Sep 13, 2012 - 6:29 pm
Hope all is well with you today. Yesterday I met with my Onco Doc, and I guess it went better than expected. I have Metastatic Disease in my lungs from my original SCC of my Tonsil and neck nodes. He says this is better for me VS A new primary in my Lung. Surgery is a no go as with Lymph Node involvement in my Mediastynum, it would be pointless. Radiation is not recommended as damaging my lungs would create more problems than I would want to deal with. I decided on a clinical trial using 3 drugs that are all considered Tier 1 drugs and all FDA approved. On the 24th I will start with an infusion of Carboplatin, followed by a 4 day infusion of 5FU via "man purse" and then an infusion of Cetuximab. The Cetuximab is the focus of the trial for two reasons. 1) Adding it to the two other drugs, and the study is focusing on the US version VS the Europen version from Eli Lilly.
I will do a totsl of 6 cycles over a 22 week period, getting a "reconissance scan" after the completion of 2 cycles. I can stay in the trial as long as there is not tumor growth greater than 20% or new tumors showing up. If I have to come off the trial, my Onco says he has up to 5 other treatment regiments he can try.
Anyone else have a similar story to share??