Sertoli-Lydig Stromol cord Ovarian Cancer

Its supposedly the most rare type of ovarian cancer. It affects the connective tissue in your ovaries and makes your hormones go out of control. The tumors grow huge and rupture causing you to bleed internally. Most of the doctors Ive seen have never treated a case. Has anybody else had it or know somebody who does and if so what kind of experience did you have and what kind of treatment were you given.