Dry mouth : how did you deal with it?

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Sam999
Sam999 Member Posts: 319 Member
I am done with 6 radiations and already hit with extreme dry mouth and throat, throat seems worst. Sips of water helps but night time is hard. I tried biotine oral balance gel recommended by my RN but that is bit sticky And did not help much. Biotine mouthwash helps for 15 mins or so,

I have ordered stoppers 4 from drugstore.com

It would be great if i could info on what products worked best for you.

Also i think i should be prepared for thick mucus, what worked best for you for thick mucus?

I am able to eat fine and no other problems so far.

Thanks,
Sam
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Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
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    Stoppers 4 works for me
    Right now...tho I use more this week than last week. Water of course tho the relief is short lived. Don't have the mucous yet but have Musinex on hand just in case.

    P
  • Sam999
    Sam999 Member Posts: 319 Member
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    Stoppers 4 works for me
    Right now...tho I use more this week than last week. Water of course tho the relief is short lived. Don't have the mucous yet but have Musinex on hand just in case.

    P

    Thanks Phrannie, do you use
    Thanks Phrannie, do you use that right before radiation as well? You use it as often as needed or try to limit it to night time?

    Also after using mugard, we are not to drink anything for 1 hour. My mouth is okay but throat is dry about half an hour after taking mugard. Do you use within one hour or mugard?

    Thx,

    Sam
  • phrannie51
    phrannie51 Member Posts: 4,716
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    Sam999 said:

    Thanks Phrannie, do you use
    Thanks Phrannie, do you use that right before radiation as well? You use it as often as needed or try to limit it to night time?

    Also after using mugard, we are not to drink anything for 1 hour. My mouth is okay but throat is dry about half an hour after taking mugard. Do you use within one hour or mugard?

    Thx,

    Sam

    I do Stoppers 4
    Right before radiation.so I can breathe thrum my mouth.....I couldn't take the dry mouth other wise.
  • phrannie51
    phrannie51 Member Posts: 4,716
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    Sam999 said:

    Thanks Phrannie, do you use
    Thanks Phrannie, do you use that right before radiation as well? You use it as often as needed or try to limit it to night time?

    Also after using mugard, we are not to drink anything for 1 hour. My mouth is okay but throat is dry about half an hour after taking mugard. Do you use within one hour or mugard?

    Thx,

    Sam

    I do Stoppers 4
    Right before radiation.so I can breathe thrum my mouth.....I couldn't take the dry mouth other wise.
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
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    I do Stoppers 4
    Right before radiation.so I can breathe thrum my mouth.....I couldn't take the dry mouth other wise.

    phrannie
    What is Stoppers4? A mouthwash? Have you tried the Biotene and like this better or in addition to? Also have they prescribed a liquid pain killer to gargle/swallow to help with eating? They prescribed BDGX, whatever that all is; I know it's a mixture with lidocaine in it, but I haven't used it yet. Trying to wait until the pain gets unbearable to swallow, but thought I might try it.
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
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    phrannie
    What is Stoppers4? A mouthwash? Have you tried the Biotene and like this better or in addition to? Also have they prescribed a liquid pain killer to gargle/swallow to help with eating? They prescribed BDGX, whatever that all is; I know it's a mixture with lidocaine in it, but I haven't used it yet. Trying to wait until the pain gets unbearable to swallow, but thought I might try it.

    Also, Sam
    You might try a humidifier. I can't tell for sure whether it's helping but even if it's a little bit, I'll take it!
  • phrannie51
    phrannie51 Member Posts: 4,716
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    phrannie
    What is Stoppers4? A mouthwash? Have you tried the Biotene and like this better or in addition to? Also have they prescribed a liquid pain killer to gargle/swallow to help with eating? They prescribed BDGX, whatever that all is; I know it's a mixture with lidocaine in it, but I haven't used it yet. Trying to wait until the pain gets unbearable to swallow, but thought I might try it.

    Stoppers 4 is a spray like Biotene, but I think it
    works better...Moistens up my mouth, and it lasts during rads....I tried doing this with Biotene spray, and it didn't work as well. I got the Stoppers 4 at www.drugstore.com.

    p
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
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    Stoppers 4 is a spray like Biotene, but I think it
    works better...Moistens up my mouth, and it lasts during rads....I tried doing this with Biotene spray, and it didn't work as well. I got the Stoppers 4 at www.drugstore.com.

    p

    Thanks,
    I have a feeling I'm going to be needing it sooner than later!! :)
  • osmotar
    osmotar Member Posts: 1,006
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    Dry Mouth
    Hi Sam,

    I use Stoppers 4, plus sip water all day. The biotene spray didn't do anything for me and I tried their oral balance , I couldn't get that out of my mouth fast enough. One of my rad techs suggested lemon drop candies, as lemon seems to activate some saliva, well at least it did for me..I also put true lemon in my water. I didn't have the mucus problem, but sometimes now that all treatments are over a feel a glob or so in my throat at times and hot tea seems to break it up for me. You may want to ask about the lemon because of the citrus possibly burning your throat as well as a hot liquid like tea. Have you tried a humidifer in the bedroom?

    Linda
  • Marty36
    Marty36 Member Posts: 84
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    Do you have an prescriptions?
    Have you gotten a prescription for dry mouth? I've tried Pilocarpine and Evoxac and both have worked (although Evoxac seems to work better).

