To TW

ClaraW
ClaraW Member Posts: 64
I don't believe you understand how much you've touched our lives. My sister-in-law and I have read through each and every one of your posts. We cannot thank you enough for the amount of knowledge and comfort we have gained. Your threads are like your arms reaching out to help all of us who are seeking desperately for help. Your selfless and relentless drive to help others who are more fortunate than yourself as far as RCC is concerned is heroic.

I know your treatment will be effective, and you will thrive and enjoy life for many many more years to come, however I am still sad. Sad because I cannot think of a way I can be of any assistance to you.

If I were Behrman, I’d paint you the last leaf.
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Comments

  • foxhd
    foxhd Member Posts: 3,181 Member
    shared sentiments
    Clara, we all share your feelings. Wedgie is without doubt our most appreciated, loved, and probably most intelligent friend and leader on this forum. He leads us unselfishly into the research, guidance and insight that he shares with us. One can only imagine how busy he is in his private life. Yet here he is always with a helping hand. Even to those much more fortunate than he..... ( Even if he does golf in the rain and cold.)
  • angec
    angec Member Posts: 924 Member
    HERE! HERE! I concurr!!

    HERE! HERE! I concurr!!
  • alice124
    alice124 Member Posts: 896 Member
    Wedgie
    Couldn't agree with you and Fox and Angie more. Wedgie is one of the most selfless people I've ever met in Webworld or otherwise.

    Today I had a young man stop by and see me about his father who was just diagnosed with melanoma, stage 4/grade 4. He was quite distraught and said his Dad only had months to live. I immediately told him what I've learned from this Board. If you have a doctor giving you a time frame for life, you need a new doctor. And then I went in to print Tex's Acor instructions. I wonder how many similar scenarios are repeated every day by different people at different sites, all having Tex as the common denominator. I love all you guys on this Board, but Tex represents its heart and soul. The time he expends helping others puts him right up there in angel ranks, though I admittedly have had occasion to also refer to him as a vampire with the hours he keeps. Thank you Wedgie.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    The Last Leaf
    Clara, I can't thank you enough for your beautifully poetic and touching message which, I have to tell you, reduced me to tears. I think I must now promise to be your Johnsy! I shall take the story with me wherever life now leads me.



    Can't stay serious for too long though, so I can't forbear noting that poor old Behrman was over 60, and so he was obviously on borrowed time - amazing to think that people could live to that sort of age!
  • Texas_wedge
    Texas_wedge Member Posts: 2,798

    The Last Leaf
    Clara, I can't thank you enough for your beautifully poetic and touching message which, I have to tell you, reduced me to tears. I think I must now promise to be your Johnsy! I shall take the story with me wherever life now leads me.



    Can't stay serious for too long though, so I can't forbear noting that poor old Behrman was over 60, and so he was obviously on borrowed time - amazing to think that people could live to that sort of age!

    Friends
    Clara, Fox, Angie, Alice - this is all getting a bit embarrassing but I suppose I shall just have to be brave and learn to live with the embarrassment [8-)
  • foxhd
    foxhd Member Posts: 3,181 Member

    Friends
    Clara, Fox, Angie, Alice - this is all getting a bit embarrassing but I suppose I shall just have to be brave and learn to live with the embarrassment [8-)

    YGOI
    You'll get over it.
  • angec
    angec Member Posts: 924 Member
    foxhd said:

    YGOI
    You'll get over it.

    LOL you guys are too funny!
    LOL you guys are too funny! But we love you anyway!
  • garym
    garym Member Posts: 1,647

    The Last Leaf
    Clara, I can't thank you enough for your beautifully poetic and touching message which, I have to tell you, reduced me to tears. I think I must now promise to be your Johnsy! I shall take the story with me wherever life now leads me.



    Can't stay serious for too long though, so I can't forbear noting that poor old Behrman was over 60, and so he was obviously on borrowed time - amazing to think that people could live to that sort of age!

    That sort of age...
    As I've aged, I've become kinder to myself, and less critical of myself. I've become my own friend.

    I have seen too many dear friends leave this world, too soon; before they understood the great freedom that comes with aging.

    Whose business is it, if I choose to read, or play, on the computer, until 4 AM, or sleep until noon? I will dance with myself to those wonderful tunes of the 50, 60 &70's, and if I, at the same time, wish to weep over a lost love, I will.

    I will walk the beach, in a swim suit that is stretched over a bulging body, and will dive into the waves, with abandon, if I choose to, despite the pitying glances from the jet set. They, too, will get old.

    I know I am sometimes forgetful. But there again, some of life is just as well forgotten. And, I eventually remember the important things.

    Sure, over the years, my heart has been broken. How can your heart not break, when you lose a loved one, or when a child suffers, or even when somebody's beloved pet gets hit by a car? But, broken hearts are what give us strength, and understanding, and compassion. A heart never broken, is pristine, and sterile, and will never know the joy of being imperfect.

