update-- had chemo today,
He says the exhaustion is from the chemo and cancer that my body is on the downhill and the exhaustion is from my depleted immune system and the chemo trying to fight the cancer. He explained a little about what I have to look forward to. Not good, but what I expected as my hospice Doctor also went over it a little bit a couple of months ago. But I could be around for a while, and will continue with chemo until my body or I decide enuf and there is no quality of life. Today I felt better, so I know that I am not there yet!!! As long as I have good days, the fight is still on....
Hugs and prayers to everyone! Will let you know how the surgery goes next week.
Carol
In lwss than 2 weeks. Yup, between the chemo and steroids I am havin trouble seein, right eye is really bad, left eye is getting worse. Here is the problem, when I went for chemo Monday, they couldn't give it to me because my numbers are too low. If they are too low for chemo, I cant imagine that they are going to let me have the surgery and I have waited 8 weeks to get on. I knew I was low as I woke up Sunday morning with cold sores, and just got over a uti about a week and a half ago.
I tried to tell him last week that I am so exhausted all the time, after 16 months of weekly chemo my body is just plain pooped out. So if I have it the next 2 mondays, I cant imagine that I will be strong enough.
This is messing up my plans of taking off the month of June from chemo to take a break and spend some time in sunny so. cal. Have to wait til Monday to see what the doctor comes up woth. Just totally pooped out and sleeping most of he time! Is this qualiy?
Comments
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Shots?
Is there a possibility for those Neulasta shots? I don't know much about them except they seem to use them for low WBC. They didn't have them when I did chemo so many years ago. Perhaps you already take them.
I do hope that your schedule cataract surgery will happen. I needed to wait for mine also but for very different reasons. It would be nice to see on your vacation. I remember all to well the days of everything looking like I was in an impressionist painting.
Hoping that you things will work out for you.
Best,
Doris0 -
Oh, Carol, I'm so sorrySIROD said:Shots?
Is there a possibility for those Neulasta shots? I don't know much about them except they seem to use them for low WBC. They didn't have them when I did chemo so many years ago. Perhaps you already take them.
I do hope that your schedule cataract surgery will happen. I needed to wait for mine also but for very different reasons. It would be nice to see on your vacation. I remember all to well the days of everything looking like I was in an impressionist painting.
Hoping that you things will work out for you.
Best,
Doris
No--this certainly isn't quality, but it's temporary. Don't give up--those counts will come up. I had the Neulasta shots after chemo, but it is my understanding that they have to be given very soon after your treatment--a day or two--to have any effect.
I'm hoping you can get some good rest and eat whatever you can tolerate to help your immune system re-group. This is taking a lot out of you, but we all know you're stronger than those dang treatments. Show 'em who's boss. We're all pulling for you, Carol.
Hugs, Renee0 -
CarolJean 0609 said:Hi Carol,
I know a few people that have recently had cataract surgery and there sight is amazingly better. Sorry to hear your energy isn't there. Hopefully, things will be better.
xoxo,
Jean
Just wanted to let you know you're in my prayers and sending lots of positive thoughts your way. Hope your count goes up along with your energy.
Hugs, Debi0 -
It was a week since the last chemomissrenee said:Oh, Carol, I'm so sorry
No--this certainly isn't quality, but it's temporary. Don't give up--those counts will come up. I had the Neulasta shots after chemo, but it is my understanding that they have to be given very soon after your treatment--a day or two--to have any effect.
I'm hoping you can get some good rest and eat whatever you can tolerate to help your immune system re-group. This is taking a lot out of you, but we all know you're stronger than those dang treatments. Show 'em who's boss. We're all pulling for you, Carol.
Hugs, Renee
they didn't even offer this time. I have slept for 2 days pretty much straight again. I have had probably 7 or 8 Neulasta shots since beginning all the chemo. I just hate the thought of waiting another 8 weeks or so for the surgery. I am so ready for a break from the chemo. I keep hoping that my counts come back up and they have been low for a while, but the last 4-6 weeks I have just been depleted. I will feel good for a day or two then just too tired to do anything.
