CSN Login
Members Online: 3

You are here

glioblastoma level 4 brain tumor survivors

Posts: 4
Joined: Jul 2012

Hello Everyone, I'm interested in talking with anyone long term survivor of a glioblastoma level 4 brain tumor. My son-in-law was diagnosed in June of 2012 and had the operation and about 3 weeks ago completed his 6 weeks of radiation. Tomorrow we is going to have his M.R.I done and then speak with the doctor. I'm very worried and pray that will will here better news tomorrow. He is 37 yrs. old and they have 3 small children. This has been a very hard journey for all of us since June but it will be well worth it if we can hear something good tomorrow. Our lives as well as his have changed within minutes. I'm hoping someone can share some good news with me. God Bless All of You, Phil

Posts: 2
Joined: Jan 2013

One month ahead of you with husband diagnose same. Doing good so far.  We are at 5 chemo steps and no tumors regrowth. Much to say....writing with phone keyboard ...will post again when at computer.  Have him drink mangosteen juice and mix powdered raw protein and greens. Great results.

Posts: 2
Joined: Mar 2013

I just finished my first 5 day cycle at 300 mg a day and it totally wiped me out. I had no real issues with the 150 mg during the radiation treatments and was surprised at how bad I felt. Extreme fatigue. Talk to Dr in 2 weeks before next cycle, but I can't tolerate that dosage again. What kind of dosages are people on? 

Posts: 2
Joined: Mar 2013

Hi all...I have recently just found out one of my family members have been diagnosed with the aforementioned cancer. I am looking for some positive battles against this to keep my family members sprits high but at the min i'm finding very depressing stories. Please could you email me any success stories/battles you have had just so I can stir a bit of fight into the family member. My email address is kevinclarke05@gmail.com. I really really would appreciate any positive stories any of you have (no matter how small or insignificant you may think it is) as my family member is very down at the moment. Thanks.

Posts: 5
Joined: Mar 2013


You can even call him.  He is very strong, prompt, and inspirational.

He is at least 8 years out and with the will of God, going well.

Posts: 1
Joined: Mar 2013

Hi everyone,

I found a list of long term survivors at virtualtrials.com/survive.cfm, you can read their stories and e-mail them. I e-mailed three of the people with questions and two e-mailed me back. Their is also a nice website called btbuddies.org.uk, then click on Stories of Hope. It is a website from the UK, but it is nice to read all the survivor stories. I know this post was started last year, but this information might be helpful to anyone new that might come across this post looking for the same information...Kat

Posts: 2
Joined: Apr 2013

Hi my wife is a glioblastoma survivor. 6 years, 4 months and 18 days since diagnosis.   There is hope for long survival despite the statistics. Every individual case is different.  Just signed up here to spread hope to correspond with other survivors.


Subscribe to Comments for "glioblastoma level 4 brain tumor survivors"