    I am so blessed to have lived long enough to have my hair turning gray, and to have my youthful laughs be forever etched into deep grooves on my face. So many have never laughed, and so many have died before their hair could turn silver.

    As you get older, it is easier to be positive. You care less about what other people think. I don't question myself anymore. I've even earned the right to be wrong.

    So, to answer the question, I like being old. It has set me free. I like the person I have become. I am not going to live forever, but while I am still here, I will not waste time lamenting what could have been, or worrying about what will be. And I shall eat dessert every single day (if I feel like it).

    MAY OUR FRIENDSHIP NEVER COME APART, ESPECIALLY WHEN IT'S STRAIGHT FROM THE HEART!

    Anonymous

    P.S. Big DITTO on everything already said
  • foxhd
    foxhd Member Posts: 3,181 Member
    garym said:

    That sort of age...
    As I've aged, I've become kinder to myself, and less critical of myself. I've become my own friend.

    I have seen too many dear friends leave this world, too soon; before they understood the great freedom that comes with aging.

    Whose business is it, if I choose to read, or play, on the computer, until 4 AM, or sleep until noon? I will dance with myself to those wonderful tunes of the 50, 60 &70's, and if I, at the same time, wish to weep over a lost love, I will.

    I will walk the beach, in a swim suit that is stretched over a bulging body, and will dive into the waves, with abandon, if I choose to, despite the pitying glances from the jet set. They, too, will get old.

    I know I am sometimes forgetful. But there again, some of life is just as well forgotten. And, I eventually remember the important things.

    Sure, over the years, my heart has been broken. How can your heart not break, when you lose a loved one, or when a child suffers, or even when somebody's beloved pet gets hit by a car? But, broken hearts are what give us strength, and understanding, and compassion. A heart never broken, is pristine, and sterile, and will never know the joy of being imperfect.

    I am so blessed to have lived long enough to have my hair turning gray, and to have my youthful laughs be forever etched into deep grooves on my face. So many have never laughed, and so many have died before their hair could turn silver.

    As you get older, it is easier to be positive. You care less about what other people think. I don't question myself anymore. I've even earned the right to be wrong.

    So, to answer the question, I like being old. It has set me free. I like the person I have become. I am not going to live forever, but while I am still here, I will not waste time lamenting what could have been, or worrying about what will be. And I shall eat dessert every single day (if I feel like it).

    MAY OUR FRIENDSHIP NEVER COME APART, ESPECIALLY WHEN IT'S STRAIGHT FROM THE HEART!

    Anonymous

    P.S. Big DITTO on everything already said

    Yep
    Those who don't get your point are at a loss. Again, after 35 years in health care, that is my philosophy based on probably thousands of interactions with older individuals. I really expect to die at peace. Pity those who don't. However, that being said,...Party on! Don't miss a minute. Fox loves you! FLY!
  • I am alive
    I am alive Member Posts: 315
    Here! Here!
    Clara, how beautifully put. Yes Tex, you are special. Thank you for caring so much about all of us. You are in our prayers. You will breeze through this latest procedure buoyed by the good will you so graciously and continuously dispense to everyone else. I just know you'll be fine. :)
  • ClaraW
    ClaraW Member Posts: 64

    Here! Here!
    Clara, how beautifully put. Yes Tex, you are special. Thank you for caring so much about all of us. You are in our prayers. You will breeze through this latest procedure buoyed by the good will you so graciously and continuously dispense to everyone else. I just know you'll be fine. :)

    TW
    I just read your post re elevated LFT.....I can't hold back my tears....just want you to know I am thinking of you and praying for you during this very difficult time.....
  • Baaa-bs
    Baaa-bs Member Posts: 50
    You are truly amazing

    Texas Wedge,

    I really don't know what to say... your last post just broke my heart. I sure hope they will figure out something for you, You have been such an inspiration and a plethera of information to everyone.

    Big hugs going out your way, and prayers said everyday.

    Hang in there!

  • Djinnie
    Djinnie Member Posts: 945
    Scottish Terrier!

    Hi Tex, 

    Unlike the others I have known you just a matter of months. I remember you were the first person to welcome me to this site, with words of encouragement. Over the months I have come to know and appreciate you, and all the advice and guidance that you share so selflessly. Your wealth of knowledge knows no bounds, you are like the key stone. I know first hand that the Scott's come from strong stock, to me you have the attributes of a true Scottish Terrier:-

    Bold, confident, extremely intelligent, stoic, thoughtful, friendly, independent and fearless, a determined watchdog, steadfastly loyal, playful, jaunty yet steady and dignified, friendly and lovable, but can be crusty at times! Wink

    We all love and appreciate you! You are at the centre of all our thoughts and prayers!

    I hope all goes well today!

     

    Djinnie xx

     

     

     

     

     

  • ClaraW
    ClaraW Member Posts: 64
    Djinnie said:

    Scottish Terrier!