I think my immune system is plumb worn out. I went with my daughter in law for a few hours on Wednesday afternoon. I came home exhausted. Got up for an hour yesterday morning, and again last night for about 3, then fell asleep till this morning. Got up, ate breakfast, went back to bed, my son woke me about 730p so I would eat, ate, then fell asleep and just got up about a half hour ago. But I am so ready to go back to sleep!
This sucks, I didn't even have chemo this week only the Herceptin? I am hoping tomorrow will be better. Guess I am just venting.0 -
Jean,Jean 0609 said:Hi Carol,
I know a few people that have recently had cataract surgery and there sight is amazingly better. Sorry to hear your energy isn't there. Hopefully, things will be better.
xoxo,
Jean
The eye surgeon said that my vision should be even better than it was before I started chemo. Right now, I can't drive at night, and have trouble reading. Have lost my peripheral vision in my right eye and I can see that my left eye is getting worse and I love to read. So I keep hoping, just tired. Thanks all for caring.0 -
Very sorry Carol. You'vesbmly53 said:Carol,
I am so sorry that you are so exhausted. You are such a fighter, a real trooper. I hope that you will have the surgery soon and that you will be able to have your month off. California is waiting for you!
Sue
Very sorry Carol. You've already gone through so much. I hope your surgery will be scheduled very soon for you so you can still take off June.
Hugs, Kylez0 -
Hi KylezKylez said:Very sorry Carol. You've
Very sorry Carol. You've already gone through so much. I hope your surgery will be scheduled very soon for you so you can still take off June.
Hugs, Kylez
my surgery is scheduled for May 16th and 18th, if my numbers don't come back up then I won't be able to have it for a while, I have waited 8 weeks and only got it in May because of a cancellation. It was set for July. My numbers keep getting lower, I just think that after 16 months of chemo, my body is tired. I have been so exhausted that I sleep more than I am awake. But today, I forced myself to get up and have not gone back in my room, so I wouldn't lay back down!
I do feel better today than I have in a while.... so I will keep my fingers crossed for Monday that my WBC is higher than a 1.4 and my neu is higher than .9. Now though I am going to bed!
Good Night everyone!0 -
Good luckcamul said:Jean,
The eye surgeon said that my vision should be even better than it was before I started chemo. Right now, I can't drive at night, and have trouble reading. Have lost my peripheral vision in my right eye and I can see that my left eye is getting worse and I love to read. So I keep hoping, just tired. Thanks all for caring.
Carol,
Good luck with your surgery. I hope everything will go well and your quality of life improves shortly after your surgery.
Hugs
New Flower0 -
Sending positive thoughtsJean 0609 said:Hi Carol,
I know a few people that have recently had cataract surgery and there sight is amazingly better. Sorry to hear your energy isn't there. Hopefully, things will be better.
xoxo,
Jean
Sending positive thoughts and prayers.
Hugs, Jan0 -
Carol, I will be praying forcamul said:Jean,
The eye surgeon said that my vision should be even better than it was before I started chemo. Right now, I can't drive at night, and have trouble reading. Have lost my peripheral vision in my right eye and I can see that my left eye is getting worse and I love to read. So I keep hoping, just tired. Thanks all for caring.
Carol, I will be praying for you.
♥ Kristin ♥0 -
Carol, I just saw this post
Carol, I just saw this post and realize it's a few days old. I hope by now that you do have some of your energy back.
I have been on chemo since August 2011 and have had the Nulasta shot many times. I know with the current chemo, Erublin (Halaven) that I get the Nulasta after the 2nd treatment. One of the side effects of this chemo is low white count. I don't get the majority of side effects, but I do get this one. It has so far brought my count back up to a normal range by the next chemo. Maybe it is worth asking your onc about??? Also, one positive about this particular chemo is that I don't have the bone pain from the Nulasta that I have always had in the past. That part is a blessing. I do notice that I don't have the same or anywhere near the energy level I used to have. I am learning to live with it and do what I can do. I still work a full-time job and MUST continue to do that for the insurance. No job = no insurance.
