ADCC

katenorwood
katenorwood Member Posts: 1,912
in Head and Neck Cancer #1
Well I should have a better idea if my disease is stable or advanced today. NED would be very welcomed but not necessarilly in the cards for this crap. I have been very positive until this am...dreading to hear the out come of these tests. I was told the last visit in April, the cancer was still there...rads didn't (couldn't) work for me. Reading Tim's post on prayers and your responses put me in tears. Not a bad thing people...just not wanting or ready yet. I feel like a gigantic wishy washy bag of fear right now. You are all such fighters...true survivors...and I am trying. Wish there was more hope out there for us with adenoid cystic carcinoma. Soon....God willing. Well have to get ready for the 6 hr day at the fair (lol) with the driving and tests and doctor visit. Have a great day everyone, and I will bring you all with me....and all your loving positives ! Katie

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    #2
    Oh Katie.....
    Waiting and dreading is absolutely the hardest part about cancer....finding out I DID have it was better than dreading the words. Sending a ton of positive thoughts and prayers with you....will be tucking you in my pocket for this day....warm and safe.

    p
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #3
    phrannie51 said:

    Oh Katie.....
    Waiting and dreading is absolutely the hardest part about cancer....finding out I DID have it was better than dreading the words. Sending a ton of positive thoughts and prayers with you....will be tucking you in my pocket for this day....warm and safe.

    p

    On there way.
    Positive vibes and prayers are heading your way from our
    family to you katie. The good lord will provide good results
    for you, just ask.
    Matthew 7 : 8 " Anyone who asks shall revieve".

    God bless
    Tonsil dad,

    Dan.
  • hwt
    hwt Member Posts: 2,328 Member
    #4
    Tonsil Dad said:

    On there way.
    Positive vibes and prayers are heading your way from our
    family to you katie. The good lord will provide good results
    for you, just ask.
    Matthew 7 : 8 " Anyone who asks shall revieve".

    God bless
    Tonsil dad,

    Dan.

    Prayers
    Thinking of you today and praying for good news.
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #5
    peace & prayers
    Katie,

    Sorry about the waiting anguish, it can’t be helped. I am hoping and praying for a good outcome from all of this.

    Best,

    Matt
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #6
    CivilMatt said:

    peace & prayers
    Katie,

    Sorry about the waiting anguish, it can’t be helped. I am hoping and praying for a good outcome from all of this.

    Best,

    Matt

    What time tomorrow??
    Katie ...if you get this post ...tell me what time tomorrow (I am on Mountain Time) your scan is ....

    As for wishy washy...I find your posts and your comments as strong ...but I also know what you mean ...I was too scared ...very scared many times, many days ..and even now I have my days I "wonder" what that pain is or that "feeling" is ...it's always in the back of our minds.

    With you tomorrow Katie ... with you !!!

    Best,

    Tim
  • Laralyn
    Laralyn Member Posts: 532
    #7
    We're all afraid...
    ...sometimes. I'm afraid, too and I bet we all are, periodically. We're dealing with scary, life-changing stuff here so don't beat yourself up.

    I'm thinking of you!
  • ditto1
    ditto1 Member Posts: 660
    #8
    Laralyn said:

    We're all afraid...
    ...sometimes. I'm afraid, too and I bet we all are, periodically. We're dealing with scary, life-changing stuff here so don't beat yourself up.

    I'm thinking of you!

