug.  Take care and feel better soon!

    HUGS!!!

    Jamie

  • SIROD
    SIROD Member Posts: 2,194 Member
    #14
    Jamie Will Be Thinking of You

    Just wanted you to know that I will be thinking of you on Friday. 

    Let us know when you are able to post.   I hope it is a short stay.

     

    Best,

    Doris

  • New Flower
    New Flower Member Posts: 4,294
    #15
    SIROD said:

    Jamie Will Be Thinking of You

    Just wanted you to know that I will be thinking of you on Friday. 

    Let us know when you are able to post.   I hope it is a short stay.

     

    Best,

    Doris

    Jamie positive thoughts are coming your way

    Please know you are in my thoughts. I am hoping Friday will be an easy procedure for yyou hugs 

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #16
    New Flower said:

    Jamie positive thoughts are coming your way

    Please know you are in my thoughts. I am hoping Friday will be an easy procedure for yyou hugs 

    Good luck tomorrow

    I hope your surgery improves your breathing and makes you much more comfortable.  Will be thinking about you tomorrow.  Please keep us posted.  We'll keep you in our prayers.

    Suzanne

  • jamiegww
    jamiegww Member Posts: 384
    #17
    Double Whammy said:

    Good luck tomorrow

    I hope your surgery improves your breathing and makes you much more comfortable.  Will be thinking about you tomorrow.  Please keep us posted.  We'll keep you in our prayers.

    Suzanne

    Appreciate the thoughts and prayers from everyone!

    I am getting ready to go for Zometa infusion this morning.  I was running a fever of 101 last night and my body aches all over.  I hope I don't have to postpone my procedure.  I had my pre-op on Tuesday and with all the test they ran, if I have an infection or anything going on, they should know about it?  I just want to get this over with.

    HUGS!!!

    Jamie

Discussion Boards