Please forgive me but I need to know about Claudia,Chenheart

chenheart said:

Hello you!

Hello you! I just got word via FaceBook that you are wondering about me! Thank you sooo much! I do not get online often~I have been on some sort of chemo for 19 months now and the level of exhaustion is high, and mostly I suffer from neuropathy, making it hard to type! I am holding my own~ even did the Relay For Life this weekend, including being honored to give the opening remarks about Living With Cancer ( something I seem  to know a lot about!) and I was interviewed by our local newspaper. I still have amazing and heartfelt support from so many family and friends~it makes this long journey truly easier. I touted CSN at the Relay, and of course  as I did what laps I could, I chanted "CSN, CSN"  My sister and I made 27 Luminarias, including one dedicated to my Kindred Spirits and CSN....you are always with me!!! You have made me smile today, Pat~ thank you again for thinking of me. I hope you are well and happy....my CSN Kindred Spirits are truly my lifeblood and I love you dearly. (((((((hugs)))))  ChenHeart

Claudia,

It made my heart feel glad to see your post.  I/We have missed you so much  but we had heard taht typing can be a challenge and tiring so you.  I know that you are battling hard but I am not surpirsed that you did a relay or that you were a speaker.  You have such a beautiful way about you and your quiet courage and strength are a true inspiration.  My thoughts often travel to you and my prayers always include you my dear friend and all of the warriors here that battle this disease.  Some do it with courage, some with rage, some with fear, each fighting with their own arsenal.  Our arsenals hold treatments, surgery, tests, follow ups, and most of all friends, family and the support of all who care for us.  Your arsenal must be so very full.  Fight on dear chenheart.  You are always in our thoughts.

Stef

chenheart said:

Hello you!

Hello you! I just got word via FaceBook that you are wondering about me! Thank you sooo much! I do not get online often~I have been on some sort of chemo for 19 months now and the level of exhaustion is high, and mostly I suffer from neuropathy, making it hard to type! I am holding my own~ even did the Relay For Life this weekend, including being honored to give the opening remarks about Living With Cancer ( something I seem  to know a lot about!) and I was interviewed by our local newspaper. I still have amazing and heartfelt support from so many family and friends~it makes this long journey truly easier. I touted CSN at the Relay, and of course  as I did what laps I could, I chanted "CSN, CSN"  My sister and I made 27 Luminarias, including one dedicated to my Kindred Spirits and CSN....you are always with me!!! You have made me smile today, Pat~ thank you again for thinking of me. I hope you are well and happy....my CSN Kindred Spirits are truly my lifeblood and I love you dearly. (((((((hugs)))))  ChenHeart

Dear Claudia,

I am glad that you are doing well enough now to do laps at a Relay.  I was even happier to read that you gave the opening remarks about "Living with Cancer" at the Relay For Life.   My first post here was about asking CSN for their opinions about acknowledging those who are stage IV and living with cancer.  I had asked the ACS in my state to allow a third walk for those who are living with the disease, not the survivor walk or the memorial walk but a special walk for just us.  They said "NO".  

Though you didn't have a special walk, the ACS did acknowledge stage IV does exist and that is a start.  In Maryland, there was a billboard sign welcoming those who are "Living with Cancer".  It is the home of METAvivor so I guess it was good politics to include them.

I did receiving a lot of opinions but I did ask for them.  I think in time, things do change as there are more and more of us living with the disease.

Stay well and I also miss your postings.

Doris