    Everyone wants to go to
    Heaven but nobody wants to Die is one of my favorite songs. Why because its just that simple we are not ready its just that we all know its coming one way or the other and the ones on this blog face that reality coming from cancer. For some it was indeed the end result but as you have read many many survivors on this site and they all had to go thru the anxiety of did we get it or not. I was thinking the same thing today although Im not but half way thru. But I know when Im done with this very tough treatment plan we will simply put me on a table take some pictures and we will know one way or the other if it worked. Wow thats tough, so many have posted that all was well and as many of our fears in life it was unfounded. But we are human, so we pray you will be NED its the least we can hope for after the fight we have to go thru. We are told to not FEAR its all under control, its just some of us (me) have a hard time letting the control go. You be be fine, thats my Prayer.
  • katenorwood
    katenorwood Member Posts: 1,912
    #9
    Stable disease ...more than I could ask for !
    Thank you all !
    I have no changes in 7 months....hurray for our side ! Will be watching every two months until I reach a year, and then every 6 months ! No this is not NED yet...but more than we anticipated. My doctor is very optimistic and reassurring. I do have to get a better diagnois from the pathologist...was very fague from the beginning, and I did point this out to my onc. He will clear this up...thank god ! With adcc, there are specific histology....cribform, tubular, or solid. (or a combination) I pointed out on the first biopsy, and surgical biopsy they were calling it adcc...but no mention of why. If this is adeno...not adcc, better outcome period ! Thank you all once again for your support, warmest regards ! Katie
  • patricke
    patricke Member Posts: 570
    #10
    NEDS HOPE
    Hey Katie, here's wishing the best report of NEDS for you. I've been going through periodic tests for a lot of years, and I am always nervous, to say the least, about each report. Again, I hope for a NED's report for you.

    PATRICK
  • Ingrid K
    Ingrid K Member Posts: 813
    #11
    katenorwood said:

    Stable disease ...more than I could ask for !
    Thank you all !
    I have no changes in 7 months....hurray for our side ! Will be watching every two months until I reach a year, and then every 6 months ! No this is not NED yet...but more than we anticipated. My doctor is very optimistic and reassurring. I do have to get a better diagnois from the pathologist...was very fague from the beginning, and I did point this out to my onc. He will clear this up...thank god ! With adcc, there are specific histology....cribform, tubular, or solid. (or a combination) I pointed out on the first biopsy, and surgical biopsy they were calling it adcc...but no mention of why. If this is adeno...not adcc, better outcome period ! Thank you all once again for your support, warmest regards ! Katie

    not NED but pretty darn good
    Katie

    sounds like good news to me.... we'll take it, right !
    wishing you continued encouraging news from your docs and the path report.
  • NoDuck
    NoDuck Member Posts: 134
    #12
    katenorwood said:

    Stable disease ...more than I could ask for !
    Thank you all !
    I have no changes in 7 months....hurray for our side ! Will be watching every two months until I reach a year, and then every 6 months ! No this is not NED yet...but more than we anticipated. My doctor is very optimistic and reassurring. I do have to get a better diagnois from the pathologist...was very fague from the beginning, and I did point this out to my onc. He will clear this up...thank god ! With adcc, there are specific histology....cribform, tubular, or solid. (or a combination) I pointed out on the first biopsy, and surgical biopsy they were calling it adcc...but no mention of why. If this is adeno...not adcc, better outcome period ! Thank you all once again for your support, warmest regards ! Katie

    Great Report!
    Just like your hero The Duke, you saddled up and rode this bronco. Congrats!

    Deb
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #13
    patricke said:

    NEDS HOPE
    Hey Katie, here's wishing the best report of NEDS for you. I've been going through periodic tests for a lot of years, and I am always nervous, to say the least, about each report. Again, I hope for a NED's report for you.

    PATRICK

    Wait..did I read that correctly????
    So, you are saying you heard back from the doctor and your cancer is STABLE? and that is a good thing? Is that correct?

    If so...then I am one very happy man for you!!!!! Now to be honest, I don't undertand the word "stable" but if I am to take a stab at guessing correctly it would be this: most times ADCC is not good and hard to treat (you said in an erlier post rads will not work for you, I assume due to previous rads) so for you to get a "stable" report is actually very good thing. (that is not a question but a statement).