I am hoping that your energy returns and you are able to have the surgery and can then take that chemo break and enjoy your vacation in June. You are amazing and so inspiring....keep that positive attitude!
Sending love and (((hugs))).
Debbie0 -
Any energy yet?MyTurnNow said:Carol, I just saw this post
Carol, I just saw this post and realize it's a few days old. I hope by now that you do have some of your energy back.
I have been on chemo since August 2011 and have had the Nulasta shot many times. I know with the current chemo, Erublin (Halaven) that I get the Nulasta after the 2nd treatment. One of the side effects of this chemo is low white count. I don't get the majority of side effects, but I do get this one. It has so far brought my count back up to a normal range by the next chemo. Maybe it is worth asking your onc about??? Also, one positive about this particular chemo is that I don't have the bone pain from the Nulasta that I have always had in the past. That part is a blessing. I do notice that I don't have the same or anywhere near the energy level I used to have. I am learning to live with it and do what I can do. I still work a full-time job and MUST continue to do that for the insurance. No job = no insurance.
I am hoping that your energy returns and you are able to have the surgery and can then take that chemo break and enjoy your vacation in June. You are amazing and so inspiring....keep that positive attitude!
Sending love and (((hugs))).
Debbie
Hi Carol-
Hate to read you're so exhausted, white counts down, etc., etc. This whole thing must take an emotional as well as physical toll on you. I admire your ability to deal with all that's been thrown at you by this ugly best.
Sending hugs and prayers,
Suzanne0 -
Hey Beautiful thinking ofDouble Whammy said:Any energy yet?
Hi Carol-
Hate to read you're so exhausted, white counts down, etc., etc. This whole thing must take an emotional as well as physical toll on you. I admire your ability to deal with all that's been thrown at you by this ugly best.
Sending hugs and prayers,
Suzanne
Hey Beautiful thinking of you....
How are you doing? hoping that your engery is up and you had a better week.
I so admire your fighting spirit. Women like you are such big inspiration to us all
Keep us posted
God Bless
Eva0 -
Sure hope your numbers get
Sure hope your numbers get up for you,my thoughts and prayers are with you.
Hugs Frankie0 -
I'm praying for rising bloodMsGebby said:Hoping and
praying your strength and WBC counts make an upward turn. That trip to Cali sounds like a perfect remedy for you.
Hang in there. You inspire us all with your integrity and true grit.
Keep on keeping on ....................
Mary
I'm praying for rising blood counts and energy levels! Everyone says the world is so much brighter after cataract surgery and that plus a chemo break and vacation should do you a world of good. Keep us posted.0 -
Wishing you the best of luckMyTurnNow said:Carol, I just saw this post
Carol, I just saw this post and realize it's a few days old. I hope by now that you do have some of your energy back.
I have been on chemo since August 2011 and have had the Nulasta shot many times. I know with the current chemo, Erublin (Halaven) that I get the Nulasta after the 2nd treatment. One of the side effects of this chemo is low white count. I don't get the majority of side effects, but I do get this one. It has so far brought my count back up to a normal range by the next chemo. Maybe it is worth asking your onc about??? Also, one positive about this particular chemo is that I don't have the bone pain from the Nulasta that I have always had in the past. That part is a blessing. I do notice that I don't have the same or anywhere near the energy level I used to have. I am learning to live with it and do what I can do. I still work a full-time job and MUST continue to do that for the insurance. No job = no insurance.
I am hoping that your energy returns and you are able to have the surgery and can then take that chemo break and enjoy your vacation in June. You are amazing and so inspiring....keep that positive attitude!
Sending love and (((hugs))).
Debbie
Wishing you the best of luck Carol and adding some big hugs!0
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