Got the PEG today

Options
tuffenuff
tuffenuff Member Posts: 277
in Head and Neck Cancer #1
Get to eat tomorrow!!!! Surgery went fine. I feel ok as long as I'm sitting still but boy when I move I get muscle spasms or gas pains or something. And I cannot wait for these hunger pains to go away!

as a side note, GI doc says there is absolutely no damage to my throat from rads yet :o)

Comments

  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    #2
    Options
    so glad
    So glad you got the tube. As against it as I was and I am not using it that much yet, it is nice to put extra water down when you just can't force any more down and to get some extra calories from. I know what you mean by the spasms, I had them for about 10 days but I didn't take my pain meds very faithfully. It will get better
  • ratface
    ratface Member Posts: 1,337 Member
    #3
    Options
    just a warning, use only white wine in the tube as you will never be able to explain those red stains. Just messing with you of course, from the guy who once put a meatball thru a blender and then the the tube. The Sky's the limit?
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #4
    Options
    PEG out
    Hi tuffenuff,

    Sounds like ratface has the cookbook I was missing. You are in a whole new level of the club now, once the muscle spasms and gas pains subside we will teach the secrete sign. Matter-of-fact I liked the PEG so much I had two. You can even learn to do it all by yourself. I just don’t know where to start with telling you all the fun you are going to have, so I won’t.

    Enjoy the swish or drip drip of your meals. I hope it all works out fine for you.

    Best,

    Matt
  • tuffenuff
    tuffenuff Member Posts: 277
    #5
    Options
    CivilMatt said:

    PEG out
    Hi tuffenuff,

    Sounds like ratface has the cookbook I was missing. You are in a whole new level of the club now, once the muscle spasms and gas pains subside we will teach the secrete sign. Matter-of-fact I liked the PEG so much I had two. You can even learn to do it all by yourself. I just don’t know where to start with telling you all the fun you are going to have, so I won’t.

    Enjoy the swish or drip drip of your meals. I hope it all works out fine for you.

    Best,

    Matt

    You guys crack me up

    You guys crack me up
  • sun101
    sun101 Member Posts: 8 Member
    #6
    Options
    So Glad
    So glad thing went well! I will be starting rad on July 9 My Birthday. I hope I can get through all for this without a peg tube. Hope you continue to do well.
  • Laralyn
    Laralyn Member Posts: 532
    #7
    Options
    Good for you!
    Here's hoping you never have to use it, but it could (literally) save your life. So good for you! The pain passes before too long. It was about 3 days for me, and otherwise it only hurt for another week or so when I was REALLY hungry.
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #8
    Options
    sun101
    Hi sun101,

    What a birthday gift to you. Welcome to the club. Drop us a new thread if you want some help from us or have questions.

    Best,

    Matt
  • phrannie51
    phrannie51 Member Posts: 4,716
    #9
    Options
    I had the muscle spasms too.....
    they were like charlie horses in my gut. Altho I didn't use mine much, I felt safer having it in, because with HNC things can change so fast.

    p
  • robinleigh
    robinleigh Member Posts: 297
    #10
    Options
    Awesome
    The peg is the best back-up to have for fluids and nutrition. It can be a life saver if you find it difficult to get enough down on your own. Security blanket you will be glad to have!
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #11
    Options
    robinleigh said:

    Awesome
    The peg is the best back-up to have for fluids and nutrition. It can be a life saver if you find it difficult to get enough down on your own. Security blanket you will be glad to have!

    Hi Tuff
    Missed you post yesterday ...but I'm sure all is well...so just saying glad you got the tube (I guess that's okay to say glad for you) :):)

    Tim
  • biggles1955
    biggles1955 Member Posts: 15 Member
    #12
    Options
    PEG TUBE
    Hi all, got mine on Monday, ended up being a one night stopover in Hospital. Not as bad an experience as I was expecting. Yep, the cramps and spasms hit like mad on Tuseday morning,but the med that I was given for 3 days,CoCodomol ( Paracetomol and Codeine)seems to manage it.
    This is the 3rd week, only 4 more to go !!!
  • tuffenuff
    tuffenuff Member Posts: 277
    #13
    Options
    Tim6003 said:

    Hi Tuff
    Missed you post yesterday ...but I'm sure all is well...so just saying glad you got the tube (I guess that's okay to say glad for you) :):)

    Tim

    Started using it yesterday
    Started using it yesterday and it sure does take a heck of a lot of stress out of my day. I'm still drinking dirty sock water until my fancy water arrives tomorrow. I general, I'm already starting to feel better even though i haven't worked up to full feedings yet. I went a little too long without eating so I don't want to overdo it right away. Spasms are getting better and I'm standing up straighter today :o)
  • buzz99
    buzz99 Member Posts: 404
    #14
    Options
    tuffenuff said:

    Started using it yesterday
    Started using it yesterday and it sure does take a heck of a lot of stress out of my day. I'm still drinking dirty sock water until my fancy water arrives tomorrow. I general, I'm already starting to feel better even though i haven't worked up to full feedings yet. I went a little too long without eating so I don't want to overdo it right away. Spasms are getting better and I'm standing up straighter today :o)

    PEG
    The PEG is a lifesaver. Buzz could not have survived treatment without it. His initial feeding tube caused pain and spasms at first. His PEG was removed when we thought the cancer was gone only to be reinserted 6 weeks later when we found the cancer to be back in May. The second insertion caused no spasms whatsover even though a new opening was made. The Interventional Radiologist said that sometimes the pain is caused by irritation of a nerve. Hope those spams go away. Karen
  • hwt
    hwt Member Posts: 2,328 Member
    #15
    Options
    biggles1955 said:

    PEG TUBE
    Hi all, got mine on Monday, ended up being a one night stopover in Hospital. Not as bad an experience as I was expecting. Yep, the cramps and spasms hit like mad on Tuseday morning,but the med that I was given for 3 days,CoCodomol ( Paracetomol and Codeine)seems to manage it.
    This is the 3rd week, only 4 more to go !!!

    PEG vs G tube
    Just curious, can anyone tell me the diff between a PEG and a G tube? I wasn't sure which I had so when it was removed this morning, I asked and it was a G tube.

Discussion Boards