My new Acronym

luv4lacrosse
luv4lacrosse Member Posts: 1,410 Member

I just received the results of my every six week CT of my neck and chest. Instead of being NED, I am now being called NEMD. No evidence of Metastatic Disease. I am set to have my last treatment of my clinical trial on 1-28 of Carboplatin and Erbitux, and the continue on Erbitux every Monday for as long as it works.I guess since I am only considered treatable or palliative care is why they call me NEMD vs NED??

Hell, I will take anything that starts with "no evidence of" 

Here is to riding the wagon until the wheels fall off!!

Mike

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Comments

  • jim and i
    jim and i Member Posts: 1,788 Member
    Keep riding that wagon

    NED sounds good to me, especially if you can handle the side effects of the erbitux. Jim refused further treatment with Erbitux but he is a lot older than you are so it was harder on him. I pray you find a solution for the craked feet and remain NEMD.

    Debbie

  • osmotar
    osmotar Member Posts: 1,006
    ;-)

    Mike,

    My  4'8" 83 year old mom would stilL bop me in the back of the head for name calling ... But ...NEMD....nananaaaa... NEMD ...yes!!!!! Congrats !!!!!

    linda

  • osmotar
    osmotar Member Posts: 1,006
    Cracked Feet

    i use a product by CND for dry feet and heels; it's a cucumber cream I get it from the place where I get mani/ pedis.

     

    linda

     

     

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    NEMO....

    Errr.... I mean NEMD, LOL...

    Congrats brother..., I'm with you, if it starts with NED, it can't all be bad.

    Prayers for many many years Captain NEMD.

    John

  • VivianLee5689
    VivianLee5689 Member Posts: 546
    Skiffin16 said:

    NEMO....

    Errr.... I mean NEMD, LOL...

    Congrats brother..., I'm with you, if it starts with NED, it can't all be bad.

    Prayers for many many years Captain NEMD.

    John

    Liking the acronym

    Mike,

    Sounds like you got the best news you could expect.  I am glad treatments are working and I hope they do for many years to come. 

  • katenorwood
    katenorwood Member Posts: 1,912
    whooohooo!

    Mike,

    Fantstic news !  NEMB.....love it.  It's amazing the names the medical proffession comes up for us hunh !  But I'm in total agreement anything that starts with no evidence of....we'll embrace with joy !  Way to kick butt Mike !   Katie

  • Ingrid K
    Ingrid K Member Posts: 813

    whooohooo!

    Mike,

    Fantstic news !  NEMB.....love it.  It's amazing the names the medical proffession comes up for us hunh !  But I'm in total agreement anything that starts with no evidence of....we'll embrace with joy !  Way to kick butt Mike !   Katie

    yippee -- great news

    Hey Mike

    CONGRATS.....finally some great news !!   So glad to hear the "NO" part for sure.

    It's about time we had some good news on this site. 

    I think we all needed to hear that, so way to go !

    And now it's Happy Dance time.

  • Laralyn
    Laralyn Member Posts: 532
    Great news!

    Here's hoping many more NEMDs to come!

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    NEMD SCHMENDMD

    That's Great News Mike!

    Based on what you're saying, you're still being treated for the primary and they're making sure they have it contained. Sounds to me they're saying it hasn't spread past the primary site and that's good news! Keep on keeping on..it's encouraging to read a positive report!

    "T"

    PS... I used to push that kind of weight :) With that bald head from behind we could pass as twins! ~lol~

  • phrannie51
    phrannie51 Member Posts: 4,716
    LOL....

    Wonderful on the lastest scan, Mike!!!.....I'm like everybody else..."No Evidence........" is the perfect start of any acronym around here, and I'm delighted to hear they have given you that label.

    p

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    choice

    i love the choice of accepting NEMD..... that is wonderful news 

     

    keep fighting the fight and we will continue to be here for you and say our prayers as the evidece has proven prayers are making the difference. 

    i know you may not feel like dancing, so maybe you can do a tap dance for NEMD 

    john 

  • Greg53
    Greg53 Member Posts: 849
    fisrpotpe said:

    choice

    i love the choice of accepting NEMD..... that is wonderful news 

     

    keep fighting the fight and we will continue to be here for you and say our prayers as the evidece has proven prayers are making the difference. 

    i know you may not feel like dancing, so maybe you can do a tap dance for NEMD 

    john 

    Yo Buddy!!

    Great news bro’!!!!!

    (And John, he can dance.  He says he lifts weights, but I’ve seen him – he gets all his exercise from Zumba and Jazzercise classes.)

    Time to hook up for a cup-a-joe, Mike!  Keep those wheels a-rolling

    Greg

     

     

     

  • donfoo
    donfoo Member Posts: 1,771 Member
    Congrats!

    Either way it sounds like news. Hang in there and keep striving for more NExD reports! Don

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    NEMD

    Mike,

     

    Great news!  Glad to hear good results from treatments.  Keep improving.

     

    Best,

     

    Matt

  • patricke
    patricke Member Posts: 570
    NEMD

    Hey Mike, congratulations on the great news; you go guy, and ride that wagon, ride it like the wind!  HERE'S WISHING YOU CONTINUOUS FINDINGS OF NEMD!!

    PATRICK

  • hwt
    hwt Member Posts: 2,328 Member
    patricke said:

    NEMD

    Hey Mike, congratulations on the great news; you go guy, and ride that wagon, ride it like the wind!  HERE'S WISHING YOU CONTINUOUS FINDINGS OF NEMD!!

    PATRICK

    Mike

    Sounds good! You are so deserving of the positive news. I am happy for you and your family. Do something fun to celebrate.

     

    Candi

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    fishmanpa said:

    NEMD SCHMENDMD

    That's Great News Mike!

    Based on what you're saying, you're still being treated for the primary and they're making sure they have it contained. Sounds to me they're saying it hasn't spread past the primary site and that's good news! Keep on keeping on..it's encouraging to read a positive report!

    "T"

    PS... I used to push that kind of weight :) With that bald head from behind we could pass as twins! ~lol~

    Primary

    My primary was head and neck and after 22 months of NED, it metastasized into my lung and lymph nodes in my mediastinum. I now have 12 weeks of no visible tumors in my chest. You look like you throw around some weight in the gym, like me, did the heavy stuff come to an end after cancer treatment? 

    Best

    Mike

  • Billie67
    Billie67 Member Posts: 898
    hwt said:

    Mike

    Sounds good! You are so deserving of the positive news. I am happy for you and your family. Do something fun to celebrate.

     

    Candi

    Mike
    Such amazing news! I am so happy for you!!
    Are you taking anything to combat the erbitux side effects?
    Billie
  • AirForce Vet
    AirForce Vet Member Posts: 25
    Mike

    Super, super news!!!! keep fighting the good fight.  You are a real fighters!

    Joe

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    Billie67 said:

    Mike
    Such amazing news! I am so happy for you!!
    Are you taking anything to combat the erbitux side effects?
    Billie

    Side effects

    I am taking Minocyclene to try to dry out my acne, but I have gotten staph twice now. I have also been prescribed 5% Benzyole Peroxide body wash, both of which do not work to my satisfaction. The most painfull side effects are the skin cracks and ingrown nail type issues that really hurt, and keep me from going to the gym when they are really bad. I go to see my Oncologist  on Monday and plan to pin him down for some solutions to these issues as having to accept these obstacles will not be acceptable for me going forward. 

    Mike