    Hi Tex, 

    Unlike the others I have known you just a matter of months. I remember you were the first person to welcome me to this site, with words of encouragement. Over the months I have come to know and appreciate you, and all the advice and guidance that you share so selflessly. Your wealth of knowledge knows no bounds, you are like the key stone. I know first hand that the Scott's come from strong stock, to me you have the attributes of a true Scottish Terrier:-

    Bold, confident, extremely intelligent, stoic, thoughtful, friendly, independent and fearless, a determined watchdog, steadfastly loyal, playful, jaunty yet steady and dignified, friendly and lovable, but can be crusty at times! Wink

    We all love and appreciate you! You are at the centre of all our thoughts and prayers!

    I hope all goes well today!

     

    Djinnie xx

     

     

     

     

     

    Lost without you TW
    Hoping for a lifeline from your onc today. Fingers crossed.
  • ClaraW
    ClaraW Member Posts: 64
    ClaraW said:

    Lost without you TW
    Hoping for a lifeline from your onc today. Fingers crossed.

    bilirubin and ALP
    Tex, just a thought.....I read your SP post and noted that you had dark urine and your ALP was alot higher than your ALT...do you think this suggested biliary obstruction rather than hepatotoxicity? Ie get an US or ERCP...put ..in a stent...and continue with the votrient????
  • icemantoo
    icemantoo Member Posts: 3,360 Member
    Comfort Zone

    TW,

     

    For the most part I have stayed in my comfort zone and left the difficult subjects to you. If you did not know the answer you would find it. I only handled the easy problems except when I tryed to find a match for GSRon. This board needs at lot more of your solutions rather than my limited experiences. Keep fighting.

     

     

    Icemantoo.

  • ClaraW
    ClaraW Member Posts: 64
    icemantoo said:

    Comfort Zone

    TW,

     

    For the most part I have stayed in my comfort zone and left the difficult subjects to you. If you did not know the answer you would find it. I only handled the easy problems except when I tryed to find a match for GSRon. This board needs at lot more of your solutions rather than my limited experiences. Keep fighting.

     

     

    Icemantoo.

    onc appt
    Hope your onc appointment today has shed some light...and I hope it is something reversible like cholestasis causing the raise in bilirubin and ALP, not the votrient. Praying for a better outcome. We are all in your corner.
  • DMike
    DMike Member Posts: 259
    TW

    I don't post that often, but I'm always here reading. I'm amazed by your contributions here and on Smart Patients. I think about you and everyone else here often. This is a wonderful place and you make it that much better. Thank you!

    --David

  • TillieSOK
    TillieSOK Member Posts: 252
    Djinnie said:

    Scottish Terrier!

    Hi Tex, 

    Unlike the others I have known you just a matter of months. I remember you were the first person to welcome me to this site, with words of encouragement. Over the months I have come to know and appreciate you, and all the advice and guidance that you share so selflessly. Your wealth of knowledge knows no bounds, you are like the key stone. I know first hand that the Scott's come from strong stock, to me you have the attributes of a true Scottish Terrier:-

    Bold, confident, extremely intelligent, stoic, thoughtful, friendly, independent and fearless, a determined watchdog, steadfastly loyal, playful, jaunty yet steady and dignified, friendly and lovable, but can be crusty at times! Wink

    We all love and appreciate you! You are at the centre of all our thoughts and prayers!

    I hope all goes well today!

     

    Djinnie xx

     

     

     

     

     

    I've only known you a short

    I've only known you a short while, also, Tex, but I feel like I've known you forever.  You cut to the chase and do not offer BS and platitudes.  I love that.  You were the first one, I believe, who welcomed me to this board when I was a pile of quivering fear and self pity.  I firmly, do ya hear me?? FIRMLY believe that your liver problem are going to be solvable and you will be back on Votrient shortly!  Heck, tell them to give you Ribiviran!  That stuff gives the liver a better chance to heal itself fast!  My husband was a stage 3b grade 3 on his liver when he started (4 is cirrhosis) Interferopegalated Alpha 2b w/ribiviran (he had HCV) and within 6 months not only was he at zero viral load, but his liver was stone cold normal! Funny thing was, his LF was always, always within normal limits. You WILL get better, because as others have said long before me...you are the heart and soul of this forum. ((((Hugs)))) Hoping to hear some good news in the coming days!

  • foxhd
    foxhd Member Posts: 3,181 Member
    DMike said:

    TW

    I don't post that often, but I'm always here reading. I'm amazed by your contributions here and on Smart Patients. I think about you and everyone else here often. This is a wonderful place and you make it that much better. Thank you!

    --David

    fly

    ELT. Everybdy is sending Karma. Once a fighter, always a fighter. We don't expect less. No knockout has been delivered yet. I suspect you will throw that big punch and go the distance. Many rounds to go.