    Well ...yahoo!! Please do keep us posted..I'd love to hear more about this whole stable thing from you...but suffice to say really happy for you Katie :):):)

    I'm thanking the good Lord for this report now!!!! :)

    Best,

    Tim
  • meaganb
    meaganb Member Posts: 244 Member
    #14
    katenorwood said:

    Stable disease ...more than I could ask for !
    Thank you all !
    I have no changes in 7 months....hurray for our side ! Will be watching every two months until I reach a year, and then every 6 months ! No this is not NED yet...but more than we anticipated. My doctor is very optimistic and reassurring. I do have to get a better diagnois from the pathologist...was very fague from the beginning, and I did point this out to my onc. He will clear this up...thank god ! With adcc, there are specific histology....cribform, tubular, or solid. (or a combination) I pointed out on the first biopsy, and surgical biopsy they were calling it adcc...but no mention of why. If this is adeno...not adcc, better outcome period ! Thank you all once again for your support, warmest regards ! Katie

    Katie, I've also been
    Katie, I've also been diagnosed with Adenoid Cystic Carcinoma. What is the difference b/t adeno and Adcc? Just curious? As you know, there isn't a ton of info on our cancer and I'm very young (27) so I'm always looking for a brighter side to this whole situation. I'm so glad you got a good report! I hope you have many more to come!
  • phrannie51
    phrannie51 Member Posts: 4,716
    #15
    katenorwood said:

    Stable disease ...more than I could ask for !
    Thank you all !
    I have no changes in 7 months....hurray for our side ! Will be watching every two months until I reach a year, and then every 6 months ! No this is not NED yet...but more than we anticipated. My doctor is very optimistic and reassurring. I do have to get a better diagnois from the pathologist...was very fague from the beginning, and I did point this out to my onc. He will clear this up...thank god ! With adcc, there are specific histology....cribform, tubular, or solid. (or a combination) I pointed out on the first biopsy, and surgical biopsy they were calling it adcc...but no mention of why. If this is adeno...not adcc, better outcome period ! Thank you all once again for your support, warmest regards ! Katie

    Alright Katie!!!!
    We'll take stable and run with it! Adding "stable" to the list of good words in this disease...Congrats, hon....on your "STABLE" Dx.

    p
  • katenorwood
    katenorwood Member Posts: 1,912
    #16
    meaganb said:

    Katie, I've also been
    Katie, I've also been diagnosed with Adenoid Cystic Carcinoma. What is the difference b/t adeno and Adcc? Just curious? As you know, there isn't a ton of info on our cancer and I'm very young (27) so I'm always looking for a brighter side to this whole situation. I'm so glad you got a good report! I hope you have many more to come!

    sent u some....
    meagan,
    sent you some info thru mail....let me know you recieved ok ? Katie
  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    #17
    katenorwood said:

    Stable disease ...more than I could ask for !
    Thank you all !
    I have no changes in 7 months....hurray for our side ! Will be watching every two months until I reach a year, and then every 6 months ! No this is not NED yet...but more than we anticipated. My doctor is very optimistic and reassurring. I do have to get a better diagnois from the pathologist...was very fague from the beginning, and I did point this out to my onc. He will clear this up...thank god ! With adcc, there are specific histology....cribform, tubular, or solid. (or a combination) I pointed out on the first biopsy, and surgical biopsy they were calling it adcc...but no mention of why. If this is adeno...not adcc, better outcome period ! Thank you all once again for your support, warmest regards ! Katie

    That is great news.
    That is great news. Congrats. We will take all good news we can get.
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #18
    go Katie
    Hi Katie,

    Stable Disease + No Changes + Optimistic and Reassuring Doctor = Katie GOOD. I had to turn on the air conditioning because of all the good energy focused your way.

    Best,

    Matt
  • meaganb
    meaganb Member Posts: 244 Member
    #19
    katenorwood said:

    sent u some....
    meagan,
    sent you some info thru mail....let me know you recieved ok ? Katie

    Katie, I've actually read a
    Katie, I've actually read a little on both of those sites before. Thanks for sending the info. I try not to read that much though because almost all the information seems so hopeless, as if it's not a question of when our disease will come back but when. I do like what one of the cofounders says when she says that she plans to watch her boys grow up and start their lives and one day be sitting in a rocking chair when she's old. I sometimes get angry with friends of mine when they are approaching 30 and they start talking about how getting old is so terrible. I hope I get the chance to be an old woman. I know if that's God's plan for my life, but I can always hope....

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