    For the mucus, I had a suction machine. I also rinsed a lot (Neutrasal, a prescription) and salt/baking soda with water. I found carbonated water (club soda) also helped with that.

    A suggestion I got from someone else here is Xylimelts, which are lozenges you attach to your cheek or gum that emits Xylitol, a natural sweetner that causes salivation. I'm also a big advocate of chewing gum with Xylitol in it.
  • osmotar
    osmotar Member Posts: 1,006
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    Marty36 said:

    Do you have an prescriptions?
    Have you gotten a prescription for dry mouth? I've tried Pilocarpine and Evoxac and both have worked (although Evoxac seems to work better).

    For the mucus, I had a suction machine. I also rinsed a lot (Neutrasal, a prescription) and salt/baking soda with water. I found carbonated water (club soda) also helped with that.

    A suggestion I got from someone else here is Xylimelts, which are lozenges you attach to your cheek or gum that emits Xylitol, a natural sweetner that causes salivation. I'm also a big advocate of chewing gum with Xylitol in it.

    Xylitol
    My dentist recommended the gum as well as toothpaste made with it-I don't chew a lot of gum but do keep the xylitol gum all around the house and at my office.
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
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    osmotar said:

    Xylitol
    My dentist recommended the gum as well as toothpaste made with it-I don't chew a lot of gum but do keep the xylitol gum all around the house and at my office.

    drops by Halls helps me when I can't sip on water. You can get them sugar free and they create a little saliva too. Can't hurt to try. I chew Eclipse gum a lot for the freshness of the mouth and cleanses but also creates a little saliva, also in sugar free.
  • patricke
    patricke Member Posts: 570
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    Yo Sam, I had dry mouth for
    Yo Sam, I had dry mouth for years, and used Mouth Kote Spray which worked very well. I used a large bottle at home, and bought small spray bottles that I filled with Mouth Kote, and put one in each vehicle, and always had one in my pocket. Being unable to swallow, sipping fluids was not an option.

    PATRICK
  • fishermanljl
    fishermanljl Member Posts: 7
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    Dry Mouth
    I tried everything, Oasis, Biotene and then a dental hygenist frieds gave me a sample of Xylimelts. THese lozenges stick to your back teeth and dissolve over a couple of hours. I would put two in at bedtime and they would keep things tolerable for a few hours. I still use them, especially when I speak or have a presentation to do. Keeps me from going to the water bottle every few seconds. They are made by OraHealth, I think. OVer the counter or on-line. Good luck.
  • phrannie51
    phrannie51 Member Posts: 4,716
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    Dry Mouth
    I tried everything, Oasis, Biotene and then a dental hygenist frieds gave me a sample of Xylimelts. THese lozenges stick to your back teeth and dissolve over a couple of hours. I would put two in at bedtime and they would keep things tolerable for a few hours. I still use them, especially when I speak or have a presentation to do. Keeps me from going to the water bottle every few seconds. They are made by OraHealth, I think. OVer the counter or on-line. Good luck.

    Xylimelts.....
    Ya know, after reading this thread yesterday, I remembered I had gotten some Xylimelts in the very beginning, but had never tried them.........I gave them a go last night, and they are GREAT!! No taste really, used one when I took the dog for a walk, and still had spit by the time I got back....tried one at bed time (30 minutes after the MuGuard)....and never woke up once because of dry mouth.

    Marvelous little things......I got them at Drugstore.com, too.

    p
  • fishermanljl
    fishermanljl Member Posts: 7
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    Xylimelts.....
    Ya know, after reading this thread yesterday, I remembered I had gotten some Xylimelts in the very beginning, but had never tried them.........I gave them a go last night, and they are GREAT!! No taste really, used one when I took the dog for a walk, and still had spit by the time I got back....tried one at bed time (30 minutes after the MuGuard)....and never woke up once because of dry mouth.

    Marvelous little things......I got them at Drugstore.com, too.

    p

    xylimelts
    Spit is a wonderful thing.
  • phrannie51
    phrannie51 Member Posts: 4,716
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    xylimelts
    Spit is a wonderful thing.

    Yeah for spit!!
    Xylimelts are the bomb!!......LOL.

    p
  • Sam999
    Sam999 Member Posts: 319 Member
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    Yeah for spit!!
    Xylimelts are the bomb!!......LOL.

    p

    Thanks so much for all the
    Thanks so much for all the helpful replies. I will be ordering xylimelts and some lemon drops too.

    Marty, my doc said they could give me something after the treatment.

    Apparantely radiation on thorat kills both the major salivery glands. Ones on the cheek will be spared maybe 30%, so i am looking at a lifetime of dry mouth.

    Right now i am having problem making a conversation while walking, looks like xylimelts will help in that.


    Sam
  • fishermanljl
    fishermanljl Member Posts: 7
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    Yeah for spit!!
    Xylimelts are the bomb!!......LOL.

    p

    spit
    Prior to treatment I never thought drool on the pillow would be so welcomed. The first time it happened you would have thought it was Christmas and a new bike was under the tree. Small victories add up
  • NikiSmith
    NikiSmith Member Posts: 4
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    AS Saliva Orthana, effective relief for dry mouth
    Hi, here in the UK we have AS Saliva Orthana which is formed from a naturally occurring mucin, its possibly the closest thing to human saliva available . . . . Does any one know if it